Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

New To Forum With Blood Work Questions...
0

5 posts in this topic

I finally found a good doctor after years of dealing with GI issues. I have been told that it's acid reflux, ulcers, and problems with my gall bladder. When I was at the point were I was sleeping 18 hours a day, running for the bathroom after everything that I ate, could not drive myself anywhere due to the joint pain and muscle weakness, and was thinking death would be kinder, I decided enough was enough. I did some research and realized that celiac's could be my problem. I went gluten free, unfortunately before finding this doctor.

I finally saw him a month ago and I spent about 2 hours in his office discussing all of my issues and symptoms. He ordered 29 blood tests and prescribed all sorts of medications. Last week I went in to get the results of the blood tests. Honestly, I'm completely confused. The celiac test did come back negative. We were expecting that because I had gone gluten free for so long. He did refer me to a GI, who I will be seeing soon. Given my symptoms, I did receive a clinical diagnosis of celiac's.

I should mention my bad cholesterol is good, my good cholesterol is bad, and my triglycerides are 405. I am also pre-diabetic with my A1C being 5.7 and my estimated 3 month glucose at 117. I do suffer from migraines and was diagnosed with Raynaud's. I am lactose intolerant, have acid reflux, and have arthritis in my shoulders. I'm going in for an abdominal ultrasound of my gallbladder in two days. I also an an iron deficiency but am not anemic. I also have pretty bad seasonal allergies.

He was suspecting Lupus but after the blood work came back he could not tell me either way. Instead we would just wait and see. I don't understand the results. It came back Pos Abn, 1:40, and speckled. I guess my question is if I should get a second opinion on this or if I should just leave it alone for right now.

Now that I see this all written out like this, it's a lot. I am a 33 year old woman, two weeks away from her birthday, with too many health issues. Any insight would be greatly appreciated.

0

Share this post


Link to post
Share on other sites


Ads by Google:

I finally found a good doctor after years of dealing with GI issues. I have been told that it's acid reflux, ulcers, and problems with my gall bladder. When I was at the point were I was sleeping 18 hours a day, running for the bathroom after everything that I ate, could not drive myself anywhere due to the joint pain and muscle weakness, and was thinking death would be kinder, I decided enough was enough. I did some research and realized that celiac's could be my problem. I went gluten free, unfortunately before finding this doctor.

I finally saw him a month ago and I spent about 2 hours in his office discussing all of my issues and symptoms. He ordered 29 blood tests and prescribed all sorts of medications. Last week I went in to get the results of the blood tests. Honestly, I'm completely confused. The celiac test did come back negative. We were expecting that because I had gone gluten free for so long. He did refer me to a GI, who I will be seeing soon. Given my symptoms, I did receive a clinical diagnosis of celiac's.

I should mention my bad cholesterol is good, my good cholesterol is bad, and my triglycerides are 405. I am also pre-diabetic with my A1C being 5.7 and my estimated 3 month glucose at 117. I do suffer from migraines and was diagnosed with Raynaud's. I am lactose intolerant, have acid reflux, and have arthritis in my shoulders. I'm going in for an abdominal ultrasound of my gallbladder in two days. I also an an iron deficiency but am not anemic. I also have pretty bad seasonal allergies.

He was suspecting Lupus but after the blood work came back he could not tell me either way. Instead we would just wait and see. I don't understand the results. It came back Pos Abn, 1:40, and speckled. I guess my question is if I should get a second opinion on this or if I should just leave it alone for right now.

Now that I see this all written out like this, it's a lot. I am a 33 year old woman, two weeks away from her birthday, with too many health issues. Any insight would be greatly appreciated.

Welcome!

I think you may be another candidate for Celiac Poster Child of the Month! ;)

What are confused about, exactly? You have to be consuming gluten on a daily basis for a blood panel to be accurate. If you went gluten-free, then don't bother with testing, including a biopsy. You will have started to heal and they won't find anything to back up a diagnosis. But then, they have given you a diagnosis based on symptoms and dietary trial results so that is your diagnosis. You have many of the problems associated with

Celiac. Have they improved on the diet?

My blood work mimicked yours, except for the triglycerides. My bad cholesterol was great, my good cholesterol was 20....really low and I was anemic. My testing for lupus was the same as yours, only much higher and speckled. I don't have symptoms of lupus so I don't worry about it and don't follow up on it. I do have other AI diseases that could produce this result so I deal with the ones I do have and don't sweat any more.

Your inflammatory markers are high and it's most likely from gluten. Gluten produces massive inflammation in the body and it will take time to return to normal. Most of what you suffer from should reverse itself, over time, if you stay strictly gluten-free. Be patient and try not to take a lot of meds. Whatever you do, DO NOT

re-introduce gluten for a definitive diagnosis. GI's like to do this but it will only create further damage and inflammation and set you back on recovery. Don't despair...many of us were the living dead at diagnosis and have made good recoveries. You are young and will recover. If you have questions, ask away! :D

0

Share this post


Link to post
Share on other sites

I should mention my bad cholesterol is good, my good cholesterol is bad, and my triglycerides are 405. I am also pre-diabetic with my A1C being 5.7 and my estimated 3 month glucose at 117. I do suffer from migraines and was diagnosed with Raynaud's. I am lactose intolerant, have acid reflux, and have arthritis in my shoulders. I'm going in for an abdominal ultrasound of my gallbladder in two days. I also an an iron deficiency but am not anemic. I also have pretty bad seasonal allergies.

