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Associated Symptoms - Please Read
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Just recently diagnosed (confirmed blood test and biopsy) with celiac. I am wondering if any of these symptoms I have been experiencing are characteristic of celiac:

-Edema (swelling/fluid retention) that seems to get worse after eating/drinking fluid

-Warts (on the hand) never had them growing up, until about a year ago. In the past few months they have spread and grown rapidly

Does anyone know if these are typical? I've been on a gluten-free diet for about a week now (strict) and the edema has it's moments where it improves, but I am yet to see relief. I am starting to worry it's associated with something else like a candida infection. I am worried I need to further limit my diet? Any input or experiences greatly appreciated, thanks!

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They're not characteristic but celiac can cause all sorts of crazy stuff. Give the diet more time. You have to get rid of the autoimmune antibodies, then your intestine has to heal. Complete recovery can actually take years if there is a lot of damage. Symptoms usually improve at least to some degree after a couple months on the diet.

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Emilem,

Something to consider: I had/have the swelling in my hands, face and ankles. I was recently tested positive for albumin (protein) in the urine which is a sign of kidney disease. Edema is also a symptom of kidney dysfunction.

You might want to ask your doctor to check your protein levels in your serum and urine.

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I have actually had these checked out and no protein in urine which rules out kidney disease, yet the edema still persists :/

Emilem,

Something to consider: I had/have the swelling in my hands, face and ankles. I was recently tested positive for albumin (protein) in the urine which is a sign of kidney disease. Edema is also a symptom of kidney dysfunction.

You might want to ask your doctor to check your protein levels in your serum and urine.

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I have actually had these checked out and no protein in urine which rules out kidney disease, yet the edema still persists :/

I'm glad that protein in the urine has been ruled out for you. :)

One of the other things that I have heard people mention is hypothroidism causing edema. Plus, problems with the thyroid is very common in people with celiac.

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I've had thyroid checked as well..... negative :/ i wish i could figure out what's going on ...

I'm glad that protein in the urine has been ruled out for you. :)

One of the other things that I have heard people mention is hypothroidism causing edema. Plus, problems with the thyroid is very common in people with celiac.

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I know my aunt who is celiac was swelled up like a cartoon fat person her edema was so bad. Even her SCALP was swollen and squishy. Once she went gluten free it was like someone stuck a pin in her. Gluten can DEFINITELY cause edema. Warts? I dunno. But nothing aout celiac surpises me anymore. If someone said they grew two heads from gluten, I wouldn't doubt them!

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Just recently diagnosed (confirmed blood test and biopsy) with celiac. I am wondering if any of these symptoms I have been experiencing are characteristic of celiac:

-Edema (swelling/fluid retention) that seems to get worse after eating/drinking fluid

-Warts (on the hand) never had them growing up, until about a year ago. In the past few months they have spread and grown rapidly

Does anyone know if these are typical? I've been on a gluten-free diet for about a week now (strict) and the edema has it's moments where it improves, but I am yet to see relief. I am starting to worry it's associated with something else like a candida infection. I am worried I need to further limit my diet? Any input or experiences greatly appreciated, thanks!

" Common in Celiac patients.

Edema is characterized by excess extracellular fluid volume. Reduction in plasma proteins and malnutrition in celiac disease cause edema by failing to provide colloid osmotic pressure sufficient to prevent loss of plasma from capilaries into tissues.

Results from low plasma proteins, multiple micronutrient deficiencies, and vitamin C in lower limb edema.

Resolves on a gluten-free diet. Deficiencies that can contribute: copper, EPA, Protein,and vitamins B1, C, K."

From the book Recognizing Celiac Disease by Cleo Libonati

I see no connection to warts, but if your immune system is over taxed it *could* be contributing IMO? I had trouble with skin cancers before going gluten-free so I know Celiac can do weird things to your skin.

Don't restrict your fluids. Be sure to be strict with the gluten-free diet. Maybe add a bit of protein at each meal, or as snacks? (Nuts, hard boiled eggs are good for this) Be sure you're getting enough vitamin C, and a multi-vitamin should cover the others? As you heal, you'll absorb things better and should see improvement.

Best wishes!

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WOW! So much great info..I was beginning to lose hope. Thanks for taking time to provide such helpful info.

" Common in Celiac patients.

Edema is characterized by excess extracellular fluid volume. Reduction in plasma proteins and malnutrition in celiac disease cause edema by failing to provide colloid osmotic pressure sufficient to prevent loss of plasma from capilaries into tissues.

Results from low plasma proteins, multiple micronutrient deficiencies, and vitamin C in lower limb edema.

Resolves on a gluten-free diet. Deficiencies that can contribute: copper, EPA, Protein,and vitamins B1, C, K."

From the book Recognizing Celiac Disease by Cleo Libonati

I see no connection to warts, but if your immune system is over taxed it *could* be contributing IMO? I had trouble with skin cancers before going gluten-free so I know Celiac can do weird things to your skin.

