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Salicylate Intolerant - Need A Helper Who Has Some Experience


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7 replies to this topic

#1 Di2011

 
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Posted 22 April 2012 - 12:36 AM

Hi all,
I wonder if there is anyone in this community who is also salicylate sensitive/intolerant and would be willing to provide me with some ongoing support for the next few weeks. I have read and bookmarked many sites / lists etc but this sals thing is so much more complex than going gluten free.
Thanks in advance,

Diana
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#2 IrishHeart

 
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Posted 22 April 2012 - 07:23 AM

It's tricky because too many sites offer conflicting lists of low-high salicylates in foods. I know I have a problem with MSG and soy and I was having trouble even tolerating the scent of candles and perfumes, etc. when I was very ill from the unDxed celiac.

It was diminished a year after being gluten-free, but still, I had symptoms of a high allergic type response: red burning skin, itching, swollen eyelids, scratchy, thick throat, feeling bloated, sores on my scalp and lips. Nothing showed on allergy testing. :blink:

So, the one I used was the Failsafe Diet.
That woman, Sue Dengate....makes the most sense to me.

http://failsafediet....-diet-failsafe/

IMHO, The only way to know if sals are really a problem is to eat a diet that removes all the culprits FIRST. Here is the introduction to her website:

"This is a trial diet that is designed to eliminate additives, salicylates, amines and glutamates. It is not suitable to treat food allergies or coeliac (celiac) disease. It is not a gluten/casein free diet, a low opioid peptide diet, a low oxalate diet (LOD), the specific carbohydrate diet (SCD), a low lectin diet, a low goiterogenic diet, or a low phytoestrogen diet. This is a copy of the Royal Prince Alfred Hospital elimination diet, but may contain some minor differences. This page is not endorsed or checked by the RPAH.

This diet is designed to test and treat your ability to tolerate additives, salicylates, amines, and glutamates. The elimination diet is designed to eliminate all of these chemicals at once, because sensitivities to these chemicals often occur together and the symptoms caused by each individual chemical largely overlap. Currently, the only accurate way to test if you have a food chemical sensitivity of this kind is to eliminate all of the chemicals involved and then challenge them one by one. This is so that you can figure out which chemicals in particular affect you, and what quantity of chemicals you can manage without experiencing adverse symptoms. This enables you to eat the widest range of food without experiencing adverse symptoms.

It takes most affected people an average of four weeks to “clear” their symptoms and feel better on the diet."

I did it for four weeks last month and all the annoying "histamine type responses " and bloating and allergic/chemical intolerances I had.....drastically lessened. :)

I also stopped taking a glucosamine supplement for my horrid joint and bone pain (that has shellfish in it) and lo and behold!--less burning!!

I was away in Florida on vacation and tried all sorts of sals in foods and had some re-emergence of symptoms so I backed off again. I did too many at once. All those fresh fruits and veggies were too hard to resist. B)

I have been tested out the ying- yang for allergies/intolerances and done dozens of elimination/specialty diets :rolleyes: to no avail. None of them showed/proved a damn thing.

This diet knocked down the high histamine response in me.
It is BORING :lol: I'll be honest, but it helped me quite a bit.
FWIW

Cheers,
IH
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#3 Di2011

 
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Posted 22 April 2012 - 12:47 PM


It is BORING :lol: I'll be honest, but it helped me quite a bit.
FWIW

Cheers,
IH

Hi Irish Heart,
At the moment food full stop is pretty boring so anything to assist my intake will be interesting :) My diet is so basic (meat/veg/fruit/rice)! Any ideas about what I can re-introduce is interesting to me at the moment!!!! Thank you for the info
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#4 IrishHeart

 
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Posted 22 April 2012 - 04:47 PM

Hi Irish Heart,
At the moment food full stop is pretty boring so anything to assist my intake will be interesting :) My diet is so basic (meat/veg/fruit/rice)! Any ideas about what I can re-introduce is interesting to me at the moment!!!! Thank you for the info



Fruit is high in sals, hon.
Do you think that sals are your problem?
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#5 Di2011

 
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Posted 23 April 2012 - 01:48 AM

I'm on the second half of being convinced about sals being my problem. When I say "fruit" I mean banana and apple. I've found fruit juices a problem so am avoiding them. Banana and apples (as I've read) appear on the 'low' end of sals content and I don't seem to have any reaction to these two. Avocado was (gluten free) a go-to food but I've taken them out too. Yesterday I ate rocket and had an almost immediate reaction.. turns out they are high sals too :( Seems like every second or third time I eat there is something I discover that is high sal. Getting very hard to want to eat and I don't really have any reserve body weight left. Strange after a 38 year lifetime of being overweight!!!
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#6 IrishHeart

 
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Posted 23 April 2012 - 05:39 AM

Take a look at the website. She make suggestions on which foods to reintroduce first and for how long.
Hope this helps!!
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#7 GFreeMO

 
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Posted 29 April 2012 - 08:57 AM

I am sensitive to SALS with DH and intestinal problems/pain. I am a mess right now and I am pretty sure that I haven't had gluten. I have however, had some apple cider. Would apple cider be considered to be high in sals?

Thanks :huh:
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#8 Mom23boys

 
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Posted 30 April 2012 - 01:52 AM

Hi all,
I wonder if there is anyone in this community who is also salicylate sensitive/intolerant and would be willing to provide me with some ongoing support for the next few weeks. I have read and bookmarked many sites / lists etc but this sals thing is so much more complex than going gluten free.
Thanks in advance,

Diana


If you are in the states, I would suggest contacting the Feingold program. Their stage 1 eliminates sals and they have many members who are stage 1 with additional eliminations like gluten, casein... If I had to eliminate those additional items, their food guide would be priceless to me.
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Shellfish free since 1980
Milk free (all forms) since 1991
Feingold in 2003
First gluten-free round 2007
Now entering full time Gluten free, egg free, almond/peanut free




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