Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Donating Blood
0

35 posts in this topic

I donated blood yesterday. I was anemic last time, so I couldn't donate. This time my hemoglobin was 12.8...which is still a little low. I think they require it to be at least 12.5. Today I feel exhausted. I am pretty sure it's from donating. I like donating because I know the American Red Cross is always needing donors and I have a rare blood type. Does anyone here donate blood routinely? i don't think I can do it very often due to a low hgb....and the exhaustion that follows.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Also, I take iron and vitamin supplements

0

Share this post


Link to post
Share on other sites

I used to, but then couldn't when I became anemic. I did once, post-everything-fixed, but the guy did such a horrible job at the needle stick I haven't been back. My iron was back up to normal for me, and I didn't really feel all that tired.

0

Share this post


Link to post
Share on other sites

I use to donate blood fairly regular, but I got a letter from Red Cross not to donate again back in 1994.. They went on to say they had destroyed my last 3 donations... My Doc couldn't figure out any issue other then a high liver enzyne count... In 09 I was diagnosed with DH and went gluten-free... All Liver Function tests are normal now.. Several months back I tried to contact Red Cross several times about donating again... Each time I ended up on Hold for 30 plus minutes and then click before I could even talk to a person... Looks like I'm a retired donor...

0

Share this post


Link to post
Share on other sites

The first time I donated, I fainted afterwards. Embarrassing.

I tried to donate a few years ago and because I was anemic, they turned me down. :(

I will try again, in time, but I have "lousy veins" and the phlebotomist always starts to sweat when she cannot get the stick just right at first or the second time or the third.....

0

Share this post


Link to post
Share on other sites




Sometimes I would fail the anemia test. When I did donate, I still found it very draining. After I almost passed out after one donation the Red Cross suggested I stop because it was harder on me than they preferred to see.

0

Share this post


Link to post
Share on other sites

I felt fine right afterward. I have good veins. But today I am exhausted and I know it's from the donation. I will probably only donate twice a year...they call me every 3 months lately...feels like an annoying salesman sometimes. :(

0

Share this post


Link to post
Share on other sites

I have donated blood, actually only after going gluten free. I did feel weak the next day the first couple times. And still a little now. But I put up with it. Are you making sure to stay hydrated (both before and after) and eating well? Those are important.

0

Share this post


Link to post
Share on other sites

I've been turned down more times for being anemic than I can count. The exhaustion after donating is just too much right now. I always have had some one to drive me home after donation too, just in case I pass out.

0

Share this post


Link to post
Share on other sites

I've donated a few times. I kept getting turned away for a while, have been thinking about going again now that I've been suplementing for a while with iron. My veins are so easy I could probably do the needle myself. It does leave me dizzy for a day or two. I don't mind so much. i just plan ahead for when I'll have a few days of downtime.

1

Share this post


Link to post
Share on other sites

I wonder if there is any chance of people becoming celiac by using our blood? We would have the trained antibodies to gluten in our blood, and it seems like it would not be impossible for those to influence a persons own antibodies in the celiac direction. Just curious if anyone has heard or read anything about this. Could we spread celiac through blood?

0

Share this post


Link to post
Share on other sites

I wonder if there is any chance of people becoming celiac by using our blood?

:o

ABSOLUTELY NOT!!!

Celiac is not communicable via blood transfusions.

Univ. of Maryland Center for Celiac Research states this emphatically on their website.

0

Share this post


Link to post
Share on other sites

:o

ABSOLUTELY NOT!!!

Celiac is not communicable via blood transfusions.

Univ. of Maryland Center for Celiac Research states this emphatically on their website.

But can blood donated from a person that ate gluten cause a reaction in one with Celiac/DH ???

1

Share this post


Link to post
Share on other sites

But can blood donated from a person that ate gluten cause a reaction in one with Celiac/DH ???

I don't possibly see HOW? :blink:

0

Share this post


Link to post
Share on other sites

But can blood donated from a person that ate gluten cause a reaction in one with Celiac/DH ???

That's why it gets digested and metabolized before entering the blood stream. :)

0

Share this post


Link to post
Share on other sites

That's why it gets digested and metabolized before entering the blood stream. :)

That's right, things do not go directly from your stomach to your bloodstream. Which is why some supplements are sublingual, because it gets into your blood better as a specially formulated liquid under your tongue than it does in your stomach.

2

Share this post


Link to post
Share on other sites

:o

ABSOLUTELY NOT!!!

Celiac is not communicable via blood transfusions.

Univ. of Maryland Center for Celiac Research states this emphatically on their website.

Hmm, ok, what about vampires then? Would our blood kill vampires?

1

Share this post


Link to post
Share on other sites

Hmm, ok, what about vampires then? Would our blood kill vampires?

