Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Feel Like I've Been Glutened
0

41 posts in this topic

Periods of quite weak & shaky. Some dizzy but much better than yesterday. Not nearly as much brain fog. Woke up twice last night itching but it wasn't so bad & got right back to sleep. 1 new blister today & that's all. Lots of general body aches, bones, muscles, joints. Couldn't get enough to eat this morning --- like a bottomless pit. Makes me wonder if there's such a thing as sals withdrawal. But the best part is the unreasoning anger is gone. YAY!

Glad you're doing better.

Your anger is gone because I have it. Of course, I have pms and feel like I want to kill people and cry at the same time.

And if someone doesn't produce some chocolate and a cheeseburger I'm going to go off the rails.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Awwww Prickly. (((HUGS))) I'm so sorry. Don't you just hate that anger crap? You know you have it, you know it's unreasonable, yet you just can't seem to control it.

I hope you feel better soon!

0

Share this post


Link to post
Share on other sites

Awwww Prickly. (((HUGS))) I'm so sorry. Don't you just hate that anger crap? You know you have it, you know it's unreasonable, yet you just can't seem to control it.

I hope you feel better soon!

Thank you, I will!

As soon as I chop up all the people I live with and make soup from their bones...:).

I explained to hubs that I wanted to gut him...for no particular reason except that he was breathing and nearby. Poor guy got insulted.

I do like my dog, except when he breathes and wants to touch me.

It's so dang hot here! I got a razor burn heat rash under my arms yesterday and started having a DH freak-out moment.

Yes, I need chocolate. STAT!

Sigh. If we were near each other I could cook 20 lbs. of food and we could eat it and be miserable together. And drink vodka.

0

Share this post


Link to post
Share on other sites

Thank you, I will!

As soon as I chop up all the people I live with and make soup from their bones...:).

I explained to hubs that I wanted to gut him...for no particular reason except that he was breathing and nearby. Poor guy got insulted.

I do like my dog, except when he breathes and wants to touch me.

It's so dang hot here! I got a razor burn heat rash under my arms yesterday and started having a DH freak-out moment.

Yes, I need chocolate. STAT!

Sigh. If we were near each other I could cook 20 lbs. of food and we could eat it and be miserable together. And drink vodka.

laugh.giflaugh.giflaugh.giflaugh.giflaugh.gif

I actually surprised myself when this last episode began to get bad by sitting my hubs down & telling him I wanted to have a talk with him. I told him what was going on & that I would want to kill him so he'd better stay out of my way & out of the kitchen when I'm in it. He heeded my warning & even appreciated that I gave it. WOW!

How about chocolate vodka?????? YUM! Your mention of a cheeseburger brought to mind the smell of a BK grill on a cold day with that scent wafting through the air. I gotta stop thinking about that.

0

Share this post


Link to post
Share on other sites

laugh.giflaugh.giflaugh.giflaugh.giflaugh.gif

I actually surprised myself when this last episode began to get bad by sitting my hubs down & telling him I wanted to have a talk with him. I told him what was going on & that I would want to kill him so he'd better stay out of my way & out of the kitchen when I'm in it. He heeded my warning & even appreciated that I gave it. WOW!

How about chocolate vodka?????? YUM! Your mention of a cheeseburger brought to mind the smell of a BK grill on a cold day with that scent wafting through the air. I gotta stop thinking about that.

I haven't found a flavored "safe" vodka that doesn't give me a headache.

BK doesn't do it for me. I'll take a homemade one!

And I'll eat my chocolate :).

0

Share this post


Link to post
Share on other sites




You two are having fun over here. I want in!

I don't drink though.. I'm no fun I guess :-)

So glad to hear you're feeling better Squirming! We barely ever know what it is that is going on in our bodies sadly, but I checked my food diary to see if my symptoms resemble yours now.. To sum it up, I had fatigue, sores, moodswings, cold symptoms as well as infections, itching and bloat before removing sals, and then there is emphasis on super fatigue and some dizziness the days after together with some of the previous symptoms. Perhaps it was a bad sals attack and not glutening.. it is a sals intolerance after all, and this means it will hopefully go away quickly :-)

I don't know why but I try to remain optimistic as long as there is no swelling. Swelling to me indicates long-term symptoms.

