Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Ladies, Did Anyone Notice A Change In Your Menstrual Cycle?
0

12 posts in this topic

Hi!

I am 7 months post-diagnosis...I'm also 40.

I am getting really sick the day or 2 before my cycle starts. Terrible pain in my left side & back...up most of the night. I had blood work done last week to check thyroid, vitamin levels...about 12 things. Everything is normal. Next week I am doing a "natural" test...urine & saliva to check hormones, adrenal fatigue, etc.

So, my question is, can the trauma on the body from Celiac cause changes in menstrual cycle? I'm not sure how long I was an undiagnosed Celiac.

My other question is one from fear...until I got sick this Fall, I was pretty healthy(so I thought). I have had lots of tests done...MRI's, CT scans, 4 endoscopys(I had a telescoping intestine along with the damage in my intestine). I am trying to be at peace with my body healing. I am getting better, but I still worry that the doctors didn't find everything. I never used to be like this & I don't want to turn into a hypochondriac. Has anyone else experienced fear during this healing process? I especially feel fearful when I have an off day.

By the way...haven't baked with regular flour anymore & am logging food.

Thanks...

0

Share this post


Link to post
Share on other sites


Ads by Google:

Wow. Just. Wow. I'm newly diagnosed, age 41, and was going to ask the same thing! I definitely notice a change - about 4 days before my cycle starts I feel pain in the area where my Dermatitis Herpetiformis rash :ph34r: "lurks" on my neck. Sometimes the DH will erupt into the rash. My skin gets super itchy all over, my scalp burns on fire, I feel like I'm being pin-pricked a thousand times over and over all night long in different areas, and really bad "brain fog". The worst is the disturbingly heightened sense of smell. It's so bad that I have to avoid all fragranced products at all times!

I don't know if it's changing hormones (pre-menopause), poor nutrition or simply from having Celiac.

I too worry about being labeled hypochondriac. None of my circle has any knowledge of Celiac.. To them I look fine but they don't know how miserable I feel. I also have a fear of being alone because when the DH flares I feel so sick with cognitive symptoms that I can't think well enough to drive my car.

I am comforted to know i'm not alone in this. I was so pleased and relieved to find this forum because I don't feel so isolated. It's a gold mine to me. I hope others will give their insight into this topic.

0

Share this post


Link to post
Share on other sites

Wow. Just. Wow. I'm newly diagnosed, age 41, and was going to ask the same thing! I definitely notice a change - about 4 days before my cycle starts I feel pain in the area where my Dermatitis Herpetiformis rash :ph34r: "lurks" on my neck. Sometimes the DH will erupt into the rash. My skin gets super itchy all over, my scalp burns on fire, I feel like I'm being pin-pricked a thousand times over and over all night long in different areas, and really bad "brain fog". The worst is the disturbingly heightened sense of smell. It's so bad that I have to avoid all fragranced products at all times!

I don't know if it's changing hormones (pre-menopause), poor nutrition or simply from having Celiac.

I too worry about being labeled hypochondriac. None of my circle has any knowledge of Celiac.. To them I look fine but they don't know how miserable I feel. I also have a fear of being alone because when the DH flares I feel so sick with cognitive symptoms that I can't think well enough to drive my car.

I am comforted to know i'm not alone in this. I was so pleased and relieved to find this forum because I don't feel so isolated. It's a gold mine to me. I hope others will give their insight into this topic.

I am 40 and recently diagnosed too! Must be a common age for diagnosis. I got terrible headaches and leg cramps during my recent cycle... Never had migraine type symptoms before. While the nausea which was my worst celiac symptom has improved dramatically I seem to be getting a bunch of other aches and pains. Ugh!

0

Share this post


Link to post
Share on other sites

Hi, I'm 25 and and am finally gluten free all the way. My last cycle was a week delayed and lasted like 14 days which never happens. I am usually always on the same day every month so I don't know if it's because of celiac or what. Maybe a celiac pro could answer this?

0

Share this post


Link to post
Share on other sites

I noticed a change, but it was an improvement. My PMS symptoms got better, but strangely, my lymph nodes under my arms get swollen and painful in the days before. Weird, but after a few months, the pattern has repeated consistently. Not sure if changes are due to my age (45) or being gluten free (1 year).

