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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Gluten Migraine
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11 posts in this topic

Hello there

Just wondered if anyone else gets this.

I call my severe headaches Migraine but I don't get the flashing lights that I know some people get. I have a terrible headache that feels like my head is in a vice and it lasts for 3 to 8 days so quite significant then :blink: !! When I was in my teens and twentys I had permanent headache to varying degrees and was very rarely without one. I don't get them so often now - in fact only when glutened.

Along with them I get awful nausea, feeling spaced out and occasionally as if my head is hot. My DH (which is now mainly scalp only) gets worse and my whole head feels sore.

These headaches seem to make my hair fall out - honest :o .

Also they make my pupils really small which also causes some light sensitivity - anyone else have this?

Once the actual headache has gone my brain feels bruised and foggy.

Eating anything makes it worse and I have also thought that taking painkillers can aggravate it !!

My stomach won't take any disprin/asprin based painkillers nor codeine so I can only use paracetamol.

They don't get rid of it anyway so I don't usually take anything.

I know I have to sort out cc issues but I have one of these headaches now and just wondered if anyone has any advice please?

(Hope this is in the right section.

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I went gluten free because of my headaches. They weren't quite like yours, but I'd get them every afternoon, like clockwork. They were always on the back of my skull, on the right side. Those lasted about a year, until I went gluten free, and they were gone.

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I used to get gluten migraines also. They did get milder as time wore on. I also have significant hair loss when glutened which still is as bad as it was at diagnosis so I don't think it was related to the migraine but more to the autoimmune effect of the glutening.

If you still have DH issues with your scalp are you making sure your hair care products are gluten free? You should also limit iodized salt for a while as the iodine will help keep the antibodies active.

I hope things improve for you soon.

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Hello there

Just wondered if anyone else gets this.

I call my severe headaches Migraine but I don't get the flashing lights that I know some people get. I have a terrible headache that feels like my head is in a vise and it lasts for 3 to 8 days so quite significant then :blink: !! When I was in my teens and twentys I had permanent headache to varying degrees and was very rarely without one.

...

I know what you mean. Head-in-a-vise was one of the names I had for the headaches pre-gluten-free.

(Ball-peen headache & pressure-cuff-helmet headache are more)

And I too have characterized them not as daily headaches plural, but one looooonnnng headache lasting yrs. :angry:

That said, it finally changed when besides gluten-free, I stopped dairy & soy.

Though dammit I've got a bit a headache right now - at least nowhere near the type that gets a name. ;)

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Thanks so much for your replies - have used this forum as a guest for about 18 mths and the advice and humour has helped enormously. With the majority of posts I could put my hand up and say "that's me too!" What a relief!

As for the headache (had me up in the night)this time it is part careless/part self inflicted - I am the slowest learner I know :ph34r: .

Had long believed that the hairloss was bad with headaches and I am now sure it is, like you say Raven, from the autoimmune attack caused by the gluten. I would say that since going gluten free Feb 2011 the hairloss has started regrowth when I cut out soya and dairy (coffee exceepted) around New Year 2012. I think soya causes it too and makes me almost as ill as gluten.

Have struggled lately (why I joined the forum) because I seem to have gotten really resentful about the goalposts being changed with what I can eat. I am definitely super sensitive bracket.

Use wheat free hair care and skin care - otherwise terrible itching and soreness. Have had DH on scalp since teens (used to be on shoulders, buttocks and arms) but now only scalp. Never gone completely but varies and can be really bad. I know immediately if a product contains gluten!!!

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Have you talked to your doctor about the headaches? There are all sorts of meds they can give you to try to either abort the migraine attack or at least make it less miserable. For example, Midrin makes my headaches much more tolerable. Obviously you need to get the CC under control but there is no reason to suffer through the migraines from a mistake on the diet when meds might help make them be more tolerable.

