8 replies to this topic

[Motherbird7]

My first child of seven was tested and I requested that they mail me all information. He is my adopted nephew (my side where the celiac family history is) but has no symptoms. His iron was tested normal. But I could not get a clear answer from the doctor as to what was being tested for celiac. The lab tech said they would be running a series of tests so I was hopeful he was getting both IgA and IgG but my lab result says: Celiac Disease Ab Screen w/Rfx ordered AND Celiac Disease Comprehensive cancelled

Is that second one the test I want to have done for my other children some of whom have symptoms?

Anyway here are his results:

Immunoglobulin A, Qn, Serum result: 55 Range: 58-358 Flags: L

We were told by the clinic that his results were negative.

Thank you.

[frieze]

My first child of seven was tested and I requested that they mail me all information. He is my adopted nephew (my side where the celiac family history is) but has no symptoms. His iron was tested normal. But I could not get a clear answer from the doctor as to what was being tested for celiac. The lab tech said they would be running a series of tests so I was hopeful he was getting both IgA and IgG but my lab result says: Celiac Disease Ab Screen w/Rfx ordered AND Celiac Disease Comprehensive cancelled

Is that second one the test I want to have done for my other children some of whom have symptoms?

Anyway here are his results:

Immunoglobulin A, Qn, Serum result: 55 Range: 58-358 Flags: L

We were told by the clinic that his results were negative.

Thank you.

if that is all they did, there was no celiac testing done. at. all.

[Lisa]

The following are the celiac specific blood tests:

Anti-Gliadin (AGA) IgA
Anti-Gliadin (AGA) IgG
Anti-Endomysial (EMA) IgA
Anti-Tissue Transglutaminase (tTG) IgA
Deamidated Gliadin Peptide (DGP) IgA and IgG
Total Serum IgA

[pricklypear1971]

And if I'm not mistaken, the only test performed is total iga - and it's below normal - which means he needs be tested with the igg versions of the celiac tests.

Low iga is associated with Celiac disease.

[beachbirdie]

My first child of seven was tested and I requested that they mail me all information. He is my adopted nephew (my side where the celiac family history is) but has no symptoms. His iron was tested normal. But I could not get a clear answer from the doctor as to what was being tested for celiac. The lab tech said they would be running a series of tests so I was hopeful he was getting both IgA and IgG but my lab result says: Celiac Disease Ab Screen w/Rfx ordered AND Celiac Disease Comprehensive cancelled

Is that second one the test I want to have done for my other children some of whom have symptoms?

Anyway here are his results:

Immunoglobulin A, Qn, Serum result: 55 Range: 58-358 Flags: L

We were told by the clinic that his results were negative.

Thank you.

Immune globulin A is NOT A CELIAC TEST! What are they doing? Your son is IgA deficient, and as an earlier poster said, he needs to be tested with IgG versions of tests.

[Motherbird7]

I appreciate your responses. I haven't had time to do much research on celiac because I am too busy looking up recipes while figuring out how to eat! lol However, the little I had been able to glean seems to be correct. My daughters have a different doctor so I am hopeful for better communication when they go in tomorrow.

[Motherbird7]

UPDATE:

It looks like I have received more detailed lab results in the mail today for my 13yo son. It appears they did test more than I initially thought but were sent to a LabCorp in NC.

Deamidated Gliadin Abs, IgA: result: 1 range: negative 0-19

t-Transglutaminase (tTg IgA): result: <2 range: negative 0-3

Immunoglobulin A Qn, Serum: result: 55 flag: L range: 58-358

Hemoglobin: 12.8 result: normal range: 11.5-17


So, if I am to understand this....he still needs IgG tested? especially since he is low overall on serum IgA? Or is he okay to accept the negative result for celiac because the tTg IgA is negative which is more celiac specific?

Thanks!

[MitziG]

Because your 13 year old has low IGA, the negative celiac tests are not valid. he has to have IGG testing. As does the 7 year old. That they are both IGA deficient is highly suspicious of celiac as well. Don't let your dr dismiss this. If he will not order the correct tests, find a new dr who is more knowledgeable.

[Motherbird7]

Because your 13 year old has low IGA, the negative celiac tests are not valid. he has to have IGG testing. As does the 7 year old. That they are both IGA deficient is highly suspicious of celiac as well. Don't let your dr dismiss this. If he will not order the correct tests, find a new dr who is more knowledgeable.

Thank you MitziG, I realize I may have caused some confusion. 13yo son is the same one I was originally talking about in this post. He is the first of my seven children, all ages, who will undergo testing. The doctors of the other six children have been receptive to the opinions of those on this forum and have agreed to do the comprehensive celiac panel (still waiting for results on them since they were seen just yesterday and today). Since 13yo has a different doc and was the first to get an appointment, I didn't realize what tests to ask for and apparently his doctor is not as experienced. I will be consulting with her on Monday to see if we can do more bloodwork or take him to one of the other doctors who have been great so far if she is not willing to do it.

Thank you everyone for supporting me through this process!