These blood tests were without eating gluten. I'm going to talk to them about genetic and DGP testing. There are several health conditions that are linked to celiac throughout several members of my family. It just makes sense. What I don't get is he basically disregarded those test results. Is it pretty common for those to be elevated in those with gluten sensitivity? From what I've heard, it doesn't do any damage to your body so why would the IgG(s) be 5 times the normal level(s). I just don't want to be less strict down the road with gluten free, thinking it's not damaging my body and end up with cancer in 10 years because whoops we misdiagnosed you. I'm miserable and would like to discuss individual issues with a doctor who knows celiac (like every other disease has) but can't find one who knows more than a single textbook page of knowledge. I can't imagine what this was like 30 years ago.
Thank you guys so much for taking time to help me. It's quite possibly keeping me sane at the moment to have people who validate my concerns.
Read a WHOLE lot of threads in the dh section. There is a specific way to biopsy for dh & 95% of the time the derm does it wrong. There's a lot to be learned there. He has to keep eating gluten even for the dh biopsy.
Well, that's the normal course of events for a dx. If your doc is willing to dx you based on the blood alone then great but make sure he puts it in your records so your butt is covered in future when someone questions you.