Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Salicylate Intolerant - Need A Helper Who Has Some Experience
0

8 posts in this topic

Hi all,

I wonder if there is anyone in this community who is also salicylate sensitive/intolerant and would be willing to provide me with some ongoing support for the next few weeks. I have read and bookmarked many sites / lists etc but this sals thing is so much more complex than going gluten free.

Thanks in advance,

Diana

0

Share this post


Link to post
Share on other sites


Ads by Google:

It's tricky because too many sites offer conflicting lists of low-high salicylates in foods. I know I have a problem with MSG and soy and I was having trouble even tolerating the scent of candles and perfumes, etc. when I was very ill from the unDxed celiac.

It was diminished a year after being gluten-free, but still, I had symptoms of a high allergic type response: red burning skin, itching, swollen eyelids, scratchy, thick throat, feeling bloated, sores on my scalp and lips. Nothing showed on allergy testing. :blink:

So, the one I used was the Failsafe Diet.

That woman, Sue Dengate....makes the most sense to me.

http://failsafediet.wordpress.com/the-rpah-elimination-diet-failsafe/

IMHO, The only way to know if sals are really a problem is to eat a diet that removes all the culprits FIRST. Here is the introduction to her website:

"This is a trial diet that is designed to eliminate additives, salicylates, amines and glutamates. It is not suitable to treat food allergies or coeliac (celiac) disease. It is not a gluten/casein free diet, a low opioid peptide diet, a low oxalate diet (LOD), the specific carbohydrate diet (SCD), a low lectin diet, a low goiterogenic diet, or a low phytoestrogen diet. This is a copy of the Royal Prince Alfred Hospital elimination diet, but may contain some minor differences. This page is not endorsed or checked by the RPAH.

This diet is designed to test and treat your ability to tolerate additives, salicylates, amines, and glutamates. The elimination diet is designed to eliminate all of these chemicals at once, because sensitivities to these chemicals often occur together and the symptoms caused by each individual chemical largely overlap. Currently, the only accurate way to test if you have a food chemical sensitivity of this kind is to eliminate all of the chemicals involved and then challenge them one by one. This is so that you can figure out which chemicals in particular affect you, and what quantity of chemicals you can manage without experiencing adverse symptoms. This enables you to eat the widest range of food without experiencing adverse symptoms.

It takes most affected people an average of four weeks to “clear” their symptoms and feel better on the diet."

I did it for four weeks last month and all the annoying "histamine type responses " and bloating and allergic/chemical intolerances I had.....drastically lessened. :)

I also stopped taking a glucosamine supplement for my horrid joint and bone pain (that has shellfish in it) and lo and behold!--less burning!!

I was away in Florida on vacation and tried all sorts of sals in foods and had some re-emergence of symptoms so I backed off again. I did too many at once. All those fresh fruits and veggies were too hard to resist. B)

I have been tested out the ying- yang for allergies/intolerances and done dozens of elimination/specialty diets :rolleyes: to no avail. None of them showed/proved a damn thing.

This diet knocked down the high histamine response in me.

It is BORING :lol: I'll be honest, but it helped me quite a bit.

FWIW

Cheers,

IH

1

Share this post


Link to post
Share on other sites

It is BORING :lol: I'll be honest, but it helped me quite a bit.

FWIW

Cheers,

IH

Hi Irish Heart,

At the moment food full stop is pretty boring so anything to assist my intake will be interesting :) My diet is so basic (meat/veg/fruit/rice)! Any ideas about what I can re-introduce is interesting to me at the moment!!!! Thank you for the info

0

Share this post


Link to post
Share on other sites

Hi Irish Heart,

At the moment food full stop is pretty boring so anything to assist my intake will be interesting :) My diet is so basic (meat/veg/fruit/rice)! Any ideas about what I can re-introduce is interesting to me at the moment!!!! Thank you for the info

Fruit is high in sals, hon.

Do you think that sals are your problem?

0

Share this post


Link to post
Share on other sites

I'm on the second half of being convinced about sals being my problem. When I say "fruit" I mean banana and apple. I've found fruit juices a problem so am avoiding them. Banana and apples (as I've read) appear on the 'low' end of sals content and I don't seem to have any reaction to these two. Avocado was (gluten free) a go-to food but I've taken them out too. Yesterday I ate rocket and had an almost immediate reaction.. turns out they are high sals too :( Seems like every second or third time I eat there is something I discover that is high sal. Getting very hard to want to eat and I don't really have any reserve body weight left. Strange after a 38 year lifetime of being overweight!!!

