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High Positive On Igg Elisa Test For Foods I Don't Eat?!


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25 replies to this topic

#1 Carebear

 
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Posted 02 May 2012 - 09:38 AM

Hi Everyone,

I recently took the York 96 food intolerance test because I am having trouble figuring out what foods are bothering me after going gluten free. Here are my baffling results:

1.) Only a low reaction to gluten, when my IgG antibodies on my blood tests from my physician still show that they are 4x the "normal" high (eeek!)

2.) An off the charts reaction to Kidney beans, which I haven't eaten in years! And low reaction to soy and white rice, two foods I react terribly to. I know there is cross reaction to high kidney bean IgGs and other legumes, but WHY the high Kidney bean and no IgGs for soy?

So basically, how accurate were these tests for you? Did you have any really strange results, and did they end being reliable based on your symptoms?

Do you know if these tests will show positives for foods that are cross reactive to gluten, like the Cyrex Cross-reactivity test?

Boy I am confused! Thanks for your help!
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#2 StephanieL

 
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Posted 02 May 2012 - 09:48 AM

If you read into the testing, the accuracy is questionable at best. They talk about cells being destroyed when introduced to XYZ when that's how cells are suppose to act so it isn't really telling anything but that the cells are reacting how they should.

Sorry it wan't more helpful. I know it's expensive.
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#3 IrishHeart

 
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Posted 02 May 2012 - 09:54 AM

My opinion? Do not waste your $$$.

(1) Your erroneous test results speak volumes, don't they? :rolleyes: If the results are supposed to show an intolerance (based on foods that are supposedly triggering antibodies to foods you "flood your system with" and then die down when you remove the offending foods), how does it explain the kidney beans??

(2) There is no scientific evidence of foods cross-reacting with gluten. One study discusses dairy. This subject is hotly debated on here and there is just no validity to it. Search the forum if you want, but none of us who have researched the topic buy into it.

(3) And, a doctor ordered the IgG testing for me --which I paid out of pocket for---and mine showed a SEVERE intolerance to soy --a food I do not eat--and none to gluten and I was a raging Celiac. Wish I had that $$ back, but more importantly, based upon his advice, I lost another 10 months of my life spiraling down in my health.

A recent article discusses IgG testing and says it's a waste of time. The 95% reliability? Not true.


http://www.celiac.co...ns-reliability/
  • 1

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#4 Mom23boys

 
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Posted 02 May 2012 - 11:35 AM

I have a very high positive for a food I have not eaten in over 30 years. The person reading my test said this could show a genetic issue with that food (which I knew for a fact that it was and we had not discussed that yet). Can't speak for everyone but I know my test was right on.
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Shellfish free since 1980
Milk free (all forms) since 1991
Feingold in 2003
First gluten-free round 2007
Now entering full time Gluten free, egg free, almond/peanut free

#5 Victoria6102

 
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Posted 02 May 2012 - 07:10 PM

It doesn't matter if you eat the food or not, what they do is introduce the food to your blood and watch the reaction. And celiac disease is not an allergy or intolerance (although it's placed under the category of gluten intolerance), so a wheat allergy showing or not showing on the test is irrelevant. If you are already avoiding wheat, it won't effect the results. And who needs to worry if you have a wheat allergy show up on the test, cuz you're already avoiding it. And it doesn't test "cross-reactivity", the test tests for intolerances or allergies, depending how you want to categorize it.

I just had this test done, and it showed highly positive for all the dairy, which I know bothers me. I hadn't been avoiding casein but now know I need to. I was only avoiding lactose before. It also showed mildly high on some fruits which I know bother me. I am glad I took the test and found it quite accurate. :) atleast now you know not to ever eat the food that came up positive for you!:)
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#6 Juliebove

 
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Posted 02 May 2012 - 11:32 PM

I had a high reaction to oysters which are not something I eat. Yes, I have had oyster sauce but not in recent years. Oysters are not appealing to me, so no big deal. I can't explain your results.
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#7 tom

 
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Posted 03 May 2012 - 02:35 AM

A recent article discusses IgG testing and says it's a waste of time. The 95% reliability? Not true.


http://www.celiac.co...ns-reliability/


The original article nonetheless included glowing patient testimonials.