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Hi,

I just posted a question very similar to this. I also get severe migraines and nausea when I accidentally eat something that's been contaminated with gluten. I have had these as long as I can remember, and even got white matter brain lesions from them. I have done all types of treatment including medication, herbal remedies, pain killers, bio feed back therapy and none of it seems to help. The only mild help I get is laying in bed in the dark, drinking lots of water (if i can keep it down) I also do a mix of ibuprofen and imitrex. It does not take away the migraine, but it takes it down to a level that I don't feel my head is going to explode. Wish I could be of more help. Good luck!

J

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I too have the Migraines......cannot move head due to severe pain. Feels like an ice pick on the left temple. Also had daily headaches for years from about 14 yrs on...that I can remember. I was just diagnosed with hypothyroid which seems to help with new meds but it just started again. Nothing seems to take the pain away. It will hit at midnight and go all night and you cannot get any relief. I am unable to take much in meds especially narcotics. I take two Diazepam a day to help the muscle spasms but this is different. I have allery headaches, stress headaches, gluten headaches, thyroid headaches..........one big fat headache every day!!!!!!!!!!!!!!!! I am not glad you have them, but relieve I am not the only one! They are debilitating and my work has declined because of them. Any words of wisdom is helpful!~

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Hello there

Just wondered if anyone else gets this.

I call my severe headaches Migraine but I don't get the flashing lights that I know some people get. I have a terrible headache that feels like my head is in a vice and it lasts for 3 to 8 days so quite significant then blink.gif !! When I was in my teens and twentys I had permanent headache to varying degrees and was very rarely without one. I don't get them so often now - in fact only when glutened.

Along with them I get awful nausea, feeling spaced out and occasionally as if my head is hot. My DH (which is now mainly scalp only) gets worse and my whole head feels sore.

These headaches seem to make my hair fall out - honest ohmy.gif .

Also they make my pupils really small which also causes some light sensitivity - anyone else have this?

Once the actual headache has gone my brain feels bruised and foggy.

Eating anything makes it worse and I have also thought that taking painkillers can aggravate it !!

My stomach won't take any disprin/asprin based painkillers nor codeine so I can only use paracetamol.

They don't get rid of it anyway so I don't usually take anything.

I know I have to sort out cc issues but I have one of these headaches now and just wondered if anyone has any advice please?

(Hope this is in the right section.

I had 10 years of skull splitting migraines before I went gluten-free. It took a few months, but is well worth it. Before that I took Zomig (zolmitriptan), which was a life-saver. Nothing else helped - not even narcotics touched the pain. I still keep some available for gluten accidents.

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I found a little trick on here that really helped with my headaches till i could figure out what was causing them. Using your finger tips lightly tap on your forehead like raindrops for 2 mins. then take your index fingers find the heartbeat in your temples, press in for 3 seconds then release for 3 sec. continue doing this for 2 mins an see if it doesen"t give you some relief.

I found corn was giving me the migranes, along with nausa an many other gluten symptoms. I have not had a single headache since i gave up corn! Giving up corn is no fun, but it"s way better than being sick an having migranes. You"ll have to do a little research on how to find corn in your food. Here"s a few examples where you will find corn, vitimans, tylenol, pain killers an allmost all pills. iodized salt ect,ect, It may not work for you but it sure worked for me. try an give up corn for 2 weeks an see if it helps. I"m not a doctor an your results may vary, but i am a firm beliver that something your eating is causing your headaches.

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Hi

My migraines (call them that but I don't get flashing lights) are definitely from my stomach and caused by gluten. When younger I was rarely without some level of headache and am glad to say that I only get them now when cc'd. The worst one I had (about 6 years ago) lasted 8 days! I began to worry actually.

If I get one starting now I try to 'drown' it by drinking lots of water and this does help. When I eat anything about 20 mins later the headache gets worse so it is from my stomach.

I have to say that I am sufficiently used to them that I just keep going (fairly driven sort of person). If I try to rest the pain is more concentrated so I have to remain distracted. Outdoors with cool air round my head is favourite although I am cautious with too much exercise because of the pounding effect :wacko: .

Washing my hair seems to help.

Years ago the doc gave me migraine tablets (don't remember what) and I threw up straight away - never took another.

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