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Salicylate Intolerant - Need A Helper Who Has Some Experience
#1
Posted 22 April 2012 - 12:36 AM
I wonder if there is anyone in this community who is also salicylate sensitive/intolerant and would be willing to provide me with some ongoing support for the next few weeks. I have read and bookmarked many sites / lists etc but this sals thing is so much more complex than going gluten free.
Thanks in advance,
Diana
#2
Posted 22 April 2012 - 07:23 AM
It was diminished a year after being gluten-free, but still, I had symptoms of a high allergic type response: red burning skin, itching, swollen eyelids, scratchy, thick throat, feeling bloated, sores on my scalp and lips. Nothing showed on allergy testing.
So, the one I used was the Failsafe Diet.
That woman, Sue Dengate....makes the most sense to me.
http://failsafediet....-diet-failsafe/
IMHO, The only way to know if sals are really a problem is to eat a diet that removes all the culprits FIRST. Here is the introduction to her website:
"This is a trial diet that is designed to eliminate additives, salicylates, amines and glutamates. It is not suitable to treat food allergies or coeliac (celiac) disease. It is not a gluten/casein free diet, a low opioid peptide diet, a low oxalate diet (LOD), the specific carbohydrate diet (SCD), a low lectin diet, a low goiterogenic diet, or a low phytoestrogen diet. This is a copy of the Royal Prince Alfred Hospital elimination diet, but may contain some minor differences. This page is not endorsed or checked by the RPAH.
This diet is designed to test and treat your ability to tolerate additives, salicylates, amines, and glutamates. The elimination diet is designed to eliminate all of these chemicals at once, because sensitivities to these chemicals often occur together and the symptoms caused by each individual chemical largely overlap. Currently, the only accurate way to test if you have a food chemical sensitivity of this kind is to eliminate all of the chemicals involved and then challenge them one by one. This is so that you can figure out which chemicals in particular affect you, and what quantity of chemicals you can manage without experiencing adverse symptoms. This enables you to eat the widest range of food without experiencing adverse symptoms.
It takes most affected people an average of four weeks to “clear” their symptoms and feel better on the diet."
I did it for four weeks last month and all the annoying "histamine type responses " and bloating and allergic/chemical intolerances I had.....drastically lessened.
I also stopped taking a glucosamine supplement for my horrid joint and bone pain (that has shellfish in it) and lo and behold!--less burning!!
I was away in Florida on vacation and tried all sorts of sals in foods and had some re-emergence of symptoms so I backed off again. I did too many at once. All those fresh fruits and veggies were too hard to resist.
I have been tested out the ying- yang for allergies/intolerances and done dozens of elimination/specialty diets
This diet knocked down the high histamine response in me.
It is BORING
FWIW
Cheers,
IH
"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir
"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh
"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love."
Lao Tzu
"The strongest of all warriors are these two - time and patience." Leo Tolstoy
Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. ![]()
Celiac.com - Celiac Disease Board Moderator
#3
Posted 22 April 2012 - 12:47 PM
Hi Irish Heart,
It is BORINGI'll be honest, but it helped me quite a bit.
FWIW
Cheers,
IH
At the moment food full stop is pretty boring so anything to assist my intake will be interesting
#4
Posted 22 April 2012 - 04:47 PM
Hi Irish Heart,
At the moment food full stop is pretty boring so anything to assist my intake will be interestingMy diet is so basic (meat/veg/fruit/rice)! Any ideas about what I can re-introduce is interesting to me at the moment!!!! Thank you for the info
Fruit is high in sals, hon.
Do you think that sals are your problem?
"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir
"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh
"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love."
Lao Tzu
"The strongest of all warriors are these two - time and patience." Leo Tolstoy
Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. ![]()
Celiac.com - Celiac Disease Board Moderator
#5
Posted 23 April 2012 - 01:48 AM
#6
Posted 23 April 2012 - 05:39 AM
Hope this helps!!
"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir
"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh
"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love."
Lao Tzu
"The strongest of all warriors are these two - time and patience." Leo Tolstoy
Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. ![]()
Celiac.com - Celiac Disease Board Moderator
#7
Posted 29 April 2012 - 08:57 AM
Thanks
#8
Posted 30 April 2012 - 01:52 AM
Hi all,
I wonder if there is anyone in this community who is also salicylate sensitive/intolerant and would be willing to provide me with some ongoing support for the next few weeks. I have read and bookmarked many sites / lists etc but this sals thing is so much more complex than going gluten free.
Thanks in advance,
Diana
If you are in the states, I would suggest contacting the Feingold program. Their stage 1 eliminates sals and they have many members who are stage 1 with additional eliminations like gluten, casein... If I had to eliminate those additional items, their food guide would be priceless to me.
Milk free (all forms) since 1991
Feingold in 2003
First gluten-free round 2007
Now entering full time Gluten free, egg free, almond/peanut free
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