Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Ttc
0

10 posts in this topic

Hi

Im new here and so glad to have found this forum.

I have been ttc for 2plus years and have just done 6mths of fertility treatments with no results.

I have slightly low FSH but am pretty much considered unexplained fertility.

My mother has suggested I try a blood test for Celiac. My grandfather has it and my mother is Gluten Intolerant.

Tomorrow I go for that blood test. Regardless of the result, I am going to go Gluten free.

I have been researching this more and more and it makes so much sense. Im a health nut so it doesn't phase me to eat gluten-free.

Has anyone had a gluten issue linked to fertility troubles.

I have severe period pains, numbness and tingling down my neck and arms sometimes.

That is about my only real symptoms. I do not fit the profile of a celiac but you never know.

I do have severe seasonal allergies so am interested to see if they subside by going gluten free.

0

Share this post


Link to post
Share on other sites


Ads by Google:

We did 10 cycles of fertility meds....diagnosed with celiacs in November and accidently got pregnant in January (didn't stick). Can I say without a doubt celiacs caused fertility issues...no but seems like it affected something

Good luck

0

Share this post


Link to post
Share on other sites

I don't know but wishing you luck.

0

Share this post


Link to post
Share on other sites

Hi

Im new here and so glad to have found this forum.

I have been ttc for 2plus years and have just done 6mths of fertility treatments with no results.

I have slightly low FSH but am pretty much considered unexplained fertility.

My mother has suggested I try a blood test for Celiac. My grandfather has it and my mother is Gluten Intolerant.

Tomorrow I go for that blood test. Regardless of the result, I am going to go Gluten free.

I have been researching this more and more and it makes so much sense. Im a health nut so it doesn't phase me to eat gluten-free.

Has anyone had a gluten issue linked to fertility troubles.

I have severe period pains, numbness and tingling down my neck and arms sometimes.

That is about my only real symptoms. I do not fit the profile of a celiac but you never know.

I do have severe seasonal allergies so am interested to see if they subside by going gluten free.

Everyone fits the profile of a Celiac. You don't even have to have symptoms to have Celiac. The numbness, tingling, and problem periods are frequent complaints of Celiac.

I personally have seen a dramatic reduction in seasonal allergies since going gluten free, and I do know that a good number of people have seen success in conceiving when they were previously unable to, after gluten free. Here's hoping, right? :)

0

Share this post


Link to post
Share on other sites

hello and welcome :) :)

I had an ectopic and a miscarriage - both took a long time to concieve.

Followed by 2 plus years of unexplained infertility, very painful and highly irregular periods (one every 45-60 days)

Had 6 months of clomid - no success.

At 40 got to top of ivf list but decided not to go through with it and be childfree by cholce (it has been a long and tearful journey over 10 years and we had had enough)

I am self diagnosed celiac at 42 and since going gluten free all symptoms have gone - i had the tingling and numbness you describe too.

My periods have returned to every 28 days - the first time in 20 years!

I may have felt differently if I was younger but now I have come to terms with being childfree through choice but I do strongly believe that celiac was the cause of my losses and UI and I am sad that it was never investigated.

There is a call that all unexplained Infertility patients are automatically tested for celiac (oxford medical journal) but as yet, i am sure many ladies are celiac and dont know that this is the cause.

Good Luck and like someone else said , there are many successful stories of motherhood after going gluten-free!

0

Share this post


Link to post
Share on other sites




i had my first son fine (concieved on first try), but looking back I was on a diet of fish, vegetables, fruits, chicken, etc.. because my parents eat super healthy, and I was back with them until husband could find a job when school was over.

I had weird pains etc while preggo.. Then after I had him, I had SEVERE fatigue, and other symptoms. Then about at 8 months old, I was vomitting, pain, diarreah, unexplained other things just once in awhile.. So when he is 20 months old, we were TTC and my symptoms were getting worse, to the point of everyother day. It was hard getting preggo.. No positives at all..Periods were short and sporadic.. it was bad.. So I went to doctor after doctor..

My grandmother has celiac, my aunt has celiac, my other aunt is gluten sensitive, My mom is sensitive.. So I decided after 1000 dollars in medical procedures to go gluten free... A Month after going gluten free, we got pregnant.. I'm at 15 weeks now and going strong..

