Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Salicylate Intolerant - Need A Helper Who Has Some Experience
0

8 posts in this topic

Hi all,

I wonder if there is anyone in this community who is also salicylate sensitive/intolerant and would be willing to provide me with some ongoing support for the next few weeks. I have read and bookmarked many sites / lists etc but this sals thing is so much more complex than going gluten free.

Thanks in advance,

Diana

0

Share this post


Link to post
Share on other sites


Ads by Google:

It's tricky because too many sites offer conflicting lists of low-high salicylates in foods. I know I have a problem with MSG and soy and I was having trouble even tolerating the scent of candles and perfumes, etc. when I was very ill from the unDxed celiac.

It was diminished a year after being gluten-free, but still, I had symptoms of a high allergic type response: red burning skin, itching, swollen eyelids, scratchy, thick throat, feeling bloated, sores on my scalp and lips. Nothing showed on allergy testing. :blink:

So, the one I used was the Failsafe Diet.

That woman, Sue Dengate....makes the most sense to me.

http://failsafediet.wordpress.com/the-rpah-elimination-diet-failsafe/

IMHO, The only way to know if sals are really a problem is to eat a diet that removes all the culprits FIRST. Here is the introduction to her website:

"This is a trial diet that is designed to eliminate additives, salicylates, amines and glutamates. It is not suitable to treat food allergies or coeliac (celiac) disease. It is not a gluten/casein free diet, a low opioid peptide diet, a low oxalate diet (LOD), the specific carbohydrate diet (SCD), a low lectin diet, a low goiterogenic diet, or a low phytoestrogen diet. This is a copy of the Royal Prince Alfred Hospital elimination diet, but may contain some minor differences. This page is not endorsed or checked by the RPAH.

This diet is designed to test and treat your ability to tolerate additives, salicylates, amines, and glutamates. The elimination diet is designed to eliminate all of these chemicals at once, because sensitivities to these chemicals often occur together and the symptoms caused by each individual chemical largely overlap. Currently, the only accurate way to test if you have a food chemical sensitivity of this kind is to eliminate all of the chemicals involved and then challenge them one by one. This is so that you can figure out which chemicals in particular affect you, and what quantity of chemicals you can manage without experiencing adverse symptoms. This enables you to eat the widest range of food without experiencing adverse symptoms.

It takes most affected people an average of four weeks to “clear” their symptoms and feel better on the diet."

I did it for four weeks last month and all the annoying "histamine type responses " and bloating and allergic/chemical intolerances I had.....drastically lessened. :)

I also stopped taking a glucosamine supplement for my horrid joint and bone pain (that has shellfish in it) and lo and behold!--less burning!!

I was away in Florida on vacation and tried all sorts of sals in foods and had some re-emergence of symptoms so I backed off again. I did too many at once. All those fresh fruits and veggies were too hard to resist. B)

I have been tested out the ying- yang for allergies/intolerances and done dozens of elimination/specialty diets :rolleyes: to no avail. None of them showed/proved a damn thing.

This diet knocked down the high histamine response in me.

It is BORING :lol: I'll be honest, but it helped me quite a bit.

FWIW

Cheers,

IH

1

Share this post


Link to post
Share on other sites

It is BORING :lol: I'll be honest, but it helped me quite a bit.

FWIW

Cheers,

IH

Hi Irish Heart,

At the moment food full stop is pretty boring so anything to assist my intake will be interesting :) My diet is so basic (meat/veg/fruit/rice)! Any ideas about what I can re-introduce is interesting to me at the moment!!!! Thank you for the info

0

Share this post


Link to post
Share on other sites

Hi Irish Heart,

At the moment food full stop is pretty boring so anything to assist my intake will be interesting :) My diet is so basic (meat/veg/fruit/rice)! Any ideas about what I can re-introduce is interesting to me at the moment!!!! Thank you for the info

Fruit is high in sals, hon.

Do you think that sals are your problem?

0

Share this post


Link to post
Share on other sites

I'm on the second half of being convinced about sals being my problem. When I say "fruit" I mean banana and apple. I've found fruit juices a problem so am avoiding them. Banana and apples (as I've read) appear on the 'low' end of sals content and I don't seem to have any reaction to these two. Avocado was (gluten free) a go-to food but I've taken them out too. Yesterday I ate rocket and had an almost immediate reaction.. turns out they are high sals too :( Seems like every second or third time I eat there is something I discover that is high sal. Getting very hard to want to eat and I don't really have any reserve body weight left. Strange after a 38 year lifetime of being overweight!!!