He was suspecting Lupus but after the blood work came back he could not tell me either way. Instead we would just wait and see. I don't understand the results. It came back Pos Abn, 1:40, and speckled. I guess my question is if I should get a second opinion on this or if I should just leave it alone for right now.

The "Pos Abn, 1:40, and speckled" means you have a small amount of an autoimmune antibody called antinuclear antibodies or ANA, and the pattern is speckled. This link lists the staining patterns and diseases. http://www.fpnotebook.com/rheum/lab/anstngptrn.htm It looks to me like speckled isn't terribly specific, and you would need rim or homogenous pattern for lupus? We have people on the board with ANA that didn't mean much because they can show up with other autoimmunity. You have plenty of it with the celiac and Reynaud's. My mom has them and my doctor doesn't know why but she doesn't seem to have Sjogren's or lupus. Also 1:40 isn't much antibody. High amounts would be 1:160 or 1:320. Seems to me like your doctor shouldn't be diagnosing lupus.

How long have you been off gluten? The low iron, gall bladder issues, joint pain, lactose intolerance and reflux are all celiac symptoms and may be a result of simply not being gluten-free long enough or carefully enough to heal. With severe celiac it can take a year or two to really recover from the autoimmune damage. Also some people need a super-careful gluten-free diet. They just don't heal if they are exposed to gluten cross-contamination at restaurants or eat too many processed foods with traces of gluten. If you're sure you're doing the diet right you may need to eliminate dairy, or possibly corn and other grains.

Obviously you need to be eating a diabetic diet. Getting your blood sugar under tighter control may help how you feel. There is also growing evidence that eating a high-glycemic diet that requires you to produce a lot of insulin worsens inflammation.

0

Share this post


Link to post
Share on other sites

Your cholesterol and blood glucose numbers indicate metabolic syndrome. Gluten-free diet will help but will probably not entirely solve that problem. You might consider eliminating sugar, ALL grains, starchy vegetables like potatoes, yams, sweet potatoes, etc, and also dairy. Check out the wiki on "Paleolithic diet" for more info. I hope you feel better.

0

Share this post


Link to post
Share on other sites

Thank you all for the replies. They did help to answer my questions. I have been gluten free for three months now. I am extremely careful with making sure that there is no cross contamination and I rarely eat out anymore. Actually the only restaurant I eat at now is a Chinese place where we've gotten to know the owner and she personally makes sure that what I get is gluten free.

I have been working hard on eliminating dairy from my diet. I'm doing okay as far as actual milk is concerned but honestly, chocolate is my weakness. Put a bag of m&ms in front of me and 9 out of 10 times I won't be able to say no. I try but it doesn't always work. It's a work in progress.

I'm doing research into low carb foods now, seeing as my doctor recommended that to bring down my sugar level and the triglycerides. He's also given me 4 months to loose 10 pounds. I'm sure that will help as well.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,625
    • Total Posts
      918,382
  • Topics

  • Posts

    • puffiness in face
      The puffiness in my face went down a lot after I went gluten free. Old photos shock me sometimes now! Your doctor should be able to test you for food intolerance? Here in UK I did tests for wheat, nut, mustard etc. You can do a blood test and there's also skin prick tests I think, am sure others here would know more.  Good luck    
    • glutened by lays potato chips?
      Here in the UK I can't eat Lay's owned Walkers crisps as even the ones without gluten ingredients can cause a reaction. I read it was something to do with their production processes. Looks like others have same problems too:  
    • Newly diagnosed and totally overwhelmed
      Don't apologise! Not needed here at least where people know exactly what you're going through. As Cyclinglady says, you're now in a grieving process for the former, carefree attitude to food you've now lost. You may find this helpful in understanding the psychological journey you're on: http://psychcentral.com/lib/the-5-stages-of-loss-and-grief/ It WILL get better. Eating cleanly is very good advice as you heal but you can then find the replacement snacks and treats that are safe to eat.  I now know which chocolate bars are ok, which brands of crisps (chips) are safe etc.  I don't drink now, but I did find there were some fantastic ciders that I could tolerate and you've always got wine! In fact one of the weirder discoveries post gluten was that my past (vicious) hangovers were far more about gluten reactions than the alcohol itself. A cider hangover is a breeze in comparison All the best!  
    • glutened by lays potato chips?
      I ate some baked lays last night and felt very sick all night and haven't been feeling great all day today. Other than that I didn't eat anything different from what I normally eat and there was no risk of cross contamination with anything.. These were the only thing I had that was different. They're labeled gluten free so I figured it would be okay, but I started feeling sick pretty soon after eating them. I'm not sure if it's another ingredient in them or what (and i know it's not the soy).. Has anyone else had a reaction to lays potato chips?
    • Symptoms In Toddlers?
      Welcome Ashley! Here are the current tests.  The DGP versions seem to work a bit better than the TTG in small children.  So, ask for the complete panel (and get it all in one stick....my 15 year still hates to get blood drawn ! http://www.cureceliacdisease.org/screening/ Your doctors are wrong!  They must be reading old medical text books.  Not all kids or people have failure to thrive!  You can even be symptom free!. I was anemic and had no intestinal issues when I was diagnosed.  celiac disease affects everyone differently and that's probably why so many folks are not diagnosed. Your kids (parents, siblings too) should be tested every few years (sooner if symptoms develop) per all the leading celiac researchers/doctors if a first-degree relative has celiac disease (like you!)  celiac disease can develop at any age! Hope this helps!   
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,717
    • Most Online
      1,763

    Newest Member
    Acomys
    Joined