Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Gaps Or Scd? Opinions & Advice Please!
0

4 posts in this topic

Ok I seem to be Extremely confused on this subject..What diet do I go with GAPS or SCD?? From what I'm understanding is GAPS was established on the basis of the SCD. My question though is How do you know which one to go by? I've been reading a lot of success stories with people following the SCD but also finding people who found that SCD didn't work and went on the GAPS vise verca...??? I've been doing a TON of research on the SCD but seem to come out empty handed when it comes to all my questions about the specifics of the diet? It seems as though GAPS is wayyyy easier to find information on as the SCD is not. Does it boil down to one's symptoms? I'm finding that SCD is always mentioned when it comes to Chrohn's, Colitis, etc. I understand that SCD is from the finding's of Dr. Hass for Celiac Disease and that is what's intrigued me to dig deeper on the subject as I am fighting SOOO many underlying problems that going Gluten Free alone has not helped with. Maybe for better understanding of my situation somebody can give me hopefully some Helpful advice with clear understanding.

So let me begin,

3 Years ago my twin sister brought to my attention that she seemed to be suffering from Celiac, well at that point I was 93 lbs and was Extremely sick all the time. Without question I went Gluten Free Instantly as she recommended. I found relief within a few days and after a week I realized I hadn't had the throwing up or gastro problems. I felt A LOT Better.

Well now after 3 years of being Gluten Free I'm no longer suffering the diarrhea, throwing up, acid reflux, etc (unless glutened) although ALL of my other symptoms/problems have not improved what so ever!!!

I'm 24 and on Disability due to the inability to hold down a job. Emberrassing enough to say those words I want and NEED Help More NOW than ever!!! I suffer from a wide range of symptoms, my diagnosis's are: Bipolar II (mainly severe depression), Anxiety/Panic Disorder, ADD, OCD, Borderline Personality, CHRONIC FATIGUE!!! (My Main Concern!), as well as self diagnosed Celiac. Now these are my "Diagnosis's".

The symptoms and theories I have are as follows: Candidiasis (which I believe is more severe than any doctor could see) If I eat sugar I wake up drenched in sweat, get Extremely irritable, Lethargic, and many many more reasons. Also I KNOW I have more food intolerance's but am in the process of trying to figure them out?...

The last 4 days or so my eyes are soo swollen I have to ice them often and put vaseline on my eyelids because they itch so bad and are flaking from being so dry! I'm congested every morning when I wake up, as if I all of a sudden caught a severe cold. My throat feels swollen most of the time, having a hard time swallowing things often. I ache all over, some days are better than others. I'm soooo Extremely lethargic and drained of ANY energy what so ever all I can do is try and stay awake by taking my Adderral as prescribed and drink caffeine just to get through the day.

The thing that's scaring me the most is my Brain!!! I'm totally not with it! I feel daized and confused, very slowed down, slurred speech at times, Very Foggy! I can't remember anything anymore and I constantly feel like I'm not in "reality" almost like an out of body experience...?? It's sooo hard to explain I'm hoping somebody can relate to me on some level :( Also my eyesight use to be perfect vision and now I'm in reading glasses, bifocals, and now going to Eye Therapy b/c of Convergence Insufficiency.

With all this being said, I'm just hoping somebody can steer me in the right direction as far as if GAPS would be better than doing the SCD or SCD better than GAPS or maybe combining them (if that's possible)??? I just really feel as though my gut is soooo messed up I need to heal it to start to even try to figure out what I'm intolerant to or anything else...???

Can Somebody please HELP with answers!!! I would very much appreciate ANY help I could get! Thank You!!

0

Share this post


Link to post
Share on other sites


Ads by Google:

I would go GAPS with all the mental symptoms. You probably need to do GAPS introduction which has a really intensive gut-healing phase. Malabsorption and nutrient deficiency can do really bad things to your mind.

Full GAPS (what you eventually transition to from GAPS intro) and SCD are pretty much the same. GAPS has more emphasis on bone broth is all. Also you can do GAPS dairy-free because the probiotic can be homemade sauerkraut rather than SCD 24-hour yogurt. Make sure you are tolerating the sauerkraut. I am sensitive to tyramine and I do better taking a probiotic pill.

You also need to have your thyroid function tested. Your problems could be partly due to hypothyroidism.

I'd also recommend you look into a supplement for mental illness. I found EMPowerPlus from http://www.truehope.com to be life-changing for my bipolar and anxiety. I take it every day with some fish oil.

0

Share this post


Link to post
Share on other sites

I would go GAPS with all the mental symptoms. You probably need to do GAPS introduction which has a really intensive gut-healing phase. Malabsorption and nutrient deficiency can do really bad things to your mind.

Full GAPS (what you eventually transition to from GAPS intro) and SCD are pretty much the same. GAPS has more emphasis on bone broth is all. Also you can do GAPS dairy-free because the probiotic can be homemade sauerkraut rather than SCD 24-hour yogurt. Make sure you are tolerating the sauerkraut. I am sensitive to tyramine and I do better taking a probiotic pill.

You also need to have your thyroid function tested. Your problems could be partly due to hypothyroidism.

I'd also recommend you look into a supplement for mental illness. I found EMPowerPlus from http://www.truehope.com to be life-changing for my bipolar and anxiety. I take it every day with some fish oil.

