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How Long A Reaction To Gluten?


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8 replies to this topic

#1 dustynbob

 
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Posted 01 May 2012 - 11:36 AM

One month ago i presented at hospital with severe vomiting and uncontrolled diarrhea. They did every test and decided i had a bacterial infection. I had temp of 104, on and off for days. Two weeks later the Dr put me back in hospital with swollen lymph nodes and temp again, i am still on antibiotics.
The ONLY test that came back positive was the ADA for celiac disease. For 6 months prior i had severe bloating.
I suspected a wheat allergy; however tested (blood) years ago and it came back neg.
I have been off wheat for about 2 weeks. I do eat raw milk butter and drink some (little) raw milk.
My question is, i think i got some contaminated lunch meat (didn't know it contains gluten?) how long will i feel miserable? It has been 3 days.
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#2 ravenwoodglass

 
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Posted 01 May 2012 - 03:15 PM

You are very early into the diet. Have you taken care of all the precautions we need to take in the kitchen? Were all condiments, butter, etc exchanged for new containers that gluten eaters are not using? Have you gotten a new dedicated toaster? Those are essentials as even a tiny crumb will get us. You also need to avoid barley and barley malt, rye and oats not just wheat.
Very few lunch meats contain gluten. What kind did you have? Hormel makes some good lunch meats that say gluten free on the label. Companies like Kraft and ConAgra will label clearly and so will some other companies.
You may be having issues with the dairy. We are often sensitive to either lactose or casien, especially in the early days of healing. Butter should be okay as it is very, very low in both lactose and casien, from what I understand, but some will drop that also.
A reaction from a gluten can take time to resolve. For some it is one or two days but others can have symptoms for much longer. For myself the tummy stuff only lasts a day but the arthritis flare, irritability, brain fog etc keep going for about three weeks.
I hope you are feeling better soon.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#3 dustynbob

 
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Posted 02 May 2012 - 01:31 PM

I never even thought about those things, except the peanut butter as that is obviously got bread crumbs in it.
I have a large family, would it just be more practical to put everyone gluten free? the dairy is gonna be hard, we milk two cows! I will go off for two months and see.
I just can't believe how sick i am, migraines, flu like symptoms. I have had a re occurring not rash but very large pimple like blister; that itches like crazy, bursts then a couple months later is just a scar, and then another one pops up. dh?
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#4 ravenwoodglass

 
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Posted 02 May 2012 - 01:50 PM

I never even thought about those things, except the peanut butter as that is obviously got bread crumbs in it.
I have a large family, would it just be more practical to put everyone gluten free? the dairy is gonna be hard, we milk two cows! I will go off for two months and see.
I just can't believe how sick i am, migraines, flu like symptoms. I have had a re occurring not rash but very large pimple like blister; that itches like crazy, bursts then a couple months later is just a scar, and then another one pops up. dh?


It often is easier to just make the whole family gluten free but you should screen everyone for celiac first. The blistery could be DH especially if the scar it leaves is a purple color. A derm can biopsy the skin next to the outbreak and check for DH. Make sure they are looking for DH though as the lab needs to do a special test to check for it.
If the cows are at your home and they are eating a gluten grain feed or use a gluten grain bedding do be sure to have someone else feed them and change any bedding. The dust from the feed can get you.
You also should get a new strainer for pasta and replace any scratched non-stick pans and wooden utensils. If you grill either get a new one or wrap your food in foil.
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#5 Takala

 
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Posted 02 May 2012 - 02:32 PM

Since you said you're still on antibiotics, make sure that those are gluten free, also. This may require some sleuthing around with calling the pharmacy, manufacturer, and/or distributor.

If they are not gluten-free, call the doctor and get a different kind - sometimes the same thing is available in a different, gluten free version.

Read the instruction label carefully on the antibiotics, and see if it is possible to take some gluten free probiotics or gluten free yogurt at certain safe intervals in between doses. If you're celiac you are likely lactose intolerant because of the damage to the villi (which will heal with time) and the raw milk is not doing you well. I know some types of antibiotics say no calcium for "x" number of hours before or after taking it, etc. Antibiotics are sort of a double edged sword - they can save your life by killing infection, if they don't kill you first. :rolleyes:
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#6 deb445

 
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Posted 02 May 2012 - 07:00 PM

I wholeheartedly agree with the person who posted about glutenfree feed
for your Bessies. I think that it is only natural that what your cows
eat and drink, will effect their milk. Gluten was transferred to my son
when I was breastfeeding.
I can recommend colloidal silver for healing damage to your stomach - and
I prefer it as a natural antibiotic too.
Good luck.
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Gluten free for 5 years. Dairy free for years, but now OK with grassfed dairy.

Grain free for 2 years and now pain free.

A dedicated kitchen, a new passion for whole foods, Paleo inspiration

BLACK SEED and MSM has made a world of difference.

"Life isn't about waiting for the storm to pass, but about learning to dance in the rain..." ~unknown

#7 dustynbob

 
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Posted 02 May 2012 - 09:22 PM

amazing, no way i would have thought of all that thanks.
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#8 dustynbob

 
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Posted 03 May 2012 - 07:58 AM

OK, so i have my cows on grass as i said, but give them corn with molassis, oats and barley. So, this would have gluten. For now, i am off all dairy so i can make a slow transition for my cows. Corn? Oats?
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#9 ravenwoodglass

 
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Posted 03 May 2012 - 08:07 AM

OK, so i have my cows on grass as i said, but give them corn with molassis, oats and barley. So, this would have gluten. For now, i am off all dairy so i can make a slow transition for my cows. Corn? Oats?


You might want to give your vets office a call and ask their advice on what would be best for you and the cows.
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)




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