PricklyPear! I'm also going to get my period very soon, and I've been a nasty grouch monster for the past few days! I'm not nice to my hubs at all, and I boycotted any kissing until my gluten symptoms are gone(his punishment for bringing the gluten into the house).. I am being very careful with my bunny though because he's too sensitive haha :-)

I got my period on the 25th last month, but it seems that the times are shifting every month.. maybe my body is shifting to it's natural time of the month!

0

Share this post


Link to post
Share on other sites

....sitting my hubs down & telling him I wanted to have a talk with him.

OH NO! The dreaded "sit down we need to talk" talk. I bet he was so relieved that it was just about a glutening. :D:D:D

0

Share this post


Link to post
Share on other sites

Dani, we always need a sane and sober person to drive :).

I dont normally pms that badly but my doc put me on that dang estrogen/progesterone cream and it is terrible. I stopped it a few days ago because it's time for my period and I had terrible ovarian pain (it's the estrogen not the progesterone doing this).

I don't think I'm doing the estrogen next month. I'll go back to just progesterone.

Anyhow ...I think the whole ai thing makes pms worse sometimes for me. I also had/have Endo so that's another thing...and all ai is supposed to be worse at certain times of your cycle....

I'm just a bundle of joy.

I remember I had terrible dizziness, vertigo, racing heart, paranoia, anger, sadness (duh, my pits were on FIRE) etc. when first going gluten-free if I did something that activated my DH. I don't know what was the chicken or the egg, but generally the DH came with an assortment of joyous problems.

Hubs is a saint (and a live one because I haven't gutted him).

0

Share this post


Link to post
Share on other sites

I haven't found a flavored "safe" vodka that doesn't give me a headache.

BK doesn't do it for me. I'll take a homemade one!

And I'll eat my chocolate :).

I haven't tried any of the flavored Vodka at all. It just sounds nice.

BK never did do it for me but the smell wafting on the breeze can send me.

So what will you cook while I keep the drinks flowing?

0

Share this post


Link to post
Share on other sites

You two are having fun over here. I want in!

I don't drink though.. I'm no fun I guess :-)

So glad to hear you're feeling better Squirming! We barely ever know what it is that is going on in our bodies sadly, but I checked my food diary to see if my symptoms resemble yours now.. To sum it up, I had fatigue, sores, moodswings, cold symptoms as well as infections, itching and bloat before removing sals, and then there is emphasis on super fatigue and some dizziness the days after together with some of the previous symptoms. Perhaps it was a bad sals attack and not glutening.. it is a sals intolerance after all, and this means it will hopefully go away quickly :-)

I don't know why but I try to remain optimistic as long as there is no swelling. Swelling to me indicates long-term symptoms.

PricklyPear! I'm also going to get my period very soon, and I've been a nasty grouch monster for the past few days! I'm not nice to my hubs at all, and I boycotted any kissing until my gluten symptoms are gone(his punishment for bringing the gluten into the house).. I am being very careful with my bunny though because he's too sensitive haha :-)

I got my period on the 25th last month, but it seems that the times are shifting every month.. maybe my body is shifting to it's natural time of the month!

But I've been low sals sooo......

You can come play & have fun anytime you want to Dani!smile.gif

Your hubs deserves not to get kisses since he was responsible for being a bad boy & getting you glutened. What kind of bunny do you have?

0

Share this post


Link to post
Share on other sites

OH NO! The dreaded "sit down we need to talk" talk. I bet he was so relieved that it was just about a glutening. :D:D:D

Ha-ha-ha-ha-ha Ohhhhh, that is a funny thought but after 38 yrs. we know each other better than that I guess.