The science is incomplete and the article completely ignores the effects of leaky gut, which is what the "celiac pill" from Alba Therapeutics (and Dr Fasano) actually treats.

Page 2 http://articles.chic...ood-additives/2

The 95% claim looks to be from the sales dept of the "florida lab". But if it's 80%, it's not like the test is less valuable to those 80%.

The amazing part to me is that someone's charged someone $5000 for these????! Every time I've heard of these they're a couple hundred at most.

The article's somewhat slanted imho (for one, lumping a quantitative blood test w/ procedural diagnostics thought fringey), and certainly the author isn't sympathetic to make it look like it's thousands of dollars.
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>>>>>>> tom <<<<<<<

Celiac 1st diagnosed as a toddler, in the 60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it" & I was back on gluten & mostly fine for 30yrs.

Gluten-free since 12-03
Dairy-free since 10-04
Soy-free since 5-07

#8 Mom23boys

 
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Posted 03 May 2012 - 03:25 AM

When I read that and the other articles against IgG testing, I got a very strong feel that they were trying to push (scare) people into traditional allergy ( IgE) testing. I have had both IgE, IgG and I believe it was an IgA testing. The traditional allergy test was the least accurate.
  • 0
Shellfish free since 1980
Milk free (all forms) since 1991
Feingold in 2003
First gluten-free round 2007
Now entering full time Gluten free, egg free, almond/peanut free

#9 Di2011

 
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Posted 03 May 2012 - 03:27 AM

I'll give you a somewhat different angle on your results for you to think about. About 3 years ago I spoke with a naturopathy (not a paid appointment - she has a health food store and I was just making general inquiry about what might help my hayfever) and telling her my hayfever symptoms she promptly asked what foods I had cravings for but didnt eat regularly. Two years later these have turned out to be problems for me.
So now three years later I am strictly gluten free, egg free (for the meantime but hope to reintroduce), was dairy free for some time etc.
My DH (dermatitis herpetiformis) has been so bad that I've had to be really serious about food re-introduction.

I've had a long 12 months of experimentation.
I introduce one (and only ONE) food or product in any one/two weeks. It is the only way I can get a real sense of what has affected me. I don't eat out. There are too many variables. I got to the stage where a potential 10 year journey of discovering what works for me -vs- a 2-3 year controlled experiment is better than a lifetime of DH.

Testing hasn't done much for me.. but that is the luck of the draw. Sals (salycilate) intolerance has been a much bigger hurdle for me to deal with than gluten. But (and a big BUT) it has seen a huge improvement in my DH and GI symptoms.
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#10 IrishHeart

 
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Posted 03 May 2012 - 04:33 AM

It doesn't matter if you eat the food or not, what they do is introduce the food to your blood and watch the reaction. And celiac disease is not an allergy or intolerance (although it's placed under the category of gluten intolerance), so a wheat allergy showing or not showing on the test is irrelevant. If you are already avoiding wheat, it won't effect the results.


Introduce the food to your blood?
That is not how the IgG test I had worked.
It was a blood sample, drawn in the doc's office and sent to the lab. The test is supposedly designed to show an intolerance to foods you are consuming.

How else would the body create antibodies to it?

Maybe your test was different from mine?
  • 1

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#11 IrishHeart

 
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Posted 03 May 2012 - 04:35 AM

FWIW, here are Dr. Weil's thoughts on this. (since the maintream medical community does not seem to believe in their reliability). If people feel they are useful, then by all means, they should use them.

"With certain exceptions (such as sensitivities to lactose and gluten, both of which have a genetic basis), food intolerances are often highly individual and mysterious. In some cases, they are due to physical or emotional stress or exposure to environmental toxins rather than a reaction to the foods themselves. Lactose intolerance results from a deficiency of the enzyme lactase, which is needed to digest the sugar in milk. At least one out of 10 people worldwide shares this deficiency and develops bloating, abdominal pain and, often, diarrhea when consuming milk. Gluten intolerance is caused by an abnormal immune response to the major protein in wheat and some other grains.

