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Help! Please!


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122 replies to this topic

#31 pricklypear1971

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Posted 26 April 2012 - 12:56 PM

Poppy seeds, hazelnuts, cashews, Pecans and sunflower seeds are low sals. Those you can take with you anywhere.

Meat is low sal - take a bit of meat, low sal veg/fruit with you in a cold lunch box with an ice pack.

You could make homemade apple chips from a low sal apple variety.

If you have rice flour you could probably figure out a low sal/li chocolate (use cocoa) cookie, etc.
  • 0
Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND
.
Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

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#32 dani nero

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Posted 26 April 2012 - 01:01 PM

Poppy seeds, hazelnuts, cashews, Pecans and sunflower seeds are low sals. Those you can take with you anywhere.

Meat is low sal - take a bit of meat, low sal veg/fruit with you in a cold lunch box with an ice pack.

You could make homemade apple chips from a low sal apple variety.

If you have rice flour you could probably figure out a low sal/li chocolate (use cocoa) cookie, etc.


Nuts too :-) they're really expensive in Sweden but not sure how it is over there :-)
Do you have the recipe for the rice flower chocolate cookies :-O I wouldn't mind that one at all (if it's egg free and can substitute sugar with maple syrup)!
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Self diagnosed January 2012, and on elimination, low-salicylate & low-iodine diet.
Also G6PD

#33 pricklypear1971

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Posted 26 April 2012 - 01:18 PM

Nuts too :-) they're really expensive in Sweden but not sure how it is over there :-)
Do you have the recipe for the rice flower chocolate cookies :-O I wouldn't mind that one at all (if it's egg free and can substitute sugar with maple syrup)!


Now Dani, you put me on the spot. Now I'm going to have to figure one out.
  • 0
Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND
.
Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

#34 pricklypear1971

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Posted 26 April 2012 - 01:28 PM

Here's one. Instead of full eggs you could do egg whites. Replace butter with shortening or oil (I think you'd reduce oil a bit if using). I'd refrigerate the dough before baking. You could add some cocoa. I'd use half the amount of maple syrup to sugar.

http://www.groupreci...ar-cookies.html

Here's another. Again, use egg white only or egg replacer (or whipped flax seed or chia seed). http://www.care2.com...-no-gluten.html
  • 0
Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND
.
Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

#35 CeliacFashionista

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Posted 26 April 2012 - 01:36 PM

What about kale?
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#36 dani nero

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Posted 26 April 2012 - 01:41 PM

Now Dani, you put me on the spot. Now I'm going to have to figure one out.


Hahahaha :-)

Here's one. Instead of full eggs you could do egg whites. Replace butter with shortening or oil (I think you'd reduce oil a bit if using). I'd refrigerate the dough before baking. You could add some cocoa. I'd use half the amount of maple syrup to sugar.

http://www.groupreci...ar-cookies.html

Here's another. Again, use egg white only or egg replacer (or whipped flax seed or chia seed). http://www.care2.com...-no-gluten.html


Oh thank you Prickly, thankyou thankyou thankyou!
  • 0
Self diagnosed January 2012, and on elimination, low-salicylate & low-iodine diet.
Also G6PD

#37 pricklypear1971

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Posted 26 April 2012 - 01:47 PM

Hahahaha :-)



Oh thank you Prickly, thankyou thankyou thankyou!


I'd try #2 first.
  • 0
Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND
.
Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

#38 dani nero

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Posted 26 April 2012 - 01:48 PM

What about kale?


I think kale is low but I'm not sure.. can't find much info about it
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Self diagnosed January 2012, and on elimination, low-salicylate & low-iodine diet.
Also G6PD

#39 dani nero

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Posted 26 April 2012 - 01:48 PM

I'd try #2 first.


I was thinking the same thing :-)
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Self diagnosed January 2012, and on elimination, low-salicylate & low-iodine diet.
Also G6PD

#40 pricklypear1971

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Posted 26 April 2012 - 01:50 PM

What about kale?


I can't find info on kale. Grr. Dani?

If you google "kale salicylate" you'll get lots of results. Sub kale for anything on the search and you'll likely find an answer. It seems sals levels are debated a bit, so if you're ok with something I'd use that info over a chart. Remember, they are cumulative and it may take a few days to see a reaction.
  • 0
Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND
.
Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

#41 dani nero

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Posted 26 April 2012 - 01:52 PM

I can't find info on kale. Grr. Dani?

