Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

New, Not Sure If Celiac Or Not.
0

7 posts in this topic

Hi everyone, I go by Prohibit on the internet. Fitting since I think my food choices are about to be prohibited. I am 22 years old and have been struggling with anxiety for a few years now. I just got married on April 20th, and we went to Disney World for our honeymoon (we are actually driving back to Oklahoma right now). So here is where my story starts.. we're on our way to our honeymoon, and after a few hours of driving my hand goes completely numb / tingly. I didn't think anything of it of course. So then since day one of being at Disney World I was having some problems when we ate. My stomach would start to hurt really bad (sharp pains), and I'd have to go to the bathroom for a while afterwards. Well.. as the week long honeymoon got closer to end I started to realize this was happening every time I ate. On top of this, I feel very worn out / tired a lot and very early. It's almost as rest does nothing for me. Up until now I just thought maybe I'm a complainer or something. After looking at the symptoms list I feel like someone grabbed the book of my life and copied bits and pieces out of it. I have always had problems gaining weight and have always been pretty small. I am 5'5 and usually weigh 120-130 lbs. Right now I am at 150, feel very bloated, and notice a lot of weight gain around my neck and face. I get bumps under my skin on my neck and face that are like zits/pimples without a head and they eventually just go away. Also have problems with neck rashes when I shave, and have never been able to rid myself of acne. Since this last week I have had foul diarrhea and constipation + gas. Today I haven't eaten anything with gluten and am feeling better. My wrist has been hurting a bit, and the back of my foot. I never could do well in high school, couldn't concentrate so I dropped out and joined the navy to be discharged one year later because of my anxiety. I seriously feel like I'm on an emotional rollercoaster. The past week I've been very irritable after eating and sometimes snapping on my wife when it isn't necessary. I've lost my appetite because I can only associate it with pain. On top of things, I think I might be sterile but not 100% sure. My stomach has also been very "rumbly". I also have some tooth discoloration for most of my life. Is it normal to not have these stomach problems until my 20s? My right hand is tingling now as in typing this.

I wanted to ask you that have been diagnosed if you think there's a good chance I have this or not. I plan to go get tested soon, but don't have insurance so I'm waiting it out.

If I have it, it would explain a ton of things in my life. My wife and I have best friends that are married, and the wife has celiac disease. I never realized how big of a deal it is or what she goes through, and have major respect for all of you. Nobody should go through this.

So, do I continue to eat gluten and feel terrible? My best friend says don't start gluten free diet unless I know I have it, but I don't want to torture myself. I start to hurt before even finishing my meal. At first I thought food poisoning, but wide has had 0 issues and we ate all the same things up until today. I seek your guidance.

Now that all the gruesome details are out of the way. I work as a contractor for oil companies taking pictures of legal documents in courthouses. In my free time I am a web administrator and run a fan based mobile gaming community with over 15,000 members since July 2011. I also am an administrator for the band 311's forums. We have three pomeranians that are very good boys and don't bark all the time. One is black, one brown, and one white. They are too smart for their own good. When you have to put a crate upside down, with the door against the fridge to keep them from letting themselves out, you have a problem lol. Hope you are all having a great evening.

Ray

0

Share this post


Link to post
Share on other sites


Ads by Google:

Sorry about typos and or poor grammar. Big posts aren't meant to be made on phones.

0

Share this post


Link to post
Share on other sites

Big posts aren't meant to be made on phones.

:blink:
0

Share this post


Link to post
Share on other sites

:blink:

Well, it wouldn't have been bad, but I was using my wife's phone and her phone's keyboard isn't nearly as accurate as mine is.

0

Share this post


Link to post
Share on other sites

I have nothing but admiration for your phone keyboarding skills. As a mature lady with big hands that tend to run arthritic, those keyboards do not hack it for mr, plus my long fingernails :rolleyes: to balance out the swollen stubbiness

But back to your problem. How long do you say you and your wife have been friends??? Did she not tell you her problems before this? Or did you not listen? Or did you not not think they had any application to your life up till now?? :blink: Or all of the above?

Yes, it does sound like you have a problem with gluten. Yes, I think you should find out whether you have celiac disease - this will be your last chance before going gluten free :o You do need to be eating gluten for the testing to be accurate, but if you are a brand new celiac there is a chance you may not yet have enough antibodies to register a positive on the blood test or may not have done enough intestinal damage for it to show up on the biopsy if they do one for you.

Either way, if I may venture an opinion, knowing that you two are newlly married and who knows how experienced at sharing living quarters, you would be doing your wife a huge favor by not bringing gluten into the house (it wiill make her life a heckuva lot easier, and safer), and it sounds like, whether you test positive or negative, that you will benefit from o gluten free life too -- a win/win situation if ever I heard one. Plus you can kiss each other freely without having to bother with tooth brushing :lol:

Go to your doctor as soon as you get insurance and ask for a full celiac panel. And in the meantime, keep your gluten away from your wife and don't kiss her without brushing your teeth :ph34r:

And by the way, welcome to the forum, Pro(hibit)

0

Share this post


Link to post
Share on other sites




I have nothing but admiration for your phone keyboarding skills. As a mature lady with big hands that tend to run arthritic, those keyboards do not hack it for mr, plus my long fingernails :rolleyes: to balance out the swollen stubbiness

But back to your problem. How long do you say you and your wife have been friends??? Did she not tell you her problems before this? Or did you not listen? Or did you not not think they had any application to your life up till now?? :blink: Or all of the above?

