Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Celiac.com Sponsor:                                    


Photo
- - - - -

Hello Fellow Celiacs


  • Please log in to reply

22 replies to this topic

#1 Gf Princess182

 
Gf Princess182

    New Community Member

  • Advanced Members
  • Pip
  • 19 posts
 

Posted 01 May 2012 - 12:35 PM


Hello everyone,

Well I am new to the site, but I have been gluten free for 2-3 years. It almost seems yesterday that I went gluten-free. I was wondering how everyone else found out they were a Celiac. Anyone want to share stories? Also I was curious how everyone else handled the news.
  • 0

Celiac.com Sponsor:

#2 Mateto

 
Mateto

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 189 posts
 

Posted 02 May 2012 - 04:06 PM


Hello everyone,

Well I am new to the site, but I have been gluten free for 2-3 years. It almost seems yesterday that I went gluten-free. I was wondering how everyone else found out they were a Celiac. Anyone want to share stories? Also I was curious how everyone else handled the news.

Not from a doctor I can assure you :P

When I figured it out, my doctor had merely suggested it and left it at that. I joined this forum then, and got smart!
  • 0
Gluten-free since St George's Day this year :)

#3 Lisa

 
Lisa

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 9,802 posts
 

Posted 02 May 2012 - 04:40 PM

Welcome Princess! I was home bound for several months and was scheduled to see a GI, who diagnosed me through endoscopy. It was a relief to find Celiac and not the dreaded "cancer" word.

I came home and did a search and found this place. I've settled in. ;)
  • 0
Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

#4 Gf Princess182

 
Gf Princess182

    New Community Member

  • Advanced Members
  • Pip
  • 19 posts
 

Posted 03 May 2012 - 02:31 PM

Not from a doctor I can assure you :P

When I figured it out, my doctor had merely suggested it and left it at that. I joined this forum then, and got smart!


Well it's good that you found out. My test came up negative but I was already gluten free. I tried to go back and ended up facing dire consequences. My mom also ended up going on the gluten free diet to be nice and she decided to cheat on the diet. She ended up with a pretty nasty rash.
  • 0

#5 Gf Princess182

 
Gf Princess182

    New Community Member

  • Advanced Members
  • Pip
  • 19 posts
 

Posted 03 May 2012 - 02:35 PM

Welcome Princess! I was home bound for several months and was scheduled to see a GI, who diagnosed me through endoscopy. It was a relief to find Celiac and not the dreaded "cancer" word.

I came home and did a search and found this place. I've settled in. ;)


Thank you for the welcome Lisa. How are you coping with being a celiac? I know that even though I've been gluten free for 3 years it's still really hard.
  • 0

#6 TEDDYbear777

 
TEDDYbear777

    New Community Member

  • Members
  • Pip
  • 6 posts
 

Posted 03 May 2012 - 05:10 PM

I was very very sick Ended up going through the ropes with doctors and Tests, Can't say I enjoyed cameras going in both ends at 18 but it's finally over and I'm getting better! =)
  • 0

#7 Lisa

 
Lisa

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 9,802 posts
 

Posted 03 May 2012 - 06:16 PM

Thank you for the welcome Lisa. How are you coping with being a celiac? I know that even though I've been gluten free for 3 years it's still really hard.

I generally don't have a problem day to day. I can always find "something" in a restaurant to eat.

Do you work or are you at home?
  • -1
Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

#8 Gf Princess182

 
Gf Princess182

    New Community Member

  • Advanced Members
  • Pip
  • 19 posts
 

Posted 04 May 2012 - 01:39 PM

I generally don't have a problem day to day. I can always find "something" in a restaurant to eat.

Do you work or are you at home?


I don't work yet. I just recently moved so I'm looking at getting a job. I can only work part time though, a full time job wears me down really fast.
  • 0

#9 Gf Princess182

 
Gf Princess182

    New Community Member

  • Advanced Members
  • Pip
  • 19 posts
 

Posted 04 May 2012 - 01:41 PM

I was very very sick Ended up going through the ropes with doctors and Tests, Can't say I enjoyed cameras going in both ends at 18 but it's finally over and I'm getting better! =)


I know what you mean, I had the endoscopy done and I cant say I enjoyed it either. It's good you are getting better though.
  • 0

#10 Charli61

 
Charli61

    Community Member

  • Advanced Members
  • PipPipPip
  • 35 posts
 

Posted 24 May 2012 - 04:47 PM


Hello everyone,

Well I am new to the site, but I have been gluten free for 2-3 years. It almost seems yesterday that I went gluten-free. I was wondering how everyone else found out they were a Celiac. Anyone want to share stories? Also I was curious how everyone else handled the news.

