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Help Me With These Tesults...please?


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15 replies to this topic

#1 Mnicole1981

 
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Posted 02 May 2012 - 07:19 AM

So I was able to get my detailed labs.

Sodium 141 (135-146)
Potassium 4.1 (3.6-5.2)
Chloride 109 (100-108)
Carbon Dioxide 24 (21-32)
Glucose 80 (70-99)
Bun 9 (6-22)
Creatinine 1.3 (0.7-1.4)
eGFR 61.2 (>60)
total protein 8.3 (6.5-8.2)
albumin 4.0 (3.5-4.8)
calcium 9.5 (8.7-10.7)
bilirubin 0.3 (0.0-1.0)
sgot/ast 17 (10-45)
sgpt/alt <17 (26-65)
alk phos, total 72 (45-132)
Folic acid is high...35.3 (3.0-18.0)
total protein 8.3 (6.5-8.2)
albumin 4.0 (3.5-4.8)

Not sure what is wrong with me. Probably not celiac.
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#2 ravenwoodglass

 
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Posted 02 May 2012 - 07:26 AM

Don't assume because those labs were okay that you are not celiac. Those tests were all fine with me also. Do ask your doctor about the high folate. Are you taking supplements with folate? A high folate can also cause a falsely higher score on the B12 from my understanding, and your B12 levels should be also checked along with your vit D and perhaps some others that I am forgetting. I also don't see a CRP which I think tells you if you have inflammation going on. Someone please correct me on that one if I am wrong.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#3 Mnicole1981

 
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Posted 02 May 2012 - 07:44 AM

Don't assume because those labs were okay that you are not celiac. Those tests were all fine with me also. Do ask your doctor about the high folate. Are you taking supplements with folate? A high folate can also cause a falsely higher score on the B12 from my understanding, and your B12 levels should be also checked along with your vit D and perhaps some others that I am forgetting. I also don't see a CRP which I think tells you if you have inflammation going on. Someone please correct me on that one if I am wrong.


No, I am not taking any supplements. I may have taken a B12 that day. Now I am just freaking out completely.
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#4 IrishHeart

 
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Posted 02 May 2012 - 09:28 AM

There is nothing to freak out about. Those test results show you are within normal ranges. So far, so good. The folate level was high, but it is not tanked, so you are not folate deficient, which is common with celiac. What did the doctor say about that?


and your Celiac panel was.....???
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#5 Mnicole1981

 
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Posted 02 May 2012 - 11:39 AM

There is nothing to freak out about. Those test results show you are within normal ranges. So far, so good. The folate level was high, but it is not tanked, so you are not folate deficient, which is common with celiac. What did the doctor say about that?


and your Celiac panel was.....???


This is all she tested:
AB Gliadin IGA - 3 (0-19 units)
AB Gliadin IGG - 2 (0-19 units)
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#6 IrishHeart

 
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Posted 02 May 2012 - 11:51 AM

I don't think that's a full panel.
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#7 Mnicole1981

 
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Posted 02 May 2012 - 12:20 PM

I didn't think it was either.
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#8 IrishHeart

 
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Posted 02 May 2012 - 12:23 PM

I didn't think it was either.



sorry, hon. Can it be re-done?

When is the biopsy? next week?
  • 1

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#9 Mnicole1981

 
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Posted 02 May 2012 - 12:30 PM

Next Tuesday. I had an ultrasound done today and the tech said things looked normal but I dunno. I was supposed to be scoped tomorrow but the rescheduled it with a colonoscopy for Tuesday.
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#10 IrishHeart

 
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Posted 02 May 2012 - 12:36 PM

Next Tuesday. I had an ultrasound done today and the tech said things looked normal but I dunno. I was supposed to be scoped tomorrow but the rescheduled it with a colonoscopy for Tuesday.


Eat gluten until the biopsy ---as hard as it is to suffer the symptoms.
Let us know what happens.

I would tell the doctor your Celiac testing is incomplete.

The panel includes:


tTG-IgA or tissue transglutaminase-IgA
AGA-IgG or Antigliadin IgG
AGA-IgA or Antigliadin IGA
Total IGA

The presence of tTG antibodies is highly suggestive of celiac disease.

But in some cases (like Ravenwoodglass and me) it can be falsely negative.
  • 1

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#11 Mnicole1981

 
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Posted 02 May 2012 - 12:50 PM

Eat gluten until the biopsy ---as hard as it is to suffer the symptoms.
Let us know what happens.

I would tell the doctor your Celiac testing is incomplete.

The panel includes:


tTG-IgA or tissue transglutaminase-IgA
AGA-IgG or Antigliadin IgG
AGA-IgA or Antigliadin IGA
Total IGA

The presence of tTG antibodies is highly suggestive of celiac disease.

But in some cases (like Ravenwoodglass and me) it can be falsely negative.


I will have another doctor test me for it again.

Off-topic, but was your hysterectomy due to fibroids? My mother now seems to think that is my problem and they are hereditary.
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#12 Lisa

 
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Posted 02 May 2012 - 12:53 PM

Anti-Gliadin (AGA) IgA
Anti-Gliadin (AGA) IgG
Anti-Endomysial (EMA) IgA
Anti-Tissue Transglutaminase (tTG) IgA
Deamidated Gliadin Peptide (DGP) IgA and IgG
Total Serum IgA

The DGP test was added recently to the full panel.
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Lisa

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"Not all who wander are lost" - JRR Tolkien

#13 Mnicole1981

 
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Posted 02 May 2012 - 01:29 PM

Thank you Lisa. I want to say the high folate may be related to the fact that I eat a lot of Rice Chex and they have 50% daily value and I eat them every day, sometimes more than once a day.
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#14 IrishHeart

 
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Posted 02 May 2012 - 01:42 PM

Anti-Gliadin (AGA) IgA
Anti-Gliadin (AGA) IgG
Anti-Endomysial (EMA) IgA
Anti-Tissue Transglutaminase (tTG) IgA
Deamidated Gliadin Peptide (DGP) IgA and IgG
Total Serum IgA

The DGP test was added recently to the full panel.


That's right! Thanks, Lisa.

I wonder why it was not updated on Dr. Fasano's site yet? (That's the one I always take the list from).

One member (meggielynn) had this one done DGP--and the doctor said it was not useful, but when she went to my doc, he thought otherwise.

Deamidated Gliadin Peptide (DGP) Antibodies, IgA: Anti-DGP test is a relatively new test that may be positive in some people with celiac disease who are anti-tTG negative, including children less than 3 years old.

Anti-Endomysial Antibodies (EMA), IgA class: The test is more difficult to do and interpret properly than anti-tTg.
  • 1

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#15 IrishHeart

 
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Posted 02 May 2012 - 02:04 PM

I will have another doctor test me for it again.

Off-topic, but was your hysterectomy due to fibroids? My mother now seems to think that is my problem and they are hereditary.




It was due to those, ovarian and uterine cysts, heavy bleeding, and everything else.

I never carried to term. I lost 5 pregnancies. It was devastating. I was in perimenopause early and had all those symptoms I listed. I was a mess.

You're very young, hon. Maybe a gluten-free diet might correct some things!!
  • 1

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif





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