Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Where Your Contribution Counts!
    eNewsletter
    Support Us!

Ladies, Did Anyone Notice A Change In Your Menstrual Cycle?


mommyof4

Recommended Posts

mommyof4 Apprentice

Hi!

I am 7 months post-diagnosis...I'm also 40.

I am getting really sick the day or 2 before my cycle starts. Terrible pain in my left side & back...up most of the night. I had blood work done last week to check thyroid, vitamin levels...about 12 things. Everything is normal. Next week I am doing a "natural" test...urine & saliva to check hormones, adrenal fatigue, etc.

So, my question is, can the trauma on the body from Celiac cause changes in menstrual cycle? I'm not sure how long I was an undiagnosed Celiac.

My other question is one from fear...until I got sick this Fall, I was pretty healthy(so I thought). I have had lots of tests done...MRI's, CT scans, 4 endoscopys(I had a telescoping intestine along with the damage in my intestine). I am trying to be at peace with my body healing. I am getting better, but I still worry that the doctors didn't find everything. I never used to be like this & I don't want to turn into a hypochondriac. Has anyone else experienced fear during this healing process? I especially feel fearful when I have an off day.

By the way...haven't baked with regular flour anymore & am logging food.

Thanks...

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Little Feather Newbie

Wow. Just. Wow. I'm newly diagnosed, age 41, and was going to ask the same thing! I definitely notice a change - about 4 days before my cycle starts I feel pain in the area where my Dermatitis Herpetiformis rash :ph34r: "lurks" on my neck. Sometimes the DH will erupt into the rash. My skin gets super itchy all over, my scalp burns on fire, I feel like I'm being pin-pricked a thousand times over and over all night long in different areas, and really bad "brain fog". The worst is the disturbingly heightened sense of smell. It's so bad that I have to avoid all fragranced products at all times!

I don't know if it's changing hormones (pre-menopause), poor nutrition or simply from having Celiac.

I too worry about being labeled hypochondriac. None of my circle has any knowledge of Celiac.. To them I look fine but they don't know how miserable I feel. I also have a fear of being alone because when the DH flares I feel so sick with cognitive symptoms that I can't think well enough to drive my car.

I am comforted to know i'm not alone in this. I was so pleased and relieved to find this forum because I don't feel so isolated. It's a gold mine to me. I hope others will give their insight into this topic.

Link to comment
Share on other sites
Christine0125 Contributor

Wow. Just. Wow. I'm newly diagnosed, age 41, and was going to ask the same thing! I definitely notice a change - about 4 days before my cycle starts I feel pain in the area where my Dermatitis Herpetiformis rash :ph34r: "lurks" on my neck. Sometimes the DH will erupt into the rash. My skin gets super itchy all over, my scalp burns on fire, I feel like I'm being pin-pricked a thousand times over and over all night long in different areas, and really bad "brain fog". The worst is the disturbingly heightened sense of smell. It's so bad that I have to avoid all fragranced products at all times!

I don't know if it's changing hormones (pre-menopause), poor nutrition or simply from having Celiac.

I too worry about being labeled hypochondriac. None of my circle has any knowledge of Celiac.. To them I look fine but they don't know how miserable I feel. I also have a fear of being alone because when the DH flares I feel so sick with cognitive symptoms that I can't think well enough to drive my car.

I am comforted to know i'm not alone in this. I was so pleased and relieved to find this forum because I don't feel so isolated. It's a gold mine to me. I hope others will give their insight into this topic.

I am 40 and recently diagnosed too! Must be a common age for diagnosis. I got terrible headaches and leg cramps during my recent cycle... Never had migraine type symptoms before. While the nausea which was my worst celiac symptom has improved dramatically I seem to be getting a bunch of other aches and pains. Ugh!

Link to comment
Share on other sites
RashyA Apprentice

Hi, I'm 25 and and am finally gluten free all the way. My last cycle was a week delayed and lasted like 14 days which never happens. I am usually always on the same day every month so I don't know if it's because of celiac or what. Maybe a celiac pro could answer this?

Link to comment
Share on other sites
Cara in Boston Enthusiast

I noticed a change, but it was an improvement. My PMS symptoms got better, but strangely, my lymph nodes under my arms get swollen and painful in the days before. Weird, but after a few months, the pattern has repeated consistently. Not sure if changes are due to my age (45) or being gluten free (1 year).

However, I recently went GRAIN FREE (it was easy since I had already given up all the good stuff like real donuts and brick oven pizza crusts) and I had zero PMS symptoms - I was actually taken by surprise when my cycle started because I had none of the usual "clues." I have read that a low-carb diet can do that so I'm not sure if it is the elimination of all grains or the resulting total lower carbs that did the trick but I'm not complaining.

I felt much better after going gluten free, but I feel absolutely GREAT being grain free.

Cara

Link to comment
Share on other sites
sce2012 Newbie

I'm afraid all the time that the docs have mised somehing. I am two and a half mos. gluten free and not sure how much I have improved. I feel like the docs just assume that I am or will improve...same for others around me. This thing is a real beast...