My 80 year old Mum got tested, and then when I investigated Celiac for her, it turns out I had most of the symptoms for DH myself :( So, got tested and the rest as they say is history!
  • 0

#11 NickMcKinnis

 
NickMcKinnis

    Community Member

  • Advanced Members
  • PipPipPip
  • 37 posts
 

Posted 04 June 2012 - 04:39 PM

Hello Princess,

I am also new to the site, and have been gluten free for about the same amount of time. For me diagnosis was an extremely drawn out process. I first started showing symptoms of celiac disease when I was in the first grade. I would often feel sick at school and get sent home. However when I went to the doctor, they were never able to land a diagnosis either pointing to anything but celiac. My doctors would come up with things as silly as seasonal allergies or say that I was making it up. I was always very smart when it came to school and so I was always able to keep up until I moved to Cleveland where they have a maximum amount of days you were allowed to miss. So, I took my G.E.D.

Just before I took my G.E.D. and I went to the doctor for problems with diarrhea and my regular doctor had taken off for the weekend forgetting our appointment. I instead saw his partner who made the connection and ordered the blood test which came back positive.

Afterwards, I lived in a state of depressed denial for a few years. My life changed slowly for the better despite the constant glutening and at some point I realized I had something to lose so after a while of feeling sorry for myself and seeing my symptoms grow even worse, I decided that enough was enough and haven't looked back ever since. I still make mistakes but my symptoms seem to be better now. Sometimes I'm not sure though if I have an accurate frame of reference of what symptom free is as I have been living with the symptoms for so long.

Sorry for the essay, It was the first time I have really told the story so openly.
  • 0

#12 jeanzdyn

 
jeanzdyn

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 94 posts
 

Posted 04 June 2012 - 05:11 PM

Welcome to the forum.


For a few reasons I decided to have a colonoscopy. The GI also did an endoscopy. Biopsy with both procedures of course. They also did a blood test. The result was a diagnosis, but how they verbalized that was "we think that maybe you have celiac disease".

I was not surprised by the diagnosis. I had experimented with a rotation diet where I did not eat any bread or pasta for 3 days, and on the 4 day I ate whatever I wanted. So, 3 days off and 1 day on. That relieved my main symptom that was bothering me which was severe, burning itching of the skin. (no rash, no eruptions, no scaly skin, no visible evidence of the itching)

So, I was diagnosed by a gastroenterologist, but I was on my way to figuring it out for myself (after many years of symptoms).
I was never terribly ill, never hospitalized, and for that I am very thankful.
  • 0
What is food to one man may be fierce poison to others. —--Lucretius


I miss bread! But I love Kinnikinnick gluten free pizza crust.


Diagnosed celiac disease: November 2011 (biopsy and endoscopy)
other conditions: asthma, arthritis

#13 Gf Princess182

 
Gf Princess182

    New Community Member

  • Advanced Members
  • Pip
  • 19 posts
 

Posted 06 June 2012 - 03:51 PM

Hello Princess,

I am also new to the site, and have been gluten free for about the same amount of time. For me diagnosis was an extremely drawn out process. I first started showing symptoms of celiac disease when I was in the first grade. I would often feel sick at school and get sent home. However when I went to the doctor, they were never able to land a diagnosis either pointing to anything but celiac. My doctors would come up with things as silly as seasonal allergies or say that I was making it up. I was always very smart when it came to school and so I was always able to keep up until I moved to Cleveland where they have a maximum amount of days you were allowed to miss. So, I took my G.E.D.

Just before I took my G.E.D. and I went to the doctor for problems with diarrhea and my regular doctor had taken off for the weekend forgetting our appointment. I instead saw his partner who made the connection and ordered the blood test which came back positive.

Afterwards, I lived in a state of depressed denial for a few years. My life changed slowly for the better despite the constant glutening and at some point I realized I had something to lose so after a while of feeling sorry for myself and seeing my symptoms grow even worse, I decided that enough was enough and haven't looked back ever since. I still make mistakes but my symptoms seem to be better now. Sometimes I'm not sure though if I have an accurate frame of reference of what symptom free is as I have been living with the symptoms for so long.

Sorry for the essay, It was the first time I have really told the story so openly.


