Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Salicylate Intolerant - Need A Helper Who Has Some Experience
0

8 posts in this topic

Hi all,

I wonder if there is anyone in this community who is also salicylate sensitive/intolerant and would be willing to provide me with some ongoing support for the next few weeks. I have read and bookmarked many sites / lists etc but this sals thing is so much more complex than going gluten free.

Thanks in advance,

Diana

0

Share this post


Link to post
Share on other sites


Ads by Google:

It's tricky because too many sites offer conflicting lists of low-high salicylates in foods. I know I have a problem with MSG and soy and I was having trouble even tolerating the scent of candles and perfumes, etc. when I was very ill from the unDxed celiac.

It was diminished a year after being gluten-free, but still, I had symptoms of a high allergic type response: red burning skin, itching, swollen eyelids, scratchy, thick throat, feeling bloated, sores on my scalp and lips. Nothing showed on allergy testing. :blink:

So, the one I used was the Failsafe Diet.

That woman, Sue Dengate....makes the most sense to me.

http://failsafediet.wordpress.com/the-rpah-elimination-diet-failsafe/

IMHO, The only way to know if sals are really a problem is to eat a diet that removes all the culprits FIRST. Here is the introduction to her website:

"This is a trial diet that is designed to eliminate additives, salicylates, amines and glutamates. It is not suitable to treat food allergies or coeliac (celiac) disease. It is not a gluten/casein free diet, a low opioid peptide diet, a low oxalate diet (LOD), the specific carbohydrate diet (SCD), a low lectin diet, a low goiterogenic diet, or a low phytoestrogen diet. This is a copy of the Royal Prince Alfred Hospital elimination diet, but may contain some minor differences. This page is not endorsed or checked by the RPAH.

This diet is designed to test and treat your ability to tolerate additives, salicylates, amines, and glutamates. The elimination diet is designed to eliminate all of these chemicals at once, because sensitivities to these chemicals often occur together and the symptoms caused by each individual chemical largely overlap. Currently, the only accurate way to test if you have a food chemical sensitivity of this kind is to eliminate all of the chemicals involved and then challenge them one by one. This is so that you can figure out which chemicals in particular affect you, and what quantity of chemicals you can manage without experiencing adverse symptoms. This enables you to eat the widest range of food without experiencing adverse symptoms.

It takes most affected people an average of four weeks to “clear” their symptoms and feel better on the diet."

I did it for four weeks last month and all the annoying "histamine type responses " and bloating and allergic/chemical intolerances I had.....drastically lessened. :)

I also stopped taking a glucosamine supplement for my horrid joint and bone pain (that has shellfish in it) and lo and behold!--less burning!!

I was away in Florida on vacation and tried all sorts of sals in foods and had some re-emergence of symptoms so I backed off again. I did too many at once. All those fresh fruits and veggies were too hard to resist. B)

I have been tested out the ying- yang for allergies/intolerances and done dozens of elimination/specialty diets :rolleyes: to no avail. None of them showed/proved a damn thing.

This diet knocked down the high histamine response in me.

It is BORING :lol: I'll be honest, but it helped me quite a bit.

FWIW

Cheers,

IH

1

Share this post


Link to post
Share on other sites

It is BORING :lol: I'll be honest, but it helped me quite a bit.

FWIW

Cheers,

IH

Hi Irish Heart,

At the moment food full stop is pretty boring so anything to assist my intake will be interesting :) My diet is so basic (meat/veg/fruit/rice)! Any ideas about what I can re-introduce is interesting to me at the moment!!!! Thank you for the info

0

Share this post


Link to post
Share on other sites

Hi Irish Heart,

At the moment food full stop is pretty boring so anything to assist my intake will be interesting :) My diet is so basic (meat/veg/fruit/rice)! Any ideas about what I can re-introduce is interesting to me at the moment!!!! Thank you for the info

Fruit is high in sals, hon.

Do you think that sals are your problem?

0

Share this post


Link to post
Share on other sites

I'm on the second half of being convinced about sals being my problem. When I say "fruit" I mean banana and apple. I've found fruit juices a problem so am avoiding them. Banana and apples (as I've read) appear on the 'low' end of sals content and I don't seem to have any reaction to these two. Avocado was (gluten free) a go-to food but I've taken them out too. Yesterday I ate rocket and had an almost immediate reaction.. turns out they are high sals too :( Seems like every second or third time I eat there is something I discover that is high sal. Getting very hard to want to eat and I don't really have any reserve body weight left. Strange after a 38 year lifetime of being overweight!!!

0

Share this post


Link to post
Share on other sites




Take a look at the website. She make suggestions on which foods to reintroduce first and for how long.

Hope this helps!!

0

Share this post


Link to post
Share on other sites

I am sensitive to SALS with DH and intestinal problems/pain. I am a mess right now and I am pretty sure that I haven't had gluten. I have however, had some apple cider. Would apple cider be considered to be high in sals?

Thanks :huh:

0

Share this post


Link to post
Share on other sites

Hi all,

I wonder if there is anyone in this community who is also salicylate sensitive/intolerant and would be willing to provide me with some ongoing support for the next few weeks. I have read and bookmarked many sites / lists etc but this sals thing is so much more complex than going gluten free.

Thanks in advance,

Diana

If you are in the states, I would suggest contacting the Feingold program. Their stage 1 eliminates sals and they have many members who are stage 1 with additional eliminations like gluten, casein... If I had to eliminate those additional items, their food guide would be priceless to me.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,352
    • Total Posts
      920,501
  • Topics

  • Posts

    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
    • I was tested for the full panel, I believe. I had normal values for t-transglutaminase (ttg) igg,t-transglutaminase (ttg) iga, deamidated gliadin abs igg, deamidated gliadin abs iga, and immunoglobulin a qn serum.  
    • Going gluten free may be beneficial if you're among the roughly 10 percent of people who suffer from celiac disease, a genetic immune disorder, ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,416
    • Most Online
      1,763

    Newest Member
    djs2117
    Joined