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Help Me With My Initial Blood Tests Please!
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6 posts in this topic

I'm 99% sure I have Celiacs but I need some confirmation help because I know it is easy to misread tests. You see, my new naturopath is out of town for a week and I kind of pressured the receptionist to fax me my bloodwork from my initial appointment a week ago because I didn't want to wait 2 weeks to find out if my anemia is better and how my thyroid is doing. I worked for years in a naturopathic practice as a medical assistant so I am familiar with basic test results.

I was shocked to see these high and positive numbers on the Celiac tests! I don't know much about Celiacs other than my research today and the obvious gluten-free diets that are connected to the disease. But now that I read about symptoms it describes me SO well.

Here are my results if anyone can help confirm.

Celiac Serology-

TT IgA- 129.6 H U/mL (>10.0 is positive)

Gliadin (Deamidated Peptide) IgA- 113.8 H Index (>30 mod to strong positive)

Gliadin IgG- 57.5 (>30 mod to strong positive)

Reticulin IGA antibody screen with reflex to titer= POSITIVE 1:40

Endomysial antibody screen with reflex to titer= POSITIVE 1:160

I also have low platelets, low vitamin D (I take 10,000IU a day!), low thyroid, low iron

Thank you for any interpretation/advice you can provide!

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Well... I am no expert but those results look very positive. My ttg numbers were lower and the doc had no doubt it was celiac disease.

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Wow, you are celiac without any question. You could ask for a biopsy, but there isn't much point. Endomysial IgA and deamidated gliadin IgG are both better than 98% specific, and you are high positive on both tests. EVERYTHING is positive so there's really no question of lab error either.

Welcome to the gluten-free club. All the cool kids are here. B)

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I'm 99% sure I have Celiacs but I need some confirmation help because I know it is easy to misread tests. You see, my new naturopath is out of town for a week and I kind of pressured the receptionist to fax me my bloodwork from my initial appointment a week ago because I didn't want to wait 2 weeks to find out if my anemia is better and how my thyroid is doing. I worked for years in a naturopathic practice as a medical assistant so I am familiar with basic test results.

I was shocked to see these high and positive numbers on the Celiac tests! I don't know much about Celiacs other than my research today and the obvious gluten-free diets that are connected to the disease. But now that I read about symptoms it describes me SO well.

Here are my results if anyone can help confirm.

Celiac Serology-

TT IgA- 129.6 H U/mL (>10.0 is positive)

Gliadin (Deamidated Peptide) IgA- 113.8 H Index (>30 mod to strong positive)

Gliadin IgG- 57.5 (>30 mod to strong positive)

Reticulin IGA antibody screen with reflex to titer= POSITIVE 1:40

Endomysial antibody screen with reflex to titer= POSITIVE 1:160

I also have low platelets, low vitamin D (I take 10,000IU a day!), low thyroid, low iron

Thank you for any interpretation/advice you can provide!

Ummm...not much to interpret here. Your results leave no doubt, you are quite positive for celiac.

Nutritional deficiencies like Vitamin D, Iron, protein, are very common with celiac. Hopefully as you start your gluten-free journey, you will heal well and not need to supplement so heavily.

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I'm 99% sure I have Celiacs but I need some confirmation help because I know it is easy to misread tests. You see, my new naturopath is out of town for a week and I kind of pressured the receptionist to fax me my bloodwork from my initial appointment a week ago because I didn't want to wait 2 weeks to find out if my anemia is better and how my thyroid is doing. I worked for years in a naturopathic practice as a medical assistant so I am familiar with basic test results.

I was shocked to see these high and positive numbers on the Celiac tests! I don't know much about Celiacs other than my research today and the obvious gluten-free diets that are connected to the disease. But now that I read about symptoms it describes me SO well.

Here are my results if anyone can help confirm.

Celiac Serology-

TT IgA- 129.6 H U/mL (>10.0 is positive)

Gliadin (Deamidated Peptide) IgA- 113.8 H Index (>30 mod to strong positive)

Gliadin IgG- 57.5 (>30 mod to strong positive)

Reticulin IGA antibody screen with reflex to titer= POSITIVE 1:40

Endomysial antibody screen with reflex to titer= POSITIVE 1:160

I also have low platelets, low vitamin D (I take 10,000IU a day!), low thyroid, low iron

Thank you for any interpretation/advice you can provide!

Whoa!! I have never seen such positive test results for Celiac! No doubt about it, you have Celiac. Are you going to have the biopsy? I would think the only reason to do one would be to see how much damage there is, definitely not for confirmation of Celiac. You got it! Welcome to the club! :)

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Thank you all! I feel so lucky to have found this out. If I'm going to have a disease, this is the one to have. 100% treated by food? Are you kidding me? No drugs, therapy, procedures, surgeries... Instead of always treating all these other ailments I have which are ALL Celiac symptoms, I can actually heal myself at home. Potentially heal all the ailments with one treatment. Incredible.

Since I haven't been able to talk to my doctor I have another question...

I have been gluten free since reading my results and I want to do a healing type of cleanse (I had gotten it last week before I even knew about having Celiacs). The cleanse is made up of bentonite clay, ph balancer and whole foods- fruits and veggies.

Should I be waiting to see if my doc wants additional tests before I start modifying my diet and healing my gut?

I'm not sure about the biopsy. I would like to know how advanced the disease is and how much damage I have. It does freak me out that I am that much closer to cancer and other diseases. Does the biopsy give you a number or something?

How long until I start to feel better?

I breastfeed and wonder how that goes along with this. I imagine I have been giving most of the nutrients I absorb to my baby.

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    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
    • Is coffee glutem free or not ?  Always wondered about this ............. got to have my coffee... I am new to this  , very new .........
    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
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