0

Share this post


Link to post
Share on other sites




Take a look at the website. She make suggestions on which foods to reintroduce first and for how long.

Hope this helps!!

0

Share this post


Link to post
Share on other sites

I am sensitive to SALS with DH and intestinal problems/pain. I am a mess right now and I am pretty sure that I haven't had gluten. I have however, had some apple cider. Would apple cider be considered to be high in sals?

Thanks :huh:

0

Share this post


Link to post
Share on other sites

Hi all,

I wonder if there is anyone in this community who is also salicylate sensitive/intolerant and would be willing to provide me with some ongoing support for the next few weeks. I have read and bookmarked many sites / lists etc but this sals thing is so much more complex than going gluten free.

Thanks in advance,

Diana

If you are in the states, I would suggest contacting the Feingold program. Their stage 1 eliminates sals and they have many members who are stage 1 with additional eliminations like gluten, casein... If I had to eliminate those additional items, their food guide would be priceless to me.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,697
    • Total Posts
      921,781
  • Topics

  • Posts

    • It only takes a minute to make a difference. Celiac disease has been overshadowed by the gluten-free diet fad. Getting diagnosed and staying healthy is no piece of cake – those of us who have celiac disease struggle to stay healthy. We need better. We need to be understood. We need a cure. View the full article
    • If you are one of the approximately 2-3 million Americans with celiac disease, ZyGluten™ may be taken before you eat out at a restaurant or a friend\'s house, as it may help break down any gluten cross-contamination that you might encounter. View the full article
    • Advil (ibuprofen) is gluten-free, but can be a stomach irritant, especially if taken on an empty stomach. That said, I will also place my bet on the garlic and onions. As Raven said, eating more than once a day may also help. An empty stomach is likely to be an irritable stomach.
    • Another link: http://naldc.nal.usda.gov/download/7351/PDF
    • Thanks for posting.  I know it is difficult to talk about these sorts of things even on a webforum.  It is good thing for people to be aware though about celiac disease and that it can cause mental problems.  Gluten can cause brain damage and it can cause anxiety. If the brain does heal it may take a long time. I know that gluten can cause anxiety and obsessive thoughts.  My experience has been similar to your experience. When I first quit eating gluten I had a similar constant loop and strong negative feelings. There are lots of people on this forum who get anxiety when they eat gluten. Some people also experience gluten withdrawl where they experience anxiety after giving up gluten. It can take a long time for the body to heal and for obsessive thoughts to go away.
       It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety.  I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten.  Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful.  I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor.  I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot.  This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies.  Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills)  very well, and do better on an activated form of vitamin b. I take:
      1 activated vitamin b12 daily
      1 activated vitamin b6 every once in a while. 1 regular vitamin b multivitamin
      1 magnesium pill every day.
      St Johns Wort daily.
      1 zinc vitamin daily
      I drink lots of Chamomile tea and decaf coffee. I avoid most caffeine. 
      I think each of these helps lower my anxiety level.  I eat fruit with every meal. Canned fruit from walmart is cheap and good for you. I eat salad and and vegetables and avoid dairy.  I eat frozen fish often as it has healthy proteins. Eating healthy is very important. I eat potatoes and rice. http://www.livestrong.com/article/454179-what-is-methyl-b12/ I avoid eating soy sauce, soy, cheese, aged meats and fermented foods (I do drink certain types of alcohol in moderate amounts.) These foods contain lots of Tyramine. I might (or might not) have "monoaine oxidase deficiency" and if so high Tyramine foods should be avoided.  I thought I might have problems with elevated ammonia in my blood, but I am not convinced of that anymore. I limited my consumption of meat for a while as well as dairy but I am not sure if i helped.  I have heard that Celiac disease can effect other organs besides the brain and those organs can have an effect on the brain.  My current diet is working so I am going to stick with it for now. I try not to worry about things that are outside of my control. Be patient as it took me a long time to recover.  Let me know if you have any questions. There is a lot of information on this site and people who are willing to help.
       
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,702
    • Most Online
      3,093

    Newest Member
    Gigi Fagon
    Joined