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Struggling With This


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8 replies to this topic

#1 habbukuk

 
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Posted 01 May 2012 - 05:09 PM

Hi All

Recently found out that I most likely have Celiac disease, and am really struggling.

I'm a food lover, and every day it seems like there is something else I can't have. Even stupid things like finding out I can't drink my favourite beer and thinking, well thats ok I'll have Jack Daniels instead then finding out thats a no go is really getting to me and I'm struggling to cope.

If anyone has any advice re. the mental side of coping with this, it would be really appreciated.

Habbukuk
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#2 pricklypear1971

 
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Posted 01 May 2012 - 05:33 PM

It gets easier. We all have our moments where this seems impossible or incredibly frustrating. It takes a bit of time, but you do adjust and figure out some new favorites and alternatives.

Jack Daniels is gluten free, does that help?

http://www.jackdaniels.com/faq.aspx
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Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

#3 Darn210

 
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Posted 01 May 2012 - 06:21 PM

When my daughter was first diagnosed, I totally overcompensated with the treats. If the kids on her soccer team all got an oreo after the game, then she got a bowl of ice cream. If kids in her class got a handful of goldfish crackers, she got a bag of skittles. I didn't want her to feel deprived. As we progressed, the treats got a more appropriate in size.

I recommend finding a few "treats" so that you don't feel deprived . . . whatever floats your boat . . . really good chocolate, caramel popcorn, the best-looking strawberries even though they are outrageously priced, ice cream floats, etc.

but I will tell you what I would tell my daughter . . . "I still expect you to eat the good food at dinner time." :P
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Experience is what you get when you didn't get what you wanted.


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#4 Lisa

 
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Posted 01 May 2012 - 06:27 PM

Janet offers good anecdotal advice.

You can tweak your diet and feel better and EAT better.

It's a bit of a loss in the beginning, but a greater gain in the long run.

Jack can be in your life too. :rolleyes:

Take a walk around this place. :D
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Lisa

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"Not all who wander are lost" - JRR Tolkien

#5 habbukuk

 
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Posted 01 May 2012 - 07:10 PM

It gets easier. We all have our moments where this seems impossible or incredibly frustrating. It takes a bit of time, but you do adjust and figure out some new favorites and alternatives.

Jack Daniels is gluten free, does that help?

http://www.jackdaniels.com/faq.aspx


That does put a smile on my face! I must say, it's really confusing though because there are a lot of discrepencies in what I am told I can and can't have! Hard to keep up - lol!
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#6 MitziG

 
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Posted 01 May 2012 - 07:42 PM

It isn't easy. No way around that. And in the beginning, it is very hard. But you will grow accustomed to it, I promise. Traveling and social situations will never be as simple again, but it is important to maintain perspective. There are much worse things than this. Celiac is an inconvenience, but good health is truly a blessing!
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#7 habbukuk

 
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Posted 01 May 2012 - 08:11 PM

Some good advice in there. Thanks everyone, really appreciated!
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#8 dani nero

 
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Posted 01 May 2012 - 09:45 PM

Hi All

Recently found out that I most likely have Celiac disease, and am really struggling.

I'm a food lover, and every day it seems like there is something else I can't have. Even stupid things like finding out I can't drink my favourite beer and thinking, well thats ok I'll have Jack Daniels instead then finding out thats a no go is really getting to me and I'm struggling to cope.

If anyone has any advice re. the mental side of coping with this, it would be really appreciated.

Habbukuk


Hang in there Habbukuk! Lucky for us life is not just one path or one door, when some doors get shut we can always open new ones :-) You'll find new things that you like. I learned to appreciate food MORE after going gluten free, because I had to do most of the cooking. Cooking is becoming a passion and with that passion comes great flavors and yum yums!
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Self diagnosed January 2012, and on elimination, low-salicylate & low-iodine diet.
Also G6PD

#9 user853

 
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Posted 02 May 2012 - 05:53 AM

First, I am right there with you struggling. Beer tasting has been a part of my life with my husband for.. well.. ever! So, it is especially hard!

However, I totally agree with this...

Traveling and social situations will never be as simple again, but it is important to maintain perspective. There are much worse things than this. Celiac is an inconvenience, but good health is truly a blessing!


As a young adult cancer survivor, who has lost a sister and many friends to cancer, I am truly happy to have good health.

ALSO - try to focus on all the good stuff that you CAN eat and the can't eats will fall away!

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