I discussed the issue of testing for food intolerances with Randy Horwitz, M.D., Ph.D., medical director of the Arizona Center for Integrative Medicine at the University of Arizona, who specializes in immunology. We agree that the only reliable approach to determining food intolerances or sensitivities is to use avoidance and provocative testing - in other words, an elimination diet followed by a "challenge" to see whether a suspect food really does set off a reaction.

Dr. Horwitz notes that when food sensitivities - not true allergies - are a problem, traditional allergy tests such as the IgE RAST blood tests or skin prick tests often yield negative results. He says that in his practice, he has not seen uniformly good results with IgG anti-food blood tests, applied kinesiology (muscle strength testing), or "live blood" microscopic analysis, all of which have been advocated by some practitioners as ways of determining food intolerances. Results "go all the way from questionable to downright useless," he says.

Instead, he prefers to ask patients to keep a record for a few weeks of everything they eat and any symptoms that develop in response to specific foods. This can help narrow the list of foods that may be causing problems. The next step is a defined food elimination diet. This can be an avoidance diet of patient-defined triggers, a "hypoallergenic" diet for four to six weeks, or a rotation diet, in which new foods are introduced sequentially. Once symptoms have been associated with a food or food group, the intolerance can be confirmed with a "challenge" in which the patient is given the suspect food and then watched to see if symptoms develop (This isn't practical when symptoms are severe).

Sometimes you can overcome food intolerances by avoiding the food or foods to which you're sensitive for a few months. Then, you can try reintroducing each food (separately) on a regular basis beginning with tiny amounts. Eat some every day, gradually increasing the portions. With luck, you'll find that you are able to develop tolerance to foods that have previously bothered you."
  • 1

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#12 IrishHeart

 
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Posted 03 May 2012 - 03:17 PM

Thanks, Tom! :)

The posted article (in the publications section here) lopped off those paragraphs :


"Meanwhile, nearly everyone who takes these tests is told he or she has some kind of intolerance. One Florida lab boasts that "95 percent of the people we've tested show that one or more foods they regularly eat cause a toxic reaction in their body."

Proponents of the testing, primarily integrative physicians or alternative health practitioners, argue that the tests can be useful even if they are imperfect. IgG-based testing "showed promise, with clinically meaningful results," according to a 2010 review published in the journal Nutrition in Clinical Practice."
  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#13 IrishHeart

 
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Posted 04 May 2012 - 07:22 AM

The science is incomplete and the article completely ignores the effects of leaky gut, which is what the "celiac pill" from Alba Therapeutics (and Dr Fasano) actually treats.


I may be wrong (won't be the first time or the last, no doubt :lol:) but I think many celiacs tend to have "leaky guts" i.e. increased gut permeability because of the increased zonulin protein production in some people when they eat wheat. I talked about this with my GI doc. He says he thinks so, too.
Geesh. I'm hoping mine "seals up" pretty soon. :rolleyes:

http://www.umm.edu/n...ses/zonulin.htm

http://www.ncbi.nlm....pubmed/16635908

http://www.news-medi...s-identity.aspx
  • 1

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#14 Carebear

 
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Posted 04 May 2012 - 09:20 AM

Thanks for all the replies! I'm toying with the idea of testing the test to see if there could be any truth to it. There are definitely a couple negative results for foods I know I react to, and some positive results that seem totally of, but why not experiment a little bit and see if a few of them could be a hidden suspect :)

The reads on leaky gut are definitely interesting. I really hope that with time everything heals up for all of us with leaky gut problems!

Mom23, what is the genetic issue you have with a certain food, if you don't mind me asking?
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#15 IrishHeart

 
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Posted 04 May 2012 - 09:40 AM

Carebear,

I think in the end, seeing how we react to a food is the only way to tell. It's the delayed responses that are the bugger to sort out.

I have no IgE allergies except dust mites (so the tests all say), yet you should see my eyes, face and throat swell when I eat too much shellfish. As I mentioned above, no IgG results either, except soy. (not even wheat gluten --- :blink: )

I have problems with MSG and something ELSE still bothers me BUT I cannot figure it out for the life of me, despite elimination diets, rotations diets and 2 years of spiral notebooks filled with what I am eating. I give up! :rolleyes:

As long my gut is still compromised, I feel as if anything that provokes inflammation is a possibility.

I hope you find your culprit(s) and feel better soon!
Cheers, IH
  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif





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