However, I recently went GRAIN FREE (it was easy since I had already given up all the good stuff like real donuts and brick oven pizza crusts) and I had zero PMS symptoms - I was actually taken by surprise when my cycle started because I had none of the usual "clues." I have read that a low-carb diet can do that so I'm not sure if it is the elimination of all grains or the resulting total lower carbs that did the trick but I'm not complaining.

I felt much better after going gluten free, but I feel absolutely GREAT being grain free.

Cara

0

Share this post


Link to post
Share on other sites




I'm afraid all the time that the docs have mised somehing. I am two and a half mos. gluten free and not sure how much I have improved. I feel like the docs just assume that I am or will improve...same for others around me. This thing is a real beast...

0

Share this post


Link to post
Share on other sites

Hi. I'm glad someone posted this. I've noticed my cycle actually improving. My first cycle sans gluten was a little rough and two days early but I had been on tons of antibiotics pre-diagnosis and my doctor said it was normal to be off. Then, I leveled back out to my normal schedule and my PMS has been lots better. I knew my cycle was coming but the backache, cravings and irritability didn't come until my cycle started. Cycle length has been the same. I've heard that going gluten-free can actually help stabilize hormones and I'm hoping so. I'd really like to try for a baby here in the next year to year and a half.

0

Share this post


Link to post
Share on other sites

Hi!

I am 7 months post-diagnosis...I'm also 40.

I am getting really sick the day or 2 before my cycle starts. Terrible pain in my left side & back...up most of the night. I had blood work done last week to check thyroid, vitamin levels...about 12 things. Everything is normal. Next week I am doing a "natural" test...urine & saliva to check hormones, adrenal fatigue, etc.

So, my question is, can the trauma on the body from Celiac cause changes in menstrual cycle? I'm not sure how long I was an undiagnosed Celiac.

My other question is one from fear...until I got sick this Fall, I was pretty healthy(so I thought). I have had lots of tests done...MRI's, CT scans, 4 endoscopys(I had a telescoping intestine along with the damage in my intestine). I am trying to be at peace with my body healing. I am getting better, but I still worry that the doctors didn't find everything. I never used to be like this & I don't want to turn into a hypochondriac. Has anyone else experienced fear during this healing process? I especially feel fearful when I have an off day.

By the way...haven't baked with regular flour anymore & am logging food.

Thanks...

Do you have nightsweats too??

0

Share this post


Link to post
Share on other sites

Hi, I'm 25 and and am finally gluten free all the way. My last cycle was a week delayed and lasted like 14 days which never happens. I am usually always on the same day every month so I don't know if it's because of celiac or what. Maybe a celiac pro could answer this?

My cycle has been about a week delayed for a few months, and the month before that it was delayed for 3 weeks. I am not a celiac pro, so I hope you get one here who can answer you. I have become gluten intolerant as of two years ago. I get tested for food intolerance every couple years so was fine before then. My periods have been regular all my life other than one time when I was doing a lot of physical activity and under a lot of stress. I'm 43, so it's possibly it's peri-menopausal, but I am in denial about that possibility. ;)

0

Share this post


Link to post
Share on other sites

It was definitely a change for the better for me. By the age of 26 I though I had gone through menopause because I completely stopped having periods. The Dr.s tested me for everything, tried putting me on hormones to try and trigger them ect. I felt like a freak, in some ways it was nice but deep down it frightened me. About two months in to being gluten free I started having periods again. Now almost a year later I am having regular normal periods for the first time since I was around 23. I am currently 32.

I assume it was caused by sever vitamin deficiency.

0

Share this post


Link to post
Share on other sites

I am 25 and recently got diagnosed with celiac, so this is all pretty new to me. I'm trying to get the hang of the gluten free diet. I did notice a change in my menstrual cycle. I have always have very regular cycles with migraines and cramps before I start and this was no different, but the cramps seem to be worse and I have been getting hot flashes which is extremely odd for me considering I keep a jacket in my car all year long! Cara, how hard was it to go completely grain free and is this similar to the paleo type of diet?