Thank you so much for your story. I am so glad that you shared. When I found out that I might have Celiac I too went through a state of depression. It's shameful to say this, but I felt like a prisoner in my own body. Once I figured out how to eat and got a doctor that cared I started getting better.
It was really hard having to explain things to people so I stopped seeing friends, dating, and going out. It's really hard being Celiac...no one knows what it is, no one understands it, and people think you're weird or contagious. After I realized I was missing out on my life I slowly began to start going out again. It's been 2-3 years since then and now I realize that it was worth missing out on life. I now tell everyone I know about Celiac and try to raise awareness.
I've lived in Oklahoma my entire life and moved away for the first time in my life (to Illinois); I was stunned to find so many gluten free options. Where I live in Oklahoma theres scarcely any gluten free food. I just moved back to Oklahoma and now they are starting to carry more Gluten free foods. Awareness is being raised and that just makes it so much easier on new celiacs. I am glad to hear that you are getting better and that you are able to openly tell the story. That's only the first step, it'll keep getting so much easier with time.
Sorry for the book I wrote lol
  • 0

#14 Gf Princess182

 
Gf Princess182

    New Community Member

  • Advanced Members
  • Pip
  • 19 posts
 

Posted 06 June 2012 - 03:54 PM

Welcome to the forum.


For a few reasons I decided to have a colonoscopy. The GI also did an endoscopy. Biopsy with both procedures of course. They also did a blood test. The result was a diagnosis, but how they verbalized that was "we think that maybe you have celiac disease".

I was not surprised by the diagnosis. I had experimented with a rotation diet where I did not eat any bread or pasta for 3 days, and on the 4 day I ate whatever I wanted. So, 3 days off and 1 day on. That relieved my main symptom that was bothering me which was severe, burning itching of the skin. (no rash, no eruptions, no scaly skin, no visible evidence of the itching)

So, I was diagnosed by a gastroenterologist, but I was on my way to figuring it out for myself (after many years of symptoms).
I was never terribly ill, never hospitalized, and for that I am very thankful.


Thank you so much for sharing. I like to hear how other people have diagnosed and how they are dealing with it afterwards. I am glad you found out though.
  • 0

#15 NickMcKinnis

 
NickMcKinnis

    Community Member

  • Advanced Members
  • PipPipPip
  • 37 posts
 

Posted 07 June 2012 - 01:07 PM

Thank you so much for your story. I am so glad that you shared. When I found out that I might have Celiac I too went through a state of depression. It's shameful to say this, but I felt like a prisoner in my own body. Once I figured out how to eat and got a doctor that cared I started getting better.
It was really hard having to explain things to people so I stopped seeing friends, dating, and going out. It's really hard being Celiac...no one knows what it is, no one understands it, and people think you're weird or contagious. After I realized I was missing out on my life I slowly began to start going out again. It's been 2-3 years since then and now I realize that it was worth missing out on life. I now tell everyone I know about Celiac and try to raise awareness.
I've lived in Oklahoma my entire life and moved away for the first time in my life (to Illinois); I was stunned to find so many gluten free options. Where I live in Oklahoma theres scarcely any gluten free food. I just moved back to Oklahoma and now they are starting to carry more Gluten free foods. Awareness is being raised and that just makes it so much easier on new celiacs. I am glad to hear that you are getting better and that you are able to openly tell the story. That's only the first step, it'll keep getting so much easier with time.
Sorry for the book I wrote lol

I know exactly what exactly what you mean. Social events are definitely hard, and dating is nearly impossible without a disclaimer. My last serious girlfriend was one of my main motivators to go gluten free, she was very encouraging but still didn't take the time to know all the little details. ( I remember her once trying to use hand sanitizer after eating some bread) One thing I would suggest is find yourself a vegan! They understand all the concepts of celiac disease and many resturaunts that offer vegan food also offer gluten free (at least in my area). Glad to hear you are in an area where more options are available. I moved to Cleveland from an extremely small town in Arkansas and had to drive 45 minutes for anything gluten free so I can definitely relate. Here, I even have different stores to pick from and a few resturaunts that I feel comfortable going to.

Going back to social events, would you say your friends understand your disease and how it affects your ability to enjoy yourself in social situations? Sometimes I think mine get it, and other times it's like explaining the disease all over again.

Looks like between the two of us we are going to have the next great american novel... I wish we were getting paid by the word haha
  • 0




0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: