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I'm Really Starting Hate The Word Normal :/


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10 replies to this topic

#1 SleepyBunny

 
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Posted 01 May 2012 - 07:15 PM

I've been gluten free for about seven months. Towards the end of last year I found out I was hypothyroid and had a nodule. The nodule tested negative. I've been on 75mcg of levo for the past few months. Two of my main complaints that led to going gluten free was fatigue and c. When I first went gluten free within about 6 weeks they seemed to be improving but then slowly returned. When I went on levo I got very fatigued and broke out. The acne got better (always had problems with it). I'm still having trouble with sleep and still have c. I went to a new dr and had her run every test for my thyroid and whatever else she felt necessary. Her suggestion to my c.....eat more vegetables. :/ When did I say I didn't eat them? And she said to take probiotics twice a day. Tmi alert...in regards to my c the "train" seems to be ready but it just won't leave the station if you know what I mean. Lol I've been reading that a lot of people with c and fatigue seem to get a lot of relief from taking t3. I just want some energy :( and to be able to go. Well I got a call from the drs office (which I missed) they left a message saying my results are "normal" and that was it. So now I have to wait till tomorrow to get the actual results. If everything is "normal" what else can be causing this? :( Sorry for the long message. I'm just so tired of feeling this way. I wanna feel awake :(
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Gluteny - the 8th deadly sin

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#2 pricklypear1971

 
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Posted 01 May 2012 - 08:05 PM

There's a certain amount of fatigue that can be attributed to starting gluten-free, however, thyroid plays a huge part in what you are describing, typically.

I would insist on t3/t4 combo. If your current doc won't rx it, find one that will.

What result is normal? Tsh? What about free t3/t4? Get copies of all your labs and be prepared to find a new doctor.

You deserve to at least try combo therapy.
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Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND
.
Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

#3 SleepyBunny

 
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Posted 01 May 2012 - 08:23 PM

I'll post the results tomorrow as soon as I get them. When I asked her if she'd prescribe be t3 if I needed it she said yes but then pretty much told me in a nice way that she's not going to risk her job prescribing it to me just cos I want it or think I need it. Or just because of maybe things people say online. They must threaten these drs if they prescribe it cos it seems like they are terrified to rx it. The past few times I've had my thyroid levels checked they just checked to ft4 and TSH. Big surprise huh lol. Last time after being on levo they were ft4 - 1.46 and TSH-1.13. This dr said she would test my t3 and for antibodies. What is a normal t3 level?
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Gluteny - the 8th deadly sin

#4 pricklypear1971

 
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Posted 01 May 2012 - 10:07 PM

I believe they want both free t3/4 to be midrange? You need the reference range, too.
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Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND
.
Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

#5 pricklypear1971

 
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Posted 01 May 2012 - 10:09 PM

And there's so much info out there about different people responding to different thyroid meds - whether it's natural or synthetic or combo...that doc is ridiculously uninformed.

You need to dig up reputable publications and drag them in to her.

Then get a new doc after she grudgingly writes your rx.

This might help. It's an. About.com article that summarizes and compares two studies in support of patients preferring combo therapy. Your doc won't give a flip about the about.com article but the studies may be of interest. http://thyroid.about...t3combojcem.htm
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Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND
.
Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

#6 Skylark

 
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Posted 02 May 2012 - 07:09 AM

Which brand of thyroid? A board member found gluten in Paddock. The other brands should be OK, though some people don't tolerate the lactose in Synthroid.
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#7 SleepyBunny

 
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Posted 02 May 2012 - 07:50 AM

I believe I'm taking the Mylan brand. The past few days I've only been taking my levo every other day cos I thought for sure she would change it and I only had a few pills left. So I went to my new drs office to pick up my results.

TSI- 68
TSH- 2.0
FT4-1.41
FT3- 2.6 (range 2.3-4.2)
Thyroid Perioxidase AB- <10
Thyroglobulin AB <20

Ok so my TSH went up. But hey it's normal to her! I'm so frustrated. I haven't slept in like 21 hours. I don't know if this is partially from not taking my med everyday. Lately I feel like I've been sleeping on empty if that makes sense. I can't get in to see this dr till next week. I want to call my endo but they'll prolly make me come in and it'll prolly be a few weeks from now. And i refuse to pay $30-40 to sit there for 2 hours and have him say everything is normal. I want to call him and demand that he adjust my levo and start me on t3. I'm really getting desperate and ready to just give up. I'm tired of not being listened too. Any advice would be greatly appreciated. Please help :(
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Gluteny - the 8th deadly sin

#8 Skylark

 
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Posted 03 May 2012 - 03:52 PM

What was the reference range on the TSI?

Mylan is fine. You can't skip pills though. You're even supposed to take your thyroid about the same time every day.
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#9 SleepyBunny

 
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Posted 04 May 2012 - 08:56 PM

The range was 140<. I haven't taken my levo for the past few days. I met with a dr that runs a program like the one from the author of Why Do I Still Have Thyorid Symptoms? When My Labs Are Normal. He knows I haven't taken it. He said its not good but I'll be fine. He's having me do a saliva test and plans to put me on Armour. I don't really want to take it but if it'll make me feel better I'll suck it up. I really hope this is going to make me feel better.
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Gluteny - the 8th deadly sin

#10 GFinDC

 
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Posted 05 May 2012 - 04:38 AM

C and insomnia are common reactions to food intolerances also. So, just something to keep in mind as it could be another cause. The tricky part is more than one thing can cause a symptom, and sometimes there are several things that cause a symptom. So eliminating just one cause may not resolve the symptom.
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Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul

#11 SleepyBunny

 
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Posted 05 May 2012 - 01:37 PM

This new dr is going to have me fast to detox and reset things. Then it looks like I'm starting an elimination type diet. So if there are any other food allergies I guess I'll find out. Really thinking the insomnia (very recent) maybe stress cos after getting the results from the dr and having her pretty much just say normal I had a breakdown. I'm tired of being tired and tired of people thinking I'm doing this diet for the fun of it. What's fun about eating pasta cheese meat and potatoes all your life just to be told you can't eat them or if you do you better understand crazy ingredient lingo. I will keep an eye on reintroducing foods and look for these symptoms. Hope this goes well.
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Gluteny - the 8th deadly sin




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