Link to comment
Share on other sites
Jetamio Apprentice

Hi. I'm glad someone posted this. I've noticed my cycle actually improving. My first cycle sans gluten was a little rough and two days early but I had been on tons of antibiotics pre-diagnosis and my doctor said it was normal to be off. Then, I leveled back out to my normal schedule and my PMS has been lots better. I knew my cycle was coming but the backache, cravings and irritability didn't come until my cycle started. Cycle length has been the same. I've heard that going gluten-free can actually help stabilize hormones and I'm hoping so. I'd really like to try for a baby here in the next year to year and a half.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mnicole1981 Enthusiast

Hi!

I am 7 months post-diagnosis...I'm also 40.

I am getting really sick the day or 2 before my cycle starts. Terrible pain in my left side & back...up most of the night. I had blood work done last week to check thyroid, vitamin levels...about 12 things. Everything is normal. Next week I am doing a "natural" test...urine & saliva to check hormones, adrenal fatigue, etc.

So, my question is, can the trauma on the body from Celiac cause changes in menstrual cycle? I'm not sure how long I was an undiagnosed Celiac.

My other question is one from fear...until I got sick this Fall, I was pretty healthy(so I thought). I have had lots of tests done...MRI's, CT scans, 4 endoscopys(I had a telescoping intestine along with the damage in my intestine). I am trying to be at peace with my body healing. I am getting better, but I still worry that the doctors didn't find everything. I never used to be like this & I don't want to turn into a hypochondriac. Has anyone else experienced fear during this healing process? I especially feel fearful when I have an off day.

By the way...haven't baked with regular flour anymore & am logging food.

Thanks...

Do you have nightsweats too??

Link to comment
Share on other sites
Sky Aura Newbie

Hi, I'm 25 and and am finally gluten free all the way. My last cycle was a week delayed and lasted like 14 days which never happens. I am usually always on the same day every month so I don't know if it's because of celiac or what. Maybe a celiac pro could answer this?

My cycle has been about a week delayed for a few months, and the month before that it was delayed for 3 weeks. I am not a celiac pro, so I hope you get one here who can answer you. I have become gluten intolerant as of two years ago. I get tested for food intolerance every couple years so was fine before then. My periods have been regular all my life other than one time when I was doing a lot of physical activity and under a lot of stress. I'm 43, so it's possibly it's peri-menopausal, but I am in denial about that possibility. ;)

Link to comment
Share on other sites
Calmom Apprentice

It was definitely a change for the better for me. By the age of 26 I though I had gone through menopause because I completely stopped having periods. The Dr.s tested me for everything, tried putting me on hormones to try and trigger them ect. I felt like a freak, in some ways it was nice but deep down it frightened me. About two months in to being gluten free I started having periods again. Now almost a year later I am having regular normal periods for the first time since I was around 23. I am currently 32.

I assume it was caused by sever vitamin deficiency.

Link to comment
Share on other sites
Rera86 Newbie

I am 25 and recently got diagnosed with celiac, so this is all pretty new to me. I'm trying to get the hang of the gluten free diet. I did notice a change in my menstrual cycle. I have always have very regular cycles with migraines and cramps before I start and this was no different, but the cramps seem to be worse and I have been getting hot flashes which is extremely odd for me considering I keep a jacket in my car all year long! Cara, how hard was it to go completely grain free and is this similar to the paleo type of diet?

Link to comment
Share on other sites
Di2011 Enthusiast

Pre Gluten-Free my period was getting worse and worse. Pain, bleeding heavy and often over a week (not my normal), bloating etc. Within a month or two of going gluten free I noticed most of this had stopped. Now, 12 months later it is 2 to 3 days max. No pain, bloating etc. I am 39. I am considering doing a grain free test.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Help Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Braver101's topic in Coping with Celiac Disease
      2

      Constant sweating with celiac disease

    2. - Scott Adams replied to Julie Riordan's topic in Traveling with Celiac Disease
      2

      Any ideas for travelling

    3. - trents replied to Julie Riordan's topic in Traveling with Celiac Disease
      2

      Any ideas for travelling

    4. - trents replied to Braver101's topic in Coping with Celiac Disease
      2

      Constant sweating with celiac disease

    5. - Julie Riordan posted a topic in Traveling with Celiac Disease
      2

      Any ideas for travelling


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,490
    • Most Online (within 30 mins)
      7,748

    Vlp
    Newest Member
    Vlp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'm sorry to hear about what you're going through. It must be really frustrating and uncomfortable. Have you talked to your healthcare provider about these sudden sweating episodes? It might be helpful to discuss this with them to rule out any other underlying issues or to see if there are specific strategies or treatments that can help manage this symptom. Additionally, staying hydrated and wearing breathable clothing may provide some relief. 
    • Scott Adams
      I am not sure where you are going, but we have articles in this section which may be helpful: https://www.celiac.com/celiac-disease/gluten-free-travel/ 
    • trents
      There are supplements available that can help breakdown minor amounts of gluten such as you might experience with cross contamination when dining out and you order gluten free items from a menu. But they will not help when larger amounts of gluten are consumed. One such product that many on this forum attest to as having helped them in this regard is GliadinX. The inventor of GlidinX is one our forum sponsors so you should know that.
    • trents
      There is such a thing, believe it or not, called gluten withdrawal. Gluten has addictive properties similar to opiates. I know it sounds bizarre but research it. Also, are you compensating for the loss of vitamins and minerals you were getting from the FDA mandated fortified wheat flour products you were formerly consuming?
    • Julie Riordan
      Just wondering can anyone help me out.heading on holidays and don’t really know what expect.if I get glutened are there tablets that you can take
×
×
  • Create New...