Yes, it does sound like you have a problem with gluten. Yes, I think you should find out whether you have celiac disease - this will be your last chance before going gluten free :o You do need to be eating gluten for the testing to be accurate, but if you are a brand new celiac there is a chance you may not yet have enough antibodies to register a positive on the blood test or may not have done enough intestinal damage for it to show up on the biopsy if they do one for you.

Either way, if I may venture an opinion, knowing that you two are newlly married and who knows how experienced at sharing living quarters, you would be doing your wife a huge favor by not bringing gluten into the house (it wiill make her life a heckuva lot easier, and safer), and it sounds like, whether you test positive or negative, that you will benefit from o gluten free life too -- a win/win situation if ever I heard one. Plus you can kiss each other freely without having to bother with tooth brushing :lol:

Go to your doctor as soon as you get insurance and ask for a full celiac panel. And in the meantime, keep your gluten away from your wife and don't kiss her without brushing your teeth :ph34r:

And by the way, welcome to the forum, Pro(hibit)

Thank you for the warm welcome. I know the way I said it was pretty confusing and probably wrong, but my wife doesn't have it, or atleast we don't think she does. It's my best friend's wife (whom is also my wife's best friend) that I was referring to. I am going to call a doctor listed on this site Monday to see how much it will cost me to get tested. I don't know how much longer I can handle these pains and side effects, so I hope to get in as soon as possible. I feel like every time I eat I am just punching myself in the stomach. By the way, they have heat sensitive nails for your phone now ;) Only reason I know is because I have sold cell phones for most of my so-far adult working life.

Thanks again for your response and welcome :) I appreciate it.

0

Share this post


Link to post
Share on other sites

No worries about the typos, lol, I have plenty with the computer keyboard.....a telephone would be a definate challenge!

Welcome! Here's a few things to consider. If you think this could be a possibility I would make an appt with your doc to speak to him/her. If they decide to test for celiac realize you have to be eating gluten.....going off gluten and then testing will mess up your test results. However, that said, the testing process is not real accurate and if you have been reading you may have come across that.

Something to think about too is if it was dairy or gluten that you think was bothering you, it could be one of both. On your oown you can try an experiment.....take both dairy and gluten out of your diet for about 6 weeks. At the end of that time try one while you continue to avoid the other and see if the one you are trying bothers you. Once you ahve your answer on that one then stop eating that food, try the other. It is a good way to see which one, or both, are giving you issues. You may have a gluten intolerence and not celiac too. I have 2 adult daughters on gluten-free/dairy free diets....neither ever tested but seeing how one does vs the other it would be my guess one has celiac and the other in gluten intolerent.

Good luck to you!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,918
    • Total Posts
      919,629
  • Topics

  • Posts

    • Weird things people have said
      You are right Dania, you cannot have "mild Coelic" disease and you cannot eat "a bit of gluten here and there" if you've been gluten free for a while. Coelic disease is a lifetime commitment to being gluten free, even if you don't have symptoms, it is still damaging the villi in the gut, which can lead to more serious health problems, (not that Coelic disease is not serious, because it is).  Some people may question whether it is safe to use the same colander as those cooking gluten, but it depends how well it is washed up as it is quite easy to miss bits. Personally, I bought a new one and I would definitely not use the same sieve as the mesh is far too tight not to collect  small amounts of gluten. I'm not too surprised at doctors not knowing all they should know about Coelic disease, it's the same here in the UK where Coelic UK actually advise doctors on the disease. 
    • Depression / anxiety issues
      Hi Chris, haven't had a chance to read the whole conversation but regarding dairy, if you are suspicious of something, drop it for some time and see. You are still healing so maybe dairy is bothering you now. Also look at the nightshades, corn, dairy, soy, and eggs. I had a horrible time last year. I had muscle twitches, brain fog, pain, was tired,etc. I searched online and decided to drop all of those things I mentioned above. I am not sure what bothered me since I dropped them all at once but i slowly began feeling better. Now, i reintroduced eggs again and sometimes have lactose free milk with my coffee. I recommend eating salmon, tuna, bone broth soups, using olive oil and coconut oil and not eating much or not at all processed food even if it is marked gluten free.
    • Weird things people have said
      I've had people say strange things about celiac to me lately... Like someone said, "Oh I'm just a mild celiac so I don't have to worry about cross-contamination." And then someone else said that they're celiac but things have calmed down now so they can have a bit of gluten here and there. And I told my doctor that back in 2014 I thought I had been gluten free but I actually wasn't because I had been repeatedly glutening myself with an old colander. And he just looked at me like I was insane, like a colander?? Sure... I'm not crazy, right? Even if you have no symptoms you have to avoid cross-contamination because you can be doing damage internally right? You can never have 'just a bit'. And a colander is a big source of cross-contamination right?? I know all this but why do these other people not? Why does my doctor not know? So confusing and spreading misinformation... And then they look at me like *I'M* crazy.
    • fructose malabsorption and gluten intolerant
      Look up FODMAPS.   That might clarify things for you.  There really are a lot of diet recommendations so make sure you bring a list of questions regarding foods to your doctor's  and dietician's appointments.  
    • Recovery?
      Thank you for sharing those web sites. I will look at them. We have been gluten free since December so it's been a while. Once, he had a gluten free beer, the kind that they take the gluten out, and his legs felt very heavy and had a more difficult time walking. I really don't want to experiment.  Although I am very careful about what we eat, I am concerned that some of our medication could contain gluten. Is there any easier way to tell if medication has gluten. I did find a website which listed drugs and known gluten but every drug was on it or was determined to be gluten free
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      60,963
    • Most Online
      1,763

    Newest Member
    Tams67
    Joined