0

Share this post


Link to post
Share on other sites

Dani, we always need a sane and sober person to drive :).

I dont normally pms that badly but my doc put me on that dang estrogen/progesterone cream and it is terrible. I stopped it a few days ago because it's time for my period and I had terrible ovarian pain (it's the estrogen not the progesterone doing this).

I don't think I'm doing the estrogen next month. I'll go back to just progesterone.

Anyhow ...I think the whole ai thing makes pms worse sometimes for me. I also had/have Endo so that's another thing...and all ai is supposed to be worse at certain times of your cycle....

I'm just a bundle of joy.

I remember I had terrible dizziness, vertigo, racing heart, paranoia, anger, sadness (duh, my pits were on FIRE) etc. when first going gluten-free if I did something that activated my DH. I don't know what was the chicken or the egg, but generally the DH came with an assortment of joyous problems.

Hubs is a saint (and a live one because I haven't gutted him).

Oh.. hormone treatment is not a walk in the park :-( *big hug*

Why do you need it, and is it permanent if you don't mind me asking (you don't have to tell though :-)

Speaking of racing heart, mine is usually kindof calm, but I notice sometimes that it gets louder (I feel it beating) and not racing but faster than usual (around 70 bpm) together with shallow brearh.. do you have idea if this is normal or should I be paying attention to it?

Sorry for deviating from your subject!

0

Share this post


Link to post
Share on other sites

I haven't tried any of the flavored Vodka at all. It just sounds nice.

BK never did do it for me but the smell wafting on the breeze can send me.

So what will you cook while I keep the drinks flowing?

Quinoa and tumbleweeds.

Nah, too hot for anything...I'm into kabobs lately. Lundberg has a great "roasted brown rice couscous" that is very good. so how bout kabobs, couscous, some low-sal veggies (you'll have to help on that one) on the grill?

Or a freakin cheeseburger. Are there any gluten-free buns you can have? If not, wrap it in lettuce!

0

Share this post


Link to post
Share on other sites

But I've been low sals sooo......

You can come play & have fun anytime you want to Dani!smile.gif

Your hubs deserves not to get kisses since he was responsible for being a bad boy & getting you glutened. What kind of bunny do you have?

He's a Netherland dwarf / lionhead mix :-)

I guess that even if sals are cumulative, the symptoms don't get that bad unless you've been having a mountain of them daily.

0

Share this post


Link to post
Share on other sites

Quinoa and tumbleweeds.

Nah, too hot for anything...I'm into kabobs lately. Lundberg has a great "roasted brown rice couscous" that is very good. so how bout kabobs, couscous, some low-sal veggies (you'll have to help on that one) on the grill?

Or a freakin cheeseburger. Are there any gluten-free buns you can have? If not, wrap it in lettuce!

I can have a freakin cheeseburger! Okay, here's where you start gagging -- b/c I LOVE Glutino Flax Bread & I'll eat my cheeseburger on it thank you very much!

Kabobs sound good too! Low sal veggies suck. There aren't any! Green beans -- you can get tired of those real quick.

Dani, I'm not a big drinker either. Partly due to the fact that beer tore me up so badly as a teen. I just never got into drinking that much. Then too, remember what was oh so popular back then (early 70's). Who needed to drink? But I haven't done that in 30 some odd years. So now I drink some. Found out I happen to like Vodka. A body has to have some vices.biggrin.gif

Gals, I never felt so liberated as when I had a hysterectomy at age 37. WOW! What a feeling! No more periods. I never did PMS really --- lucky I guess. Very little in the way of cramps also. But OHHHHHHHHHH just wait till menopause kicks in. Can you say "Axe Murderess"? And the JOY of hot flashes. OMG! See, I still have my ovaries so menopause was not to be sidetracked. I remember one instance when I had my nightie on & happened to be in the bathroom when a massive hot flash happened. It was so strong that I just sat down on the floor. I sweated so bad that not only was my hair & skin & nightie dripping but when I stood up there was such a pool of sweat on the floor that you wouldn't believe! And during the night ---- it soaks your sheets. I guess it's like PMS gone wild X 100.