Girl you're a Godsend! Really! I appreciate all your help. :) I was reading your profile some and can relate to you with a lot of what you've experienced. I was actually going to ask you about the EMPowerPlus. :) I react so differently to meds than anyone. MY doctors can't understand why...I get ALL the side effects from everyone of them and have never truly found any that work that well. I've learned to just go day by day...:/ I am SOOOO Interested in this product! What would you recommend as far as where to start with coming off my meds and trying this product?...I have many more questions but I won't overwhelm you with them! lol Sorry If I already have. I have a hard time figuring out where to start with anything. The docs say my brain is wired from top down unlike most who think bottom up... :(

On to the other part of my problems... :blink: I'm wanting to start the diet soon and am doing all I can to get prepared..?? :unsure:

You say the GAPS "can" be dairy free but I thought that fermenting the yogurt for the 24 hrs made it so it was basically dairy free from the fermentation it took all the lactose out?...I don't think I'll be able to stomach sauerkraut! :huh: It's one of those things I can't even smell, I've just never liked it. So I'll probably have to take some probiotics...

My doc tested my TSH level in January and the results were 0.88 mIU/L, normal range being 0.34-5.60..?? Is there a different test I can ask for?

0

Share this post


Link to post
Share on other sites

If you're thinking of EMPowerPlus I'd highly recommend you speak to someone in their call center. They're not doctors but they help people transition from meds to EMPowerPlus all the time so they have quite a bit of experience. They're really sweet and supportive too and most of the people in the call center are on EMPowerPlus themselves. It can be a bit of an interesting road becasue you can feel really weird starting the EMPowerPlus. They say it's "detox" but I think it's the unaccustomed flood of vitamins and minerals changing your mental chemistry. Whatever it is, it seems to amplify med side effects so you have to cross-taper your meds and the EMPowerPlus. TrueHope has a lot of tricks and supplements like amino acids that can get you through any trouble you have with the transition and the call center will help you with a protocol.

It took me about three months to do the changeover from meds to EMPowerPlus, a month of cross-taper and two months of feeling really odd. After three months the clouds parted and the bipolar was gone almost like magic. My shrink couldn't believe it. :lol: The only mood swings I've had in the last 5 1/2 years since I started EMPowerPlus were thyroid-related.

As for the diets, dairy-free and lactose-free are not the same. Yogurt is still dairy and it has whey and casein (milk proteins) you can react to.

That TSH is very good so it's probably not thyroid. I'd look more at the food intolerance and I bet GAPS helps.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,395
    • Total Posts
      917,616
  • Topics

  • Posts

    • Sjogren's, Celiac, or both?
      Doing great! Been gluten-free for two years, now. No symptoms, antibodies are almost nil and certainly where they should be. Been glutened really bad twice (ate 4 slices of bread I thought was gluten-free once, and ate pasta I thought was gluten-free once) was in bed for three days each time and felt like crap for a couple of weeks. Learning experiences, not done that in quite a while. 
    • Can treatment for Giardia reverse active Celiac
      I'm not a doctor or expert but I've done a lot of reading and I believe anything that causes major inflammation for the small intestine can cause false positives for celiac antibodies. Sometimes people with Crohn's will have positive celiac tests as well.  I wouldn't be surprised in the least that someone with a bad case of Giardia would come up positive.  Now, eventually, as you fully recover from the giardia infection you should go back to normal levels but if you don't you most likely have Celiac as well.  From what I understand, Celiac doesn't go into remission though it can be latent in people for years. 
    • Sjogren's, Celiac, or both?
      Hey, happy to see your posting, Fenrir.  I hope you are doing well!  
    • Sjogren's, Celiac, or both?
      Well, you do not HAVE to get tested, but since Celiac Disease is genetic and you have kiddos, you should seriously consider the pros and cons. Take for instance, my hubby.  He went gluten-free over 15 years ago per the very poor advice of his GP and my allergist.  "Try giving up wheat and see how you feel."  Well, it worked.  No more sinus infections, feeling achy like he had the flu, etc.  He seriously struggled the first year without a proper diagnosis, but eventually good health became more important than rye bread.  Twelve years later, I was anemic (well I have been all my life)  and went for a routine colonsocopy because all my friends were getting them (the perks of the over 50 club).  During my GI consult he recommended getting scoped at both ends because he suspected celiac disease.  I could not believe it!  But blood tests and my biopsies proved that I had celiac disease.   Hubby will be the first to say that I have had more medical, family and friend support with a formal diagnosis.  He refuses to do a gluten challenge.  His mom was diagnosed with MS and literally died from malnutrition, so we suspect she had celiac disease.  He definitely has a problem with gluten.   Thankfully, my dx has allowed for my daughter to be tested every few years (even without symptoms).  She does not have celiac disease or any other autoimmune disorder yet.  I say yet, because the gene pool for AI issues is huge on both sides.  Good news is that cancer is rare but you never know.   So, this is a decision you will have to make.  An endoscopy requires a much shorter challenge.  Something to consider.  Gene testing too will help rule out celiac disease and might be the first thing to consider as you do not have to be on gluten for that.   I wish you well! 
    • Sjogren's, Celiac, or both?
      Everything you listed above very well could be Celiac Disease and not Sjogren's, but people with one autoimmune disease are at a higher risk of getting another one.  Your GP clearly is working with old knowledge in regard to Celiac Disease. There are probably more people who suffer from constipation from Celiac than loose stools. I know for me I never had diarrhea at all, but I was backed up something fierce.  I also had swollen joints, headaches, abdominal pain, memory issues, high liver enzymes, fatigue and general cloudy head.  Not many of these are symptoms an uninformed Doctor would think to associate with Celiac.  You really have to show up prepared to be your own advocate, tell the doctor that according to many of the GI specialists who work with Celiacs (see University of Chicago's celiac disease Center) these are all symptoms that warrant a proper workup for celiac disease.  It took me 6 months, two biopsies and an unneeded surgery to get diagnosed and that isn't as bad as some. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,530
    • Most Online
      1,763

    Newest Member
    magicangel
    Joined