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Gluten Intolerance
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I saw a gastro doctor for months before he realized I had gallbladder disease. Following the surgery to remove my gallbladder, my symptoms returned. I dealt with them for months as my doctors could not figure out what else could be wrong. After being told they didn't know what was wrong, I decided to try a gluten-free diet. I've been gluten free for about 5 months now, and I feel a lot better. I can usually tell when I've been contaminated as I get bloated, crampy, etc. and experience my normal symptoms. Last night I was at dinner with some friends and did something I never do- ate gluten on purpose. I had some bread and part of a Bloomin Onion. I was expecting the worst as this was more than just some tiny cross contamination. However, I feel fine. I've experienced none of my normal gluten symptoms. I am extremely confused- could it be something else causing those symptoms and not gluten? I can not think of a common factor between the others foods I avoid other than gluten.

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Welcome to the forum, Emmy! Have you ever been tested for celiac?

While you may not have experienced problems yet, sometimes they can show up in two or three days. If you have celiac, consuming gluten is never a good idea as damage is cumulative but I think you already know that. Perhaps you just lucked out this time.

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I went down the same road. Had my gall bladder out but never got better. Finally, after 14 years and my daughter getting diagnosed with celiac, we went gluten free as a family and lo and behold, I started to feel better.

I don't know how often gall bladder and celiac go together, but it was definitely a chain reaction for me. They wanted me to go back on gluten for two months so they could do an endoscopy but I wouldn't do it. I did get the genetic test and it came back positive.

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    • Hi Lisa, I completely understand why you didn't do a biopsy on your daughter.  I went through the appendix thing myself...not fun!  I was diagnosed with just bloodwork and no biopsy, but did have the full panel.  I would go back to your PCP and ask for a full panel to include TTG, EMA and DGP tests.  Since she was already willing to test you, I'm sure she would be willing to order these.  Good luck!
    • What a gross title–it bothers me and I wrote it! It wasn't my idea originally. The research paper the data came from was entitled, "Experimental hookworm infection and gluten microchallenge promote tolerance in celiac disease" published recently in the Journal of Allergy and Clinical Immunology. View the full article
    • katesyl.........this is an older topic so the OP most likely won't answer.  I can, however, offer a piece of advice for you. Just going gluten free will probably not drive your inflammation markers down into normal.  It does depend on how high they were to begin with but with all autoimmune diseases, there will be inflammation going on forever.  Get used to wonky blood work because most of us will have that issue. I have 4 autoimmune diseases in total and, although I have driven certain inflammatory markers way down, my recent sed rate number was elevated.  The normal is supposed to be 30 and under in a woman my age but mine is 50.  With 4 AI diseases, I doubt it will ever be normal and I don't let it bother me. I am not willing to take major meds at all and use more natural anti-inflammatory supplements.  You can do whatever you feel comfortable with in regards to treatment but don't expect normal numbers with Celiac Disease. Inflammation will improve but normal?  Most people never get there completely.
    • My daughter's PCP did not go against anything, she offered to do the biopsy - I was the one opposed to it. My DD, who was 10 at the time had just spent 3 weeks in the hospital, very sick with a ruptured appendix, then had 2 surgeries a few months after. I didn't see the need to put her through anything else with her numbers so high and all the classic symptoms. Apparently, in some other countries, if your numbers are all high, they forego biopsy. Anyway, I was really asking about myself and whether I should push for add'l testing. I am still new this this and trying to get up-to-date and wasn't sure if my PCP should conduct other blood tests before I go completely gluten-free. I have been somewhat gluten-free, but not entirely. I have no problem going gluten-free, but want to make sure that I am doing it for the right reasons. I wasn't sure if the Gliadin Abs IgA was sufficient to point to Celiac and possibly doing a biopsy for me. Or if additional blood test would make more sense.   Thanks!!
    • I would like to know if you have found out the source of your inflammation yet. I'm gluten free three years but my inflammation test was high.
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