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9 replies to this topic

#1 Mateto

 
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Posted 23 April 2012 - 10:29 AM

Hello everyone,so of you know how I've been having problems getting a proper diagnosis. Today I finally got my blood results back, and they were negative for coeliac disease.

She will not send me for a biopsy, but she said I was gluten intolerant and sensitive. However, I know I have more symptoms than this, and I have diagnosed myself, I suppose you could say, with coeliac. She told me to stop eating gluten, which I've been gradually doing the past few days, and today is my first fully gluten free day! So here I am, excited that within a few months, I might actually feel better for once :lol:
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Gluten-free since St George's Day this year :)

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#2 pricklypear1971

 
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Posted 23 April 2012 - 10:35 AM

Well, I'm happy if you're happy :).

I dont remember, did you have vitamin deficiency panels run? That maybe the only thing to look at, if it wasn't already.

Im glad you're excited and I wish you much luck,
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Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND
.
Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

#3 Mateto

 
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Posted 23 April 2012 - 11:24 AM

Yes I did. I was told I'm anaemic....ANOTHER symptom of coeliac disease the doctor ignored. :P
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Gluten-free since St George's Day this year :)

#4 pricklypear1971

 
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Posted 23 April 2012 - 11:45 AM

Well, take some iron (I'm assuming you're talking about iron) and make them retest it in 6 months.
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Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND
.
Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

#5 IrishHeart

 
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Posted 23 April 2012 - 12:50 PM

There are several forms of anemia--

B-12 deficiency, Folate deficiency, Iron deficiency.

What exactly did she say??

How much did she say to supplement with?
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

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"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
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#6 Mateto

 
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Posted 23 April 2012 - 05:09 PM

My iron was HIGH on the last test....hemaglobin (or whatever) was low. Which doesn't make sense, I was re-tested for that only today, because she said the results were probably wrong. But yet I'm still anaemic.

Anyways I'm not too concerned, because I've been going gradually gluten free the past few todays and today completely. One symptom has stopped! I know it won't be for a few months until feeling completely better, but my only challenge is getting my family members to take this seriously.

I can NOT stress how important cross-contamination is. THEY JUST WON'T UNDERSTAND!
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Gluten-free since St George's Day this year :)

#7 pricklypear1971

 
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Posted 23 April 2012 - 05:21 PM

You need to get a copy of all your labs. Plus the retest.
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Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND
.
Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

#8 Mateto

 
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Posted 24 April 2012 - 11:13 AM

You need to get a copy of all your labs. Plus the retest.

I think I'd have better luck trying to drown a fish :lol:

My Doctor wouldn't let me see them!

Because of our free healthcare under the MCP/NHS, Private practitioners are few and far between. My Doctor (I feel) is only in it for the money, but she told me that apparently she's "told me everything she can" <_<

She also said my hemaglobin will fix itself eventually. I really don't understand her, she gives me a million different answers. The main thing is: I'm on the road to feeling better :)
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Gluten-free since St George's Day this year :)

#9 pricklypear1971

 
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Posted 24 April 2012 - 11:18 AM

I think I'd have better luck trying to drown a fish :lol:

My Doctor wouldn't let me see them!

Because of our free healthcare under the MCP/NHS, Private practitioners are few and far between. My Doctor (I feel) is only in it for the money, but she told me that apparently she's "told me everything she can" <_<

She also said my hemaglobin will fix itself eventually. I really don't understand her, she gives me a million different answers. The main thing is: I'm on the road to feeling better :)


There must be a law that forces them to disclose.

Seriously.
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Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND
.
Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

#10 Mateto

 
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Posted 24 April 2012 - 03:34 PM

I think so!

She called me today because I had more bloodwork done. Out of an act of kindness, at least she told me my hemaglobin is gone back to normal and so is my iron.

I haven't been gluten-free for very long, but I was when I had these tests, so that might have something to do with it.

This doctor is only filling in for my doctor who is in Australia at the moment, so I won't pursure anything legal yet. My normal doctor is excellent, she knows what she is doing, so I know if I ask her for my records she'll probably give me a copy :D
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Gluten-free since St George's Day this year :)




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