0

Share this post


Link to post
Share on other sites

He's a Netherland dwarf / lionhead mix :-)

I guess that even if sals are cumulative, the symptoms don't get that bad unless you've been having a mountain of them daily.

I know what Netherland dwarf's are. I never heard of a lionhead. I'll have to Google it.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,376
    • Total Posts
      920,580
  • Topics

  • Posts

    • Hi Beachgrl, It won't hurt anything to go gluten-free now, except the possibility of getting a diagnosis of celiac disease.  When i went gluten-free, it seemed like the initial changes were spread over about 6 weeks.  I had gut spasms for that time.  And other changes, all for the better.  Initial recovery from celiac damage can take up to 18 months, so it can be a slow thing.  Some people get better much faster of course, because we are all individuals and not identical. Going gluten-free for celiac disease is a lifetime commitment though, and some people have a hard time doing that without a diagnosis.  Even minor amounts of gluten can cause us to react, so it is best to eat a very simple diet of whole foods at first.  Avoid dairy and processed foods.  I hope it works out for you.  I know some people with Crohns disease eat gluten-free and find it helps them.  Gluten is a tough thing to digest for all people, but most don't have an immune reaction to it like celiacs do.  
    • Honestly, I would not trust the school to provide a gluten-free meal except for fruit, salads, veggies, etc. I sub in a school cafeteria and I swear everything is breaded or on bread. Utensils are shared. They're very clean but unless you have a very knowledgeable person in there, I just wouldn't chance it. I found a slim Jim type snack that says gluten-free on it. If you want to give me your email or FB account, I can send you some very valuable info on 504's though. They carry the student right through college. I kept a copy of what a friend wrote about her daughter being in a sorority and just how the 504 helped immensely. But, I would definitely get one and still be prepared to pack a lunch. All our meals are delivered frozen and we just hear them up. If your school actually fixes food, that's different. 
    • Oh, I would suggest providing gluten-free goodies (e.g. Candy) or even a frozen cupcake (kept in the teacher's freezer) in the event of a party.  My daughter's classmate is severely allergic to peanuts.  Her mom did that and Abby was never left out!  😊
    • Hi Nobody, Welcome to the forum!  I noticed you said you have been avoiding wheat products.  That's good, but are you avoiding rye and barley also?  Wheat, rye, and barley are the 3 grains that cause reactions in celiac patients.  About 10% also react to oats. If you haven't had the full celiac antibodies test panel, it might be worthwhile getting that done now.  The ttg is just a basic test and is generally followed up by an endoscopy or the full celiac panel. I wouldn't worry a lot about getting cancer.  That doesn't happen often. It is possible some of the other grains you might be eating are contaminated.  A group did a test on several off the shelf products a few years ago that would not normally be thought of as having gluten and found some actually did have low levels of gluten.  Things like corn meal for example.    
    • I can not help you with the the 504 plan, but I do know that I would do it.  My daughter is 15 and so far has tested negative for celiac disease, but in the event she does test positive, she will need a 504 plan to help keep her safe.  I am sure other parents will chime in.  This topic has come up repeatedly.  Until then, try a search with the forum.  Lots of people have posted with their comments and experiences.   As far as lunch is concerned, my kid has not purchased a school lunch since the 1st grade.  She says they are gross.  (Poor me!).  But, I would not trust the school to provide a gluten-free lunch.  Sure, they are required by law, but let's face it, who is working in the kitchens, ordering, etc?  I am on a University campus and have called out food service for not following gluten-free safe practices!    I would pack a lunch, at least until her health has stabilized.  The 504 plan is great for extra trips to the bathroom and hand washing.  It provides some protection in the classroom.   Keep advocating for her Mom!  You are doing a great job!  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,453
    • Most Online
      1,763

    Newest Member
    Chelsealarita
    Joined