Don't restrict your fluids. Be sure to be strict with the gluten-free diet. Maybe add a bit of protein at each meal, or as snacks? (Nuts, hard boiled eggs are good for this) Be sure you're getting enough vitamin C, and a multi-vitamin should cover the others? As you heal, you'll absorb things better and should see improvement.

Best wishes!

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    • I just now saw the second reply and I see what you mean. Again, the issue is that I may have to go with the gluten until close to the end of the year.

      However, an idea did just come to mind, and that is, can my primary care doctor do such a test? I had normal blood work done, but they didn't really say anything about testing for celiacs. I can get an appointment with my primary care doctor much sooner than a GI.

      When I was talking to my PCP last, I asked her what I should expect as far as testing goes or what she may have been concerned about. Her reply was about a HIDA scan for the gallbladder but also any test needed in case of IBS or Celiacs. Just the way she threw that in there like an after thought and left me hanging kinda had me worried.
    • I am not a doctor that's for sure.  So, I can't even answer your questions.  If you know you have pre-diabetes, you probably are working with a doctor.  Can you email them and ask for a celiac blood panel?   You can work on the weight loss and diabetes -- that you can handle yourself now and take action.  I have diabetes and my glucose readings are fairly normal now without medication and I'm thin.  Being overweight does not cause diabetes.  It's either autoimmune (type 1) or you become insulin resistant (type 2).  You can cut out all sugar and  processed stuff ASAP to help take action and start walking 10,000 steps (helps with the insulin resistance).    But the prediabetes is not going to kill you in the next year.  Whatever's in your gut is more likely going to get you much sooner.  But heck, I'm not a doctor and I don't even know you!    
    • Hi Steph, Yes, celiac disease can cause a myriad of symptoms and damage to the body,  Have you completed all celiac disease testing?  Usually they do the blood antibodies test first and then do an endoscopy.   You shouldn't go gluten-free until all testing is completed. Gluten is in many processed foods.  But if you stick with whole foods it is not hard to avoid gluten.  Getting used to eating gluten-free may take some time, as we need to adjust our preferences in diet.  But there are many foods that are naturally gluten-free.  Gluten is the protein found in wheat, rye and barley.  Some celiac disease organizations recommend avoiding oats also for the first 18 months of the gluten-free diet. Celiac disease impairs the ability of the body to absorb nutrients (including vitamins).  That can make it hard for the body to maintain itself and heal/repair damage.  So celiac can easily impact any part of the body. Sardines, tuna, mackeral and salmon have good amounts of vitamin D in them.  There are supplements available also, but not all are good.  You can check them at the labdoor website.  Nature Made is a good one and not expensive.  Internal damage from celiac can cause liver issues.  Those will probably clear up after being on the gluten-free diet a while. Recovery from celiac can take  months, and can be a rocky road.  The more you stick with whole foods and avoid cross-contamination issues the sooner you will heal IMHO. You may find that dairy causes problems for your digestion at first.  But it make stop being a problem after you have healed up some. welcome to the forum!
    • Will this be dangerous considering how long I have to wait for any testing? I may not even get a blood test in November but here is hoping. I just worry having to wait so long will cause serious issues, not to mention delay of weight loss which I need for the pre-diabetes. Do ulcers have a chance to cause yellow stools though? I suppose a stool test will be needed for that for any signs of blood in stools but visually it does not seem so. The biggest issue is not knowing what else could be causing the yellow stools as this would not be a diabetic or ulcer thing. And without negative signs on the gallbladder or liver, it is narrowing down the list.

      At the very least this is making me assume I can wait on a final scan of gallbladder and attempt blood tests and endoscopy if they recommend it.
    • The first step is getting a celiac blood panel.   Any medical doctor can order one.  Live near Chicago?  They are do free screenings this month (check their website).  The cost is less than $400 for the complete panel.  If you get a positive on any one of them, then you should be referred to a GI for an endoscopy to obtain intestinal biopsies.   Here's more information from a reliable source and not just some lady on the internet: http://www.cureceliacdisease.org/screening/ Having had my gallbladder removed (probably ruined from undiagnosed celiac disease, but I don't know that for sure), I would recommend a HIDA scan.  I have no idea how expensive that one is.  It's a nuclear test that checks for functionality.  Basically, is your gallbladder squeezing bile into your small intestines when those fries or bacon come down the tube.  Mine happened to actually be rotting (infected).  ER suspected appendicitis, but it was a rotten gallbladder.  I never had any stones (that's what the CT or the ultrasound can find).  I am sorry that you are ill.  Keep eating gluten until all testing is complete.  This is important.  Go gluten free now?  Here's why you shouldn't..... http://theceliacmd.com/2013/04/six-reasons-to-test-for-celiac-disease-before-starting-a-gluten-free-diet/  
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