If you've had strong symptoms for 2 plus years you might have more damage than me.. and you might want to wait a few more months before TTC.. I've heard of others that have a ton of damage they tend to miscarry more because their body is still repairing itself.. and when your preggo your immune system is suppressed so your body will accept the fetus..It can't do that and repair at the same time sometimes... Just a thought but its up to you..

0

Share this post


Link to post
Share on other sites

Horsemom

Welcome to the forum, and I am hopeful for you ...

In hindsight, after trying to start our family for years, and suffering loss (ectopic pregnancy)...I finally got pregnant again when I was on vacation, eating fresh veggies, fruit and lots of fish. I carried my little gluten sensitive guy to term. :D

Since being glutenfree, my cycles have been significantly less painful. Recently, cutting out corn (coincidence? too soon to tell) I was completely painfree, and no bloating/inflammation.

I think there is a connection...good luck to you!

0

Share this post


Link to post
Share on other sites

Yes, I have [had] fertility problems because of it..

We saw an 'expert' but they couldn't figure out what was going on.. we don't want to do the IVF because to us, if it's meant to be, it'll happen...

I've lost one officially (meaning I had a positive on the test) and I know I lost at least 3 others (unofficially - no positive; but I just knew I was) and during all those times (over 19 years) I was gluten intolerant and I didn't even know it. I just recently (2 years ago; with my last pregnancy - the one I had the positive) I found out that I am... and yes, it can cause problems getting pregnant and even staying pregnant.

Even before they found out what the problem was, they took out my gallbladder.. that helped some (it was problematic), but with me, the damage is/was pretty bad.. :(

Just recently (2 months) have been completely gluten free. When I was told, I wasn't sure where to turn... at the time, I was a junk food-aholic! I had to have me those brownies!!... cakes, crap like that; basically, just that, crap. Things women love during those hormone peaks.. you know... my chocolate!! anyway... lol...

during those times, I would feel like crap.. wore down, wore out and put away wet type of thing...

so my doctor told me "stop the gluten.. and after a bit, maybe months, maybe it'll happen.. if the damage isn't too great" so I've been off gluten for 2 months.. still going strong (even though I sometimes miss what my husband eats (bastard! lol) ice cream, cake.. (my sons birthday was recently so...) but anyway, I'm taking my vitamins (folic acid, iron..etc) just in case I do end up pregnant.. and other vitamins from the foods I can't eat...

I haven't eaten Gluten for these 2 months, I feel sooooo much better... and just the other night, I took a drink of something that had malt in it and immediately, even before I found out it did, my mouth was like "GROSS!".. and then I got sick... so I think my body is trying to tell me "thank you so much for keeping me clean.. I don't need that crap!"

anyway, good luck! stay Gluten Free... and if it's meant to be, it'll happen! :)

0

Share this post


Link to post
Share on other sites

So, I have been having the same issues. My husband and I started trying to conceive in December 2011, we were successful the first month, but then miscarried at 5.5 weeks, heart broken. Haven't been able to conceive since. Now I haven't had a cycle for 52 days, but the urine tests are saying negative! All of my vitamin levels are normal, so I don't know why I am late. Have any of you had this happen?

0

Share this post


Link to post
Share on other sites

I wanted to update my previous comment to state it absolutely causes fertility problems.....

We did 10 cycles of fertility meds with zero success. When I got diagnosed and went gluten free I got pregnant the first month we tried literally "trying" once (hubby had just had back surgery) we miscarried at 9 weeks in march.

I just found out I am pregnant again (wow that sounds crazy seeing it out loud).... Absolutely without a doubt gluten caused the problem.