0

Share this post


Link to post
Share on other sites

Pre Gluten-Free my period was getting worse and worse. Pain, bleeding heavy and often over a week (not my normal), bloating etc. Within a month or two of going gluten free I noticed most of this had stopped. Now, 12 months later it is 2 to 3 days max. No pain, bloating etc. I am 39. I am considering doing a grain free test.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,124
    • Total Posts
      919,497
  • Topics

  • Posts

    • I can't believe your doctors!!! You have a daughter who is dx'd already! Yet the ped doesn't want to test your other kids unless you have a dx????!!! Are you kidding me???!!! That's absurd!!! They have a first degree relative who has been dx'd with celiac already. There is no need to wait to see what you turn out to be!! And then, and then, and then....don't even get me started on your doctor!!! Does he have brain damage? Oh this is insane & ridiculous!  I have never heard of a disease that doctors are so unwilling to consider or test for OR to diagnose as this one! Usually they are hot to trot to make a dx but say the word celiac & they shake in their boots. Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!!!!!!!!!!!!!!!!!!
    • I had a negative biopsy and was still diagnosed with Celiac. My GI ran a bunch of tests looking for the cause of my 15+ years of diarrhea and the only thing that came back positive was the entire Celiac panel. All very high. So he performed an endoscopy with biopsy. The biopsy was negative. So he ordered a genetic test. When that came back as "high risk" he decided a trial gluten free diet was in order. After 8 weeks my symptoms resolved and my antibodies were back to normal. Since then, follow up testing had shown I have osteoporosis. I am a 40 year old male.  So yes, you can definitely still have it and have significant damage with a negative biopsy. 
    • Pork Fried Rice  (Gluten Free, Dairy Free) Prep time: About 15 minutes Cook time: About 10 minutes Makes: 3-4 servings   Ingredients: 4 Pork Chops,  1/2 teaspoon salt 1/4-1/2 teaspoons black pepper 1/4-1/2 teaspoon red pepper flakes (optional) 1 Tablespoon Coconut Oil 1/2 large or 1 small onion 2 large carrots 2 cloves garlic, minced 1/4 green cabbage, very finely sliced 1-2 heads of broccoli, roasted and salted(optional) 2-3 eggs 2-3 cups cooked white rice  2 Tablespoons gluten-free Tamari or Coconut Aminos Sriracha (optional)   Instructions: 1. Cut pork chops into small bite sized pieces.  2. Next add a tablespoon of coconut oil to a large wok and heat on medium-high heat for a about a minute.   3. Add your chopped pork chops to the wok and season with the salt, black pepper.  Cook for about 6-8 minutes or until lightly browned. 4. While your pork chops are cooking, dice your onion, mince your garlic cloves, chop your carrots and finely slice your cabbage. 5. Once your pork is lightly browned, add all your veggies and stir fry over medium-high heat fro about 5 minutes. 6. Make a hole in the middle of your veggies and add your eggs.  Scramble your eggs with a big metal spatula until they are cooked and then mix everything together. 7. Add your cooked rice and about 2 Tablespoons of Tamari. Mix everything together and cook for another 3-4 minutes or just enough to warm up the rice.
    • Annual celiac antibody testing is, in my opinion (and based on what celiac researchers have published), is critical, especially for a 12 year old.  Life is going to get harder for her.  Peer pressure is huge (I have a 15 year old daughter), and remaining diet compliant can be tough.   In Dr. Fasano's, Gluten Freedom, he discusses a young patient who became ill in high school after being gluten free for years.  His parents were perplexed.  Dr. Fasano took the young man aside and he confessed that while on a date, he didn't want to bring up his celiac disease.  So, he ate pizza.  He was too embarrassed to tell his parents.   My daughter does not have celiac disease.  She was first tested two years ago.  Since she is symptom free, is not anemic and her other lab work is fine, we'll wait to test her in another year.  It all depends on the patient, but every few years, testing is recommended for all undiagnosed first-degree relatives.   It certainly sounds like your younger children should be screened.   I wish you both well!      
    • Perhaps you should consider asking for a GI referral.  You might just skip the blood tests and go directly to an endoscopy/biopsies while you are still consuming gluten.  It is the "gold" standard for a celiac diagnosis anyway!   Here's the deal with going gluten free.  You can do it.  It costs nothing, but you must give it six months or longer.  You'd need to think like a celiac, but it can be done!  I'll tell you my tale.  My hubby went gluten-free 15 years ago per the very poor advice of his GP/PCP and my allergist.  After a year of mistakes and learning, he got well.  It worked!  Thirteen years later, I was formally diagnosed.  (It was a shock as I was only anemic at the time.)  Hubby would be the first to say that I have had way more support from family, friends and medical.  I must say, it's nice to see those lab results.  It really helped me adhere to the diet in the beginning too.   So, you know your medical situation.  You must do what's best for you!   I hope you feel better soon!  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,161
    • Most Online
      1,763

    Newest Member
    Jashan8534
    Joined