Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Frustrated, Upset, Concerned...
0

5 posts in this topic

I've not been feeling good for the past couple of weeks and it's really starting to make me doubt whether I'm on the right path. It seemed to start with a trip I took a month ago when I was cc'd over and over. Well then I pet-sat and received glutteny kisses from 2 dogs as they were still chewing their treats. Then it was my conditioner, then it was the dog shampoo and eating with my hands directly after ( :blink: ) and then the grapes last night (no gluten, just high salicylates). I've been trying to go low sals to see if that helps at all given the array of foods that don't seem to agree with me. It's the only thing that makes sense because my reactions seem to follow no pattern (except that I react to higher sals foods) and sals are cumulative, I've learned. I'm having a really difficult time giving up fruit. If there's one food group I would never want to give up, it would be fruit.

I've been supplementing with vitamin D, B12 and a multivitamin, taking probiotics and digestive enzymes. I'm worried that I'm creating more issues by doing this. I should be feeling better not worse, right?! Some days are fantastic – like amazing... and then this happens. I know I need to give myself time to heal, but I'm worried that I'm doing more harm than good here. It's so frustrating. On top of that my mom is so concerned about all of this and how I'm feeling. It breaks my heart when she asks how I am feeling and I can't tell her that I'm happy, or that what we are doing is working... My dad (who is the gluten eater) went away for a week and I noticed an improvement with my symptoms. Maybe it was just coincidence? I know I could be more careful in the kitchen... :unsure:

I just want to feel better and I don't want to do the wrong things. I feel so clueless about it all.

Thanks for listening.

~Laura

0

Share this post


Link to post
Share on other sites


Ads by Google:

I had some apple cider over the weekend (very high in sals) and I feel glutened from it. If you have a problem with sals, this could be it. I am struggling with the same thing as you right now. Check out the sals thread in the DH forum. There is a lot of great info there.

BTW, your dog is adorable!!! Whats his/her name?

0

Share this post


Link to post
Share on other sites

I'm sorry you're feeling so crappy. :( I've been following some of those threads

0

Share this post


Link to post
Share on other sites

I'm sorry you're feeling so crappy. :( I've been following some of those threads – I don't think I would have figured it out otherwise!

The dog in the avatar is named Honey and the one in my profile picture is Ally – they are mother and daughter. :)

Sweet babies! I love their names.

Hopefully we will both be feeling good soon! Hang in there.

BTW, I can not go near grapes. They leave me feeling glutened from the sals. I find that I can tolerate red apples and strawberries and pears. LIke you said, they add up over time though so I try to limit it to one fruit a day and try to stay away from the high sals ones. (although, I drank liquid sals on sat. in the apple cider) and I can def. feel it.

0

Share this post


Link to post
Share on other sites

I learned my lesson – stay with known safe foods! I seem to be able to tolerate those, too (yay!). Bananas have definitely been a staple.

Very complicated. :huh:

Thanks – you too! :)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,341
    • Total Posts
      920,478
  • Topics

  • Posts

    • As a GI specialty nurse who also has celiac I can tell you that it can not be diagnosed by CT and rarely unless you have severe disease can it be diagnosed by colonoscopy.  Those that have had it diagnosed by colonoscopy have such because their MDs were above to get into the small bowel from the bottom and take biopsys.  Celiac damage is not seen in the large intestine.  Also many people do not have diarrhea, many have constipation or a 50/50 mix between the two.  Celiac has 300 connected symptoms and sometimes no symptoms at all.  It's called the " great pretender" because of this.
    • Okay, thanks! I am 24 but my husband and I don't plan on having kids. However, the more I thought about it, the more I think I should get one for my brother's sake. Especially after my doctor's office called this evening to say my bloodwork tested positive for Celiac. Guess I will be on this forum longer than I thought!
    • You just got diagnosed Celiac and are wondering how serious this really is. What if there is just a little gluten in your food? What if you use the same toaster for your gluten-free bread as your wife's/husband's regular bread? What if those french fries are gluten-free but they fry them in the same fryer as those nice gluten coated onion rings? View the full article
    • Hi, I've never been on a forum before but thought I might find some answers here.  I have never been tested for celiac but a nurse practitioner I saw a few years ago told me she thought I would benefit from a gluten free diet.  At first, I thought I could never do this but after some encouragement I did try.  I did feel much better after going gluten free.  She never tested me for celiac. I turned 50 years old last year and I had a colonoscopy for the first time and had three polyps removed.  The surgeon said that my colon looked like I was a chronic laxative user.  I haven't used a laxative for a very long time.  I was at the time drinking a natural tea to help me to have bowel movements.  Before starting the tea I had always had difficulty with bowel movements and never had them once a day but with the tea I was able to go once a day. At the end of last month I developed severe pain after I would eat (I had my gallbladder removed at the age of 19).  One night the pain got so bad my husband had to drive me to the ER.  My liver functions were high as well as a few other things.  They did a CT scan of my abdomen and pelvis that showed wall thickening of my transverse colon and minimal irregularity involving the transverse colon.  My descending and sigmoid colon were collapsed.  There were a few tiny mesenteric lymph nodes present on the right.  They diagnosed me officially with colitis but said that most likely I had a gallstone (even though I don't have a gallbladder) that had come from the liver and had gotten stuck in the common bile duct (it did not show up on the CT scan).  I usually have a high ferritin level too.  I've been home from the hospital stay for about a month now and still have tenderness in the epigastric area. Some of this may not have anything to do with celiac but was wondering if anyone has been diagnosed with celiac by CT scan or colonoscopy or if anyone has had the same problems that I have had and found out what has caused it.  I cannot see the gastroenterologist who saw me in the hospital for a couple of months.  Can you have celiac and not have diarrhea as I am just the opposite? Any help would be appreciated!  Thanks!  
    • I had an acne flair up after going gluten free but it ended up improving and some long-term back acne I had been dealing with actually went away.  I think going gluten free was a shock to my system and at first I actually felt worse but after about a month things got better. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,411
    • Most Online
      1,763

    Newest Member
    Aly46
    Joined