Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Need A Little Advice
0

5 posts in this topic

About a month ago I went in for an endoscopy. My throat was all swollen and red and my doctor told me my duodenum looks exactly like someone's with celiac. They did multiple biopsies of my throat and duodenum. Went in for the results and the doctor told me I'm allergic to some kind of food and to take prilosec twice a day and come back in June for another endoscopy. I've had symptoms for 6 years and I was told I had IBS. So I made an appointment to see an allgerisit in May even though the doctor told me to wait until the second endoscopy. I had a bad reaction to some food on Monday and I decided to go gluten free. Is this going to mess up my second endoscopy? Should I stay on a normal diet and wait or stick with the gluten free? Any suggestions would be helpful.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Did the doctor actually diagnose you with celiac? Was his opinion about your intestine based on the biopsy results or just what he could see during the procedure? I'm mostly confused. Why would he prescribe prilosec for an allergy when he doesn't even know what that allergy is? To answer one question, yes, going gluten free before a biopsy will skew the results and could lead to a false negative. I'm in no position to give advice on what you should do, but if possible can you get in to see the doctor again sooner to talk things over? I also don't understand why he would want to prevent you from seeing an allergist. What difference does it make to him whether or not you determine what is causing this allergic reaction? If your throat was red and swollen that sort of sounds like it's approaching dangerous and waiting another month and a half just sounds hair-brained to me. I would certainly recommend keeping a journal listing what you eat and what symptoms you suffer from. You may be able to use that to pinpoint what is causing your problems. Other than that you may be recommended an elimination diet. Anyway, not really any advice I can offer on what to do, but hopefully you'll get some answers and start feeling better soon.

0

Share this post


Link to post
Share on other sites

Get the lab report and see ifctgey biopsied you or just looked.

Did they run a Celiac blood panel?

If you go gluten-free now you can't undergo Celisc testing. Let's figure out if the testing has been done yet (if you can stand staying on gluten).

0

Share this post


Link to post
Share on other sites

Thanks for the advice. The doctor went off what it looked liked. They did biopsy it but I don't know if they ran a celiac test or not. He didn't say anything about it in the visit to go over what they found in the biopsy. Just that what I have is an allergic reaction to something I'm eating. No blood work was done. The endoscopy was ordered for my gallbladder problems. I'm starting to think the two are connected. The food journal sounds like a great idea, I'll do that and get a Celiac blood panel done. Thanks again so much for your help and advice.

0

Share this post


Link to post
Share on other sites

Keep eating gluten for your Celiac panel!!! And make sure they give you all the tests - page 1 and 2. Insist on it. http://www.cureceliacdisease.org/wp-content/uploads/2011/09/CDCFactSheets3_Antibody.pdf

And I'd still get the lab report.

Yes, there's a connection between gallbladder disease and Celiac.

Your doctor is an idiot, btw.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,343
    • Total Posts
      920,485
  • Topics

  • Posts

    • Here's what the Klondike Bar makers say on the FAQ page of their website (August 2016): Are your products gluten free? Nope. They are not. We have not validated for gluten free. We do not operate allergen-free manufacturing sites, however we do have allergen management programs in all our facilities. The intent of these programs is to avoid unintentional cross-contamination of allergens between products. Our product labels adhere to the FDA’s strict regulations regarding declaration of ingredients and allergens. We do not use the terms “Natural” or “Artificial Flavorings” to hide the existence of any allergens. RECIPES CAN CHANGE. We strongly recommend that allergic consumers refer to ingredient declarations EVERY TIME they purchase processed foods.
    • I tried the iodine test but couldn't leave it on very long because it itched too much. I left it on maybe 30 minutes lol. Did anyone try it and have the same response??
    • Had my scope today. Dr said my esophagus is damaged and stomach inflamed. Waiting on biopsy results. Taking protonic and flagyl and he said to go ahead and try cutting gluten out to see if that helps. Thanks for the feedback everyone! 
    • Welcome to the club you never wanted to join! The good thing about this club is that you don't have to take any pills, get radiation or chemo, or stick yourself with a needle every day. Things could be much worse than this. Does your brother live close? If so he could go to your same savvy doc. That would be great! Also what about your mom?
    • Hi There! I am Aly and I have suffered seriously for about 4 years with an huge increase in symptoms. I just recently started a gluten free diet a few months ago and I am sure I make mistakes because I feel it when I do. Your symptoms are a lot like mine and after many blood tests and visits to Neurologist still no answers. They diagnosed with relapse/remission MS for all these years and now say its not that. It's Auto-immune but no answers. They never tested me for Celiac's but A friend suggested I try going gluten free. Here are my symptoms below.  See if you relate or if anyone can relate. Heat Sensitivity, Nerves jumping in face and eyes, sometimes pain and redness around the skin of eyes, kinda pinkish.... occasional trimmers coupled with loss of coordination and balance along with in and out slurred speech, a other varying waves of relapse include Extreme fatigue and a huge fog comes over me. I can't sit up or stand without getting dizzy and feel like passing out. For a few days of the relapse It's just bed rest. The other parts are off and on having to use cane. Up and down, symptoms change but eventually the waves grow dim and I go back to being normal for a while. Things seem to get exacerbated when I do to much like go more than 4 -5 hours without taking a break and resting, lifting anything to heavy...so it seems to be straining things lead me to relapse. I used to be go go go...on the run but life has changed and I find that although I am eating gluten free and being careful not to relapse, I entered another a month ago and I am having to get IV steroid infusion tomorrow to break the cycle of this one. Just when I think I am beginning to feel better and go do something I go right back down. Its seems Gabapentin, Baclofen, and LOTS of rest only get me where I need to be again. It's frustrating. I wanted to share as well so that we can combine forces to get some answers! I have decided to go to a Allergy Clinic of sorts to try and get tested for environmental and food allergies. I am sorry you do not have funding for care. See if there is local clinic that can at least run some preliminary blood work on you. I am not sure if you can see one now in your state being 17 but there is usually a 211 or a 311 line in most cities that will give you the list of places you can go for free or on sliding scale. See if they will run any allergy panels as well. I have found that we have to be proactive in our own care because sometimes there is no simple answer and the more we talk one another with the research sometimes we do on own, we find out more than 4 years of going to a doctor could ever tell you. Thanks for all your input here. I look forward to being a member and helping where I can! I will send updates as I get them. Blessings to you all! Aly
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,414
    • Most Online
      1,763

    Newest Member
    Vic40
    Joined