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Healing

LuvMySkye

By LuvMySkye
in Coping with Celiac Disease

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LuvMySkye Newbie
LuvMySkye
Posted

Hi, I'm new to the forum. I was diagnosed with Celiac back in Nov 2011 and confirmed through biopsy in Feb 2012. I was wondering if anyone has or had symptoms during the healing process? I understand that everybody's symptoms are different. I had debilitating nausea, abdominal pains, constipation, fatigue...Now that I'm recovering, the nausea is nearly gone but I still get some abdominal pain and some real changes in BM's. I have some good days but still have a few too many bad days. I'm getting depressed cause I feel like I'll never feel normal again. I've been gluten free for nearly 4 months, I don't eat out anymore and there's no risk of CC as my daughter eats what I eat. Is this normal? To have different symptoms during recovery?

I'm a female, 22yrs old, 98lbs(lost 40 lbs due to the disease), with one 20 month old child. Any info will be much appreciated.

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BabsV Enthusiast
BabsV
Posted

I have some good days but still have a few too many bad days. I'm getting depressed cause I feel like I'll never feel normal again. I've been gluten free for nearly 4 months, I don't eat out anymore and there's no risk of CC as my daughter eats what I eat. Is this normal? To have different symptoms during recovery?

Welcome to the forum!

The healing process can vary from person to person...some people seem to take days to feel better while some of us (ahem, me included) take much longer. I am 8+ months gluten-free and still dealing with some issues (abdo pain is my main one right now.) At the beginning I swore it felt like two steps forward, one step back. I also wanted more good days but it just didn't work that way for me. You have to have patience and this is funny coming from me because I am notoriously impatient! One thing that really helped me was to keep a list of all the problems/pains/etc. that I had so that I could keep track of what was improving. I may not be 100% yet but I've said goodbye to the brain fog, dizziness, tremors, scary weight loss, brittle nails and hair, skin that looked like paper, etc. When I look at the list it is easier to see that overall I am improving.

I figure it took time to get in such bad shape and it will take time to get back into good shape!

Also, have you checked for cross-contamination issues? Replaced your toaster, strainers, etc. Could there be trace gluten sneaking in?

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Marilyn R Community Regular
Marilyn R
Posted

Yes, welcome to the forum Luv.

A great book to purchase or check out from your Library is Dr. Peter Green's "Celiac Disease: A Hidden Epidemic". It's been over a year since I read it, but I believe he said it wasn't uncommon to take two years to heal.

Babs is giving you good advice, it has always helped me when I compare where I am now to what was going on then.

Wish you well! :)

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