Since the majority of us are battling anemia,

the vampire would probably spit it out and scream

"Blech! what the hell is this crap!? :blink:

Where's the good stuff?"

:D

0

Share this post


Link to post
Share on other sites

Since the majority of us are battling anemia,

the vampire would probably spit it out and scream

"Blech! what the hell is this crap!? :blink:

Where's the good stuff?"

:lol: :lol:

I always feel like I am going to pass out when they take it.

I mean just walking in to my endo's office I give 6 to 8 tubes. I do not have that much left on any given day :P

My blood type is uncommon (AB) and for years I gave blood regularly. They would call and remind me that enough time had passed and I could give again. :lol:

Then they reluctantly started to decline my blood.

I no longer give blood.With my recent liver issues and other problems they will not except my blood. I an not sure it would do any one any good any way :huh:

1

Share this post


Link to post
Share on other sites

I wonder if there is any chance of people becoming celiac by using our blood? We would have the trained antibodies to gluten in our blood, and it seems like it would not be impossible for those to influence a persons own antibodies in the celiac direction. Just curious if anyone has heard or read anything about this. Could we spread celiac through blood?

Of course not!! I asked before I donated, just to make sure.

1

Share this post


Link to post
Share on other sites

That's why it gets digested and metabolized before entering the blood stream. :)

Gluten, or any food for that matter, does not necessarily get digested and metabolized before entering the blood stream. That is only what is supposed to happen. I have been shown partially digested fragments of food in my blood, under a microscope. That's from a leaky gut, with a lot of damage. People can have a leaky gut from other things, like a medication, I've been told. I've also been told, by a doctor addressing a local Gluten Intolerance Group meeting, that people don't fully digest wheat, barley, rye or oats, because some of the proteins are just too large and complex. It only takes a small fraction of a gluten molecule to cause a celiac reaction. There are multiple short chain peptides of gliadin, sequences of only 4 or 5 amino acids that can cause a reaction. There are multiple instances of each of these several peptides in one gliadin molecule. Partial digestion can make these peptides more available for our immune system to react to.:unsure:

0

Share this post


Link to post
Share on other sites

Gluten, or any food for that matter, does not necessarily get digested and metabolized before entering the blood stream. That is only what is supposed to happen. I have been shown partially digested fragments of food in my blood, under a microscope. That's from a leaky gut, with a lot of damage. People can have a leaky gut from other things, like a medication, I've been told. I've also been told, by a doctor addressing a local Gluten Intolerance Group meeting, that people don't fully digest wheat, barley, rye or oats, because some of the proteins are just too large and complex. It only takes a small fraction of a gluten molecule to cause a celiac reaction. There are multiple short chain peptides of gliadin, sequences of only 4 or 5 amino acids that can cause a reaction. There are multiple instances of each of these several peptides in one gliadin molecule. Partial digestion can make these peptides more available for our immune system to react to.:unsure:

Sounds like blood from a donor that ate Gluten could set off DH, in one that has DH...

0

Share this post


Link to post
Share on other sites

Whoa, what a second.... :)

One more time:

Celiac is not communicable via blood transfusions.

People who eat gluten cannot "contaminate" us.

Univ. of Maryland Center for Celiac Research states this emphatically on their website.

Do you really think that we would be allowed to donate or receive a blood transfusion if it were a HEALTH HAZARD??

Read a medical journal to see how the digestive process works for you to have an autoimmune reaction to gluten when you have Celiac.

Please, guys.... let's not get all crazy over this NON-ISSUE.

We have enough bogus crap/ myths to bust on this site. :P

3

Share this post


Link to post
Share on other sites

Sounds like blood from a donor that ate Gluten could set off DH, in one that has DH...

Capt. honestly..... I would not make that statement, based on one person's post.

that is not how the gluten antibodies OR the digestive system works.

Please read this:

http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/

I have seen NO medical evidence supporting any of this.... Have you?

2

Share this post


Link to post
Share on other sites

Gluten, or any food for that matter, does not necessarily get digested and metabolized before entering the blood stream. That is only what is supposed to happen. I have been shown partially digested fragments of food in my blood, under a microscope. That's from a leaky gut, with a lot of damage. People can have a leaky gut from other things, like a medication, I've been told. I've also been told, by a doctor addressing a local Gluten Intolerance Group meeting, that people don't fully digest wheat, barley, rye or oats, because some of the proteins are just too large and complex. It only takes a small fraction of a gluten molecule to cause a celiac reaction. There are multiple short chain peptides of gliadin, sequences of only 4 or 5 amino acids that can cause a reaction. There are multiple instances of each of these several peptides in one gliadin molecule. Partial digestion can make these peptides more available for our immune system to react to.:unsure:

Do you have any articles you could direct me to, to substantiate these statements? This thread indirectly deals with the digestion of gluten proteins...if you are interested. :)