Pinkscooby6, how long have you been gluten free? I have long cycles and the endocrinologist I used to see recommends doing a month of birth control and 3 months off. Its suppose to help regulate your cycles.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,346
    • Total Posts
      917,410
  • Topics

  • Posts

    • Weird Reaction
      I think, if all this is caused by glutening, it could be that it takes a while to work its way out of your system. I should explain about what I said about organic broccoli.   I don't have a problem with organic food,  in fact, I buy organic milk and carrots all the time, but I don't want to try organic broccoli in case it is the broccoli that is the problem, not the insecticide.    I meant to ask, are you a coeliac or is it non-coeliac gluten intolerance that you have?   I wonder what sort of support you get in Australia for these conditions once diagnosed?   Here in the UK I think the understanding is that if new gastro symptoms have lasted for more than six weeks it needs to be investigated.   I have found this very helpful advice because I do get odd twinges of pain and sometimes changes in bowel movements (sorry if tmi) but they rarely last more than a couple of weeks.   If they do persist I mention it to my gastroenteroligist and he follows it up.  I recently had a sigmoidoscopy for left sided pain and they found nothing.  Turns out it was to do with lactose intolerance, but I always imagine the worse!    
    • Will my doctor test me? So many symptoms...
      Welcome, @iwillmoveamountain! Of course you are not wrong to pursue getting testing for celiac. My advice is to drop that doctor and find a new one, preferably one who is celiac savvy, and who will listen to you and test you for the disease.  
    • Will my doctor test me? So many symptoms...
      Hi! I was hoping some of you might be able to tell me if my symptoms seem like good reason to be tested for celiac disease... I actually asked my doctor to test me (years ago) and she told me she would not test me because the test is expensive... However, I am now desperate to figure out how to manage my health issues and am willing to find a doctor that WILL test me if my symptoms seem to point to celiac...Here they are:
      I have been diagnosed with all of the following over the last 12 years (I am 22 years old, and have always been a healthy weight/slightly underweight, and quite active):
      Irritable Bowel Syndrome Fibromyalgia Anorexia (started when I was 10, I have been mostly recovered since I was 14) Depression Anxiety Panic Attacks Horrible mood swings (from suicidal to totally fine in a matter of minutes)
        Chronic constipation and bloating Acne   HOWEVER, no one in my family has been diagnosed with celiac....am I wrong to think I have it??
    • Weird Reaction
      Yes, I was surprised about the MSG in broccoli as well. I just had a quick look now as I couldn't remember where I had read it but some mushrooms have it to. A Google search will bring up a few things. I always just thought MSG was an artificial food enhancer!! Insecticides are still a big possibility though. Why do you not want to try organic? We buy organic when we can and fruits and veges that are in season are usually the best and cheapest.  Thank you for the link, Cristiana. Very helpful. I have an appointment with my Naturopath in a couple of weeks and going to have a blood test done before that. She is excellent. Very knowledgeable and loves her work. Until then I'm not taking any supplements. I generally eat pretty well anyway so we'll see what she says. In the past I have used B12 injections (aka Neo Cytamen) which I found much better and safer than taken orally and very cheap. The energy boost was very noticeable. I didn't know it helped with anxiety though. She has also had me on Magnesium, Probiotics and Vitamin D3 and I also make my own Liver Tonic (Milk Thistle, Dandelion Root Powder, L-Glutamine, Taurine and Choline Bitartrate) which I use from time to time for a quick detox. Too much of anything can be bad but I think iron can be not real good in large amounts. Deficiencies can be related to gut health and/or competing for absorbtion with something else you may be taking I found. I'm no expert though but just a few things I've picked up during research. My normal GP told me to just eat some more red meat but I want to speak to my Naturopath first before supplementing. Her knowledge on nutrition is a bit more up-to-date.  I was just sitting there at lunch today after feeling great all morning and had a "weird feeling" come over me. Just a not quite right feeling. Very hard to describe and nausea seems to have returned to. It's funny that as I get older any little thing I get I seem to think it's life threatening even though all the tests I get back say I'm in good health. I guess that's part of that dread and doom and gloom feeling I mentioned earlier. Wish that would go away.  
    • Gluten and panic attacks
      There are great gluten-free pizza crusts out there, as well as good dairy free cheese. I find the key is to add good toppings, e.g. meats, carmelized onions, other veggies, white anchovies. Life goes on. Congrats. Hope the good feelings keep up. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
    • SLLRunner

      Week 4 of the gluten challenge- wheat cereal every morning, regular bread every day, and wheat tortillas for my lunch wraps. Right now, body aches that seem exercise related (weight lifting and running), even though I am doing the same intensity of weight lifting and running I've always done.  Just a few more weeks until my blood test. Counting down the days.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,482
    • Most Online
      1,763

    Newest Member
    Jiifigment
    Joined