If you google "kale salicylate" you'll get lots of results. Sub kale for anything on the search and you'll likely find an answer. It seems sals levels are debated a bit, so if you're ok with something I'd use that info over a chart. Remember, they are cumulative and it may take a few days to see a reaction.


I only found one source stating it's low, but only one source isn't a positive answer for me.
  • 0
Self diagnosed January 2012, and on elimination, low-salicylate & low-iodine diet.
Also G6PD

#42 cougie23

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Posted 26 April 2012 - 02:24 PM

That sounds like hives. Except the freckling part. Hives can be caused by anything/nothing. There are heat hives, cold hives, pressure hives, stress hives....do antihistimines help?

Maybe you should put this on another thread, Cougie...dovit can get more attention.

Oh wait! Lookie! http://www.bad.org.u... Leaflets (PILs)/Urticaria%20Pigmentosa%20Update%20Jan%202012%20-%20lay%20reviewed%20Oct%202011.pdf

No...not hives, definatly not hives! Its litterally hundreds of bloodspots(pinpricks)right under the skin...like broken bloodvessels!( or a pin prick)....thats why I took intrest when pinpricks were mentioned! I've talked about it on other threads...noone knows what it is...this is the first time I've heard it mentioned by someone ELSE! Even my Dr. can't explain it...and He used to be a dermatologist before he took over my regular doctors practice! Fustrating! My skin itches like crazy...but NOT because of the spots...THAT comes and goes!The itching is something different all together!!!
Definately celiac related! :( :blink:

Oh...the link you posted didn't work...what was it for?
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#43 pricklypear1971

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Posted 26 April 2012 - 02:32 PM

No...not hives, definatly not hives! Its litterally hundreds of bloodspots(pinpricks)right under the skin...like broken bloodvessels!( or a pin prick)....thats why I took intrest when pinpricks were mentioned! I've talked about it on other threads...noone knows what it is...this is the first time I've heard it mentioned by someone ELSE! Even my Dr. can't explain it...and He used to be a dermatologist before he took over my regular doctors practice! Fustrating! My skin itches like crazy...but NOT because of the spots...THAT comes and goes!The itching is something different all together!!!
Definately celiac related! :( :blink:

Oh...the link you posted didn't work...what was it for?


It's for urticaria pigmentosa. Uhm, I think it fits what you describe as a condition that turns into freckles. Why wouldn't it be hives? Hives act EXACTLY the way you describe. http://www.bad.org.u... Leaflets (PILs)/Urticaria%20Pigmentosa%20Update%20Jan%202012%20-%20lay%20reviewed%20Oct%202011.pdf

Now, I don't deny it's probably gluten related...see, they generally don't know what triggers hives. Gluten could trigger hives.

You could also have DH plus hives. Which makes you very very very special. In a very unfortunate way....

http://www.ncbi.nlm....lth/PMH0002437/
http://en.m.wikipedi...ntosa#section_4

You really need to get that first link to work since its the best description about freckles.

There's a cream you may try - its a mast cell stabilizer. I tried it for DH and helped a bit. It may help you. You make it at home. http://www.chronichi...omolyncream.htm
  • 0
Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND
.
Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

#44 Jestgar

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Posted 26 April 2012 - 02:37 PM

It's for urticaria pigmentosa. Uhm, I think it fits what you describe as a condition that turns into freckles. Why wouldn't it be hives? Hives act EXACTLY the way you describe. http://www.bad.org.u... Leaflets (PILs)/Urticaria%20Pigmentosa%20Update%20Jan%202012%20-%20lay%20reviewed%20Oct%202011.pdf

Now, I don't deny it's probably gluten related...see, they generally don't know what triggers hives. Gluten could trigger hives.

You could also have DH plus hives. Which makes you very very very special. In a very unfortunate way....

http://www.bad.org.uk/Portals/_Bad/Patient%20Information%20Leaflets%20%28PILs%29/Urticaria%20Pigmentosa%20Update%20Jan%202012%20-%20lay%20reviewed%20Oct%202011.pdf
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#45 pricklypear1971

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Posted 26 April 2012 - 02:50 PM

http://www.bad.org.uk/Portals/_Bad/Patient%20Information%20Leaflets%20%28PILs%29/Urticaria%20Pigmentosa%20Update%20Jan%202012%20-%20lay%20reviewed%20Oct%202011.pdf


Thanks! Wonder why it wouldn't work?? My phone?
  • 0
Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND
.
Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!


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