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Struggling With This
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9 posts in this topic

Hi All

Recently found out that I most likely have Celiac disease, and am really struggling.

I'm a food lover, and every day it seems like there is something else I can't have. Even stupid things like finding out I can't drink my favourite beer and thinking, well thats ok I'll have Jack Daniels instead then finding out thats a no go is really getting to me and I'm struggling to cope.

If anyone has any advice re. the mental side of coping with this, it would be really appreciated.

Habbukuk

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It gets easier. We all have our moments where this seems impossible or incredibly frustrating. It takes a bit of time, but you do adjust and figure out some new favorites and alternatives.

Jack Daniels is gluten free, does that help?

http://www.jackdaniels.com/faq.aspx

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When my daughter was first diagnosed, I totally overcompensated with the treats. If the kids on her soccer team all got an oreo after the game, then she got a bowl of ice cream. If kids in her class got a handful of goldfish crackers, she got a bag of skittles. I didn't want her to feel deprived. As we progressed, the treats got a more appropriate in size.

I recommend finding a few "treats" so that you don't feel deprived . . . whatever floats your boat . . . really good chocolate, caramel popcorn, the best-looking strawberries even though they are outrageously priced, ice cream floats, etc.

but I will tell you what I would tell my daughter . . . "I still expect you to eat the good food at dinner time." :P

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Janet offers good anecdotal advice.

You can tweak your diet and feel better and EAT better.

It's a bit of a loss in the beginning, but a greater gain in the long run.

Jack can be in your life too. :rolleyes:

Take a walk around this place. :D

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It gets easier. We all have our moments where this seems impossible or incredibly frustrating. It takes a bit of time, but you do adjust and figure out some new favorites and alternatives.

Jack Daniels is gluten free, does that help?

http://www.jackdaniels.com/faq.aspx

That does put a smile on my face! I must say, it's really confusing though because there are a lot of discrepencies in what I am told I can and can't have! Hard to keep up - lol!

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It isn't easy. No way around that. And in the beginning, it is very hard. But you will grow accustomed to it, I promise. Traveling and social situations will never be as simple again, but it is important to maintain perspective. There are much worse things than this. Celiac is an inconvenience, but good health is truly a blessing!

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Some good advice in there. Thanks everyone, really appreciated!

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Hi All

Recently found out that I most likely have Celiac disease, and am really struggling.

I'm a food lover, and every day it seems like there is something else I can't have. Even stupid things like finding out I can't drink my favourite beer and thinking, well thats ok I'll have Jack Daniels instead then finding out thats a no go is really getting to me and I'm struggling to cope.

If anyone has any advice re. the mental side of coping with this, it would be really appreciated.

Habbukuk

Hang in there Habbukuk! Lucky for us life is not just one path or one door, when some doors get shut we can always open new ones :-) You'll find new things that you like. I learned to appreciate food MORE after going gluten free, because I had to do most of the cooking. Cooking is becoming a passion and with that passion comes great flavors and yum yums!

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First, I am right there with you struggling. Beer tasting has been a part of my life with my husband for.. well.. ever! So, it is especially hard!

However, I totally agree with this...

Traveling and social situations will never be as simple again, but it is important to maintain perspective. There are much worse things than this. Celiac is an inconvenience, but good health is truly a blessing!

As a young adult cancer survivor, who has lost a sister and many friends to cancer, I am truly happy to have good health.

ALSO - try to focus on all the good stuff that you CAN eat and the can't eats will fall away!

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       It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety.  I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten.  Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful.  I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor.  I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot.  This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies.  Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills)  very well, and do better on an activated form of vitamin b. I take:
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