0

Share this post


Link to post
Share on other sites




Take a look at the website. She make suggestions on which foods to reintroduce first and for how long.

Hope this helps!!

0

Share this post


Link to post
Share on other sites

I am sensitive to SALS with DH and intestinal problems/pain. I am a mess right now and I am pretty sure that I haven't had gluten. I have however, had some apple cider. Would apple cider be considered to be high in sals?

Thanks :huh:

0

Share this post


Link to post
Share on other sites

Hi all,

I wonder if there is anyone in this community who is also salicylate sensitive/intolerant and would be willing to provide me with some ongoing support for the next few weeks. I have read and bookmarked many sites / lists etc but this sals thing is so much more complex than going gluten free.

Thanks in advance,

Diana

If you are in the states, I would suggest contacting the Feingold program. Their stage 1 eliminates sals and they have many members who are stage 1 with additional eliminations like gluten, casein... If I had to eliminate those additional items, their food guide would be priceless to me.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,594
    • Total Posts
      918,296
  • Topics

  • Posts

    • In Dire Need Of Help
      Having anxiety is a major symptom of celiac disease per many of our members on this forum (including me).  These are the tests needed for diagnosing celiac disease but the catch is that you need to be consuming gluten in order for them to be valid.   http://www.cureceliacdisease.org/screening/ Your GP or PCD doctor can order the panel.  Try to go for the complete panel.  Often just the TTG tests are given in order to save costs.  It's good, but does not catch all celiacs. I hope you get relief!  
    • In Dire Need Of Help
      You need to have your adrenal glands checked. I was diagnosed with celiac after my adrenal glands started to shut down. Since then I have met at least 3 others that had the same thing happen. It was missed 3 times in the hospital, for some reason the adrenals often get missed.  It sounds like the latter stages of hypo adrenalism, not adrenal fatigue. Research it to see if that seems like what you are going through and make sure you find a dr that knows how to diagnose and treat it
    • In Dire Need Of Help
      Hi my name is Alex and I am 23 years old. I am suffering so badly right now in life. Everyday I have multiple, very severe panic attacks. I have called 911 many times in the last 6 months. I am suffering with vertigo, intense weakness and pains, I can not digest anything, I have terrible acid reflux, I can't sleep, I can't relax, my heart constantly palpitates, my breathing is "forced labor" all day. I am suffering in a mental fog. I have been from doctor to hospital to doctor and every EKG comes back normal, every doctor says the same thing, I am struggling with anxiety and they write me whatever prescription of the week they are offering  I recently took it upon myself to cut gluten out of my diet, and wallah! I felt like I did in high school within 2 days. I work in NYC and many times it is nearly impossible to find something containing no gluten, and many times when I ask they tell me "No Gluten" and I eat whatever food I ordered (probably salad w/ dressing) and i find myself driving home in a terrible panic attack. Panic is my main symptom. I have not been diagnosed yet, but the difference from how I feel and how to the people around me tell me I act I am 100% convinced. The question I'm having is, what do you think? Is it possible I have Celiac? Can panic be the main symptom? I'm telling you right now, my anxiety is unlike anything anyone has ever seen. I lay on the ground for 2 hours with numb limbs feeling like I am having a stroke unable to talk to anyone. I have 2 of these a day. Please let me know your thoughts. I truly am a novice with all of this. I am suffering and I need help. Thanks
    • celiac disease is psychosomatic
      The following link might be helpful for others experiencing simlar psychosomatic issues with doctors. Although it's only for psychiatrists, I think it should be for all doctors! http://www.psychsearch.net/complaints/ The neuropsychiatrist I saw might fall into this category? I can checkmark:

       Falsified medical records
       No Biological Test for "Mental Illness" (no blood, urine or other lab testing)
       Breach of Confidentiality (...if she sends my medical records to my doctor or discusses them with him. I am requesting a copy of my records from this doctor t see if she sent anything to him.)
       Physical Illness Misdiagnosed as "Mental Illness"
       I was told I have a "chemical imbalance" (without any lab tests)
       Unethical Conduct
       Unprofessional conduct
       Something else that didn't seem quite right  
    • Allergy or Preference? Waiter asks
      At my local Five Guys, I told the counter guy that I had to avoid gluten for medical reasons. I was ordering a burger with no bun and some fries. He yelled back "Allergy Alert!" and every line cook immediately changed gloves and cleaned their work space. Will I go back? You bet I will!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,695
    • Most Online
      1,763

    Newest Member
    LiftBrainFog
    Joined