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Accidental Gluten Ingestion
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Just last night since being gluten-free for a couple of weeks, I was telling DH how much better I feel!! Today I got some beef jerky but they were out of my regular kind do I bought teriyaki not even thinking about it... Sure enough after I ate half of the bag it occurred to me that I hadn't checked the ingredients and there it was(from the soy sauce) I wanted to kick myself! I read up online a but and picked up some digestive enzymes so am taking those... Anything else (aside from Drinking lots of water) I should do? I just don't want to feel crappy all weekend ):

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Sorry for the typos! My fingers are too big for the iPhone keyboard /:

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A sort of gluten morning after pill... hmmm.

Well, I must have glutened myself also this past Thursday because I felt like I got beaten with a 2x4 this weekend and am just now beginning to feel better. Hopefully you didn't go through anything like that!

For me I start to feel uneasy and anxious, then the gut pain starts and I just need to take it very easy until it starts to feel better. During this time I'm like a wounded animal... a fight or flight state of emotion and not very nice to be around! So I usually retreat to my man cave or go to a happy place like a quiet section of a home improvement store and browse. Weird, but it works. It's a combination of rest and doing something relatively passive to take my mind off the pain.

The leader of a celiac support group I attend said "thank God for symptoms." Without symptoms you would probably just totally destroy your gut and be none the wiser until it was way too late. So that makes sense, but I still would like to find some more and better ways of treating symptoms when they occur because they can be pretty discouraging.

The next time I am about to stupidly ingest some gluten I think instead I will just ask around and find someone about to fire off a big cannon and go stand in front of it with my gut. It will probably have about the same effect!

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
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