As far as donation and the above logic – I don't know many newly or un-dx'ed Celiac's who would be up to giving blood (presumably the less recently dx'ed ones would have less damage due to the healing). :P

My 3 cents (inflation!). B)

2

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,348
    • Total Posts
      917,422
  • Topics

  • Posts

    • Testing After Celiac Disease if IgA deficient
      I am also IgA deficient. My doc took more blood and looked at 2-3 other markers in the blood work , transglutinase, and 2 others. My biopsy showed blunted cilia in sm intestine, but my IgA was low. He suspected Celiac due to cilia so ordered other blood tests. I also presented atypically, burny stomach and reflux...and very little else.
    • Testing After Celiac Disease if IgA deficient
      If you have Celiac Disease, and you are IgA deficient, what do they check on your labs to make sure you are not being "glutened"?
    • Weird Reaction
      Hi again Richie, A lot of coeliacs have a problem with coffee, maybe you do too. It could explain the shakes you describe. I am sensitive to coffee, and haven't touched caffeine since last summer. (The detox lasted for 10 days and it wasn't pleasant, so if you ever give it up, do it gradually).  Sometimes when you're intolerant to something, when you have it, it makes you feel 'better' but it doesn't last and usually end up worse, it's like a drug - and in the case of caffeine it is. I also take a daily probiotic (gluten free and dairy free etc)., which is good for healing the gut.
    • Weird Reaction
      Cristiana and Flowerqueen, I haven't been officially diagnosed as Celiac but I had a DNA test in March 2015 which revealed I had the Celiac gene on both sides so it was advised that I have a test to see if I did have it. I didn't but I went off gluten immediately and haven't "knowingly" eaten it since. Before the DNA test I didn't have the nausea and trembling type feelings that I do now but I occasionally got the shortness of breath which I used to put down to being a smoker. (I quit almost 16 years ago) Anyway, this morning I woke with the nausea feeling, the trembling, loss of appetite, feeling of doom again but it happens so intermittently. I do have some unavoidable stress in my life all of a sudden so maybe it's all connected some how. But on the plus side my bowel movements have returned to normal and I go often especially after waking and having coffee. (Oh, and Cristiana don't worry about tmi with me. You would have to try pretty hard to offend me and nobody has done it yet. haha) I always think the worse to. The internet and Google are great but information overload becomes a real possibility creating some frightening scenarios. It's just interesting that the coffee with the MCT Oil (Brain Octane is the actual name) and butter makes me start feeling better and the nausea, trembling, anxiety seem to be extinguished by it but coffee with low fat milk doesn't although I do get more energy from it. I did read somewhere that MCT Oil was good for gut health though and if I had to describe it it would be like it just smooths over all the bad stuff with a nice soft lining.  It was recommended in my DNA test that I have more fats in my diet and low processed foods but I occasionally have gluten-free biscuits, gluten-free ice-cream (my true weakness) and gluten-free weet-bix. I've checked most of these items ingredients and they are pretty good. There is a lot of gluten free rubbish out there though which I completely avoid. Thanks GFinDC for your reply. I was going to speak to my Naturopath when I see her about Immune Health. My plan usually involves the Liver Tonic I mentioned above and heavy on the L-Glutamine which, apparently, is supposed to be excellent for gastrointestinal health but I'm not going to supplement with anything just yet until I get my blood work done and see if it reveals any deficiencies. I'm suspecting Iron though. Because I've had recent tests all coming back good I'm thinking a possible scenario would be a die-off effect I've heard of where all the bad bacteria have been killed off but your body can't rid itself of them quick enough so you actually feel or get worse before you get better. That's where the detox strategy comes in and I'm assuming replacing them with Good Bacteria via Probiotics. Again, this is what I have read in the past but it does seem to make sense in some cases. I do feel better in having found these forums though.  
    • Daughter with celiac- need test result help
      You are doing well.  We didn't have a "normal" tTG for 6 years and were also very strict.  Kiddo was dx with hypothyroid as well and tTG fell a lot after getting on meds for that but still didn't normalize.  Finally cam down within the last 6 months (this after a trip to THE Celiac Dr. several years ago).  I wish we had done a DGP much earlier and I had pushed for that sooner.  I would start there and see what happens.     Sounds like you're doing everything right though. Sometimes it just takes time. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
    • SLLRunner

      Week 4 of the gluten challenge- wheat cereal every morning, regular bread every day, and wheat tortillas for my lunch wraps. Right now, body aches that seem exercise related (weight lifting and running), even though I am doing the same intensity of weight lifting and running I've always done.  Just a few more weeks until my blood test. Counting down the days.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,484
    • Most Online
      1,763

    Newest Member
    KKJ
    Joined