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My Doctor Has My Results

Mnicole1981

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Mnicole1981 Enthusiast
Mnicole1981
Posted

But I have to wait for her call to tell me. Will update as soon as I get the info.

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Mnicole1981 Enthusiast
Mnicole1981
  • Author
Posted

She said that my lab work was normal.

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saintmaybe Collaborator
saintmaybe
Posted

She said that my lab work was normal.

Get copies of all your results. I've many times had things reported as "normal" that were low normal, or even abnormal in the books of other specialists. If they give you a hard time or delay because they "lose" your request, remind them that you are legally entitled to the information. Sometimes threatening legal action is necessary. :angry:

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MitziG Enthusiast
MitziG
Posted

Definitely get a copy of your labs. You want to verify which tests they did. Often you don't get exactly what you think you did!

And regardless of the lab tests, if gluten-free makes you feel better, then you have your answer. You don't need a dr to agree with that!

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Mnicole1981 Enthusiast
Mnicole1981
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Posted

I had scrambled Eggbeaters and a slice of regular toast and I felt awful after eating it. My arms feel like they are on fire.

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saintmaybe Collaborator
saintmaybe
Posted

I had scrambled Eggbeaters and a slice of regular toast and I felt awful after eating it. My arms feel like they are on fire.

Unless you are going in for more testing for celiac, you can eat gluten free. There is a physiologically separate condition called non celiac gluten sensitivity. People with this disorder have the same negative physical reaction to gluten, but often don't have positive antibodies or biopsies. This is because the molecular pathways that control NCGS activate different aspects of the immune system than celiac disease. Nonetheless, the only treatment is to be strictly gluten free, although the outlook is generally much more positive. Stop eating gluten, unless you are getting biopsies taken! I know whereof I speak, because I was just diagnosed by a celiac expert with NCGS.

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Mnicole1981 Enthusiast
Mnicole1981
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Posted

I have an endoscopy scheduled for Thursday morning. I had night sweats like crazy last night. If it is not Celiac, I really hope to find out soon.

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MitziG Enthusiast
MitziG
Posted

At least that is just a few more days! And you don't have to eat any gluten after Wednesday! :D sounds like you definitely are at least NCGI so regardless of the biopsy, ditch the gluten permanently!

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  • Posts

    • Bayb
      Trying to read my lab results

      By Bayb · Posted

      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
    • Aussienae
      Constant low back, abdominal and pelvic pain!

      By Aussienae · Posted

      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain. 
    • trents
      Why?

      By trents · Posted

      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
    • trents
      Why?

      By trents · Posted

      What kind of stool test was done? Can you be more specific? 
    • mishyj
      Why?

      By mishyj · Posted

      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
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