Living Without--newest Issue
Posted 05 September 2005 - 06:15 PM
August 3, 2005 - Biopsy confirmed Celiac Sprue.
Food Allergies: Chocolate, Shellfish & Gluten
Posted 06 September 2005 - 04:29 AM
gluten-free since Feb 2005
Posted 06 September 2005 - 05:35 AM
Get home, he takes a look at LW and immediately he is reading it and then I try to take it from him, he's like "no, this is a good magazine; let me read it first, then you can have it." I mention to him that he grumbled about buying it the whole time in the checkout, now all of a sudden it's his magazine. His answer "I didn't realize you bought something that was really good to read."
So now we eagerly await each issue
I guess the Autumn issue is out now?
Husband misdiagnosed for 27 yrs -
The misdiagnosis was: IBS or colitis
Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,
most prestigious medical groups in northern NJ which constantly advertises themselves as
being the "best." This GI told him it was "all in his head."
Serious Depressive state ensued
Finally Diagnosed with celiac disease in 2003
Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.
Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle
Developed neuropathy in 2005
Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003
Posted 07 September 2005 - 05:53 PM
Hayley age 4, gluten-free at 26 months
Clark age 3, negative celiac bloodwork
Posted 07 September 2005 - 08:11 PM
celiac3270 - in all seriousness you should think about writing a book (it's not like you have anything else to do, right?) You have a great writing style; I'll bet you could get published! I think if you focused on teens with celiac disease you would have a unique and very marketable book. As an alternative, have you thought about writing an article for one of the gluten free magazines focusing on strategies for teens in coping with celiac disease?
You know, thats a good idea.. he is like the smartest person on the board - and if it helps, I would buy the book .. ooooh and you could donate some of the money that you get out of the book towards celiac research or something! Sorry.. I get carried away sometimes.
diagnosed on May 31, 2005
orange county, california
"Laziness will cause you pain." (Unknown)
Posted 08 September 2005 - 03:51 PM
Posted 08 September 2005 - 10:29 PM
Wow...I totally missed that part in the book.
Well even though I wasn't harmed by anything I read I suppose some people w/out better resources might take these things seriously.
I no longer support the book and am now ashamed to own a copy.
Darn....I really liked her writing style too.
Posted 09 September 2005 - 03:41 AM
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