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High Positive On Igg Elisa Test For Foods I Don't Eat?!


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25 replies to this topic

#16 tom

 
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Posted 04 May 2012 - 12:38 PM

I may be wrong (won't be the first time or the last, no doubt :lol:) but I think many celiacs tend to have "leaky guts" i.e. increased gut permeability because of the increased zonulin protein production in some people when they eat wheat.
...

Of course you're not wrong, it's pretty well-established that most celiacs get leaky gut, unless gluten-free very early.
That was my point in bringing up Alba & Dr Fasano. It IS well-known.

So for the Dr dismissing food intolerance blood tests to qualify statements w/ "gut-associated immune system" invalidates those statements w/ respect to real world celiacs' leaky intestinal walls.

Can I infer you agree then that the article completely ignores the very-relevant leaky gut situation?
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>>>>>>> tom <<<<<<<

Celiac 1st diagnosed as a toddler, in the 60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it" & I was back on gluten & mostly fine for 30yrs.

Gluten-free since 12-03
Dairy-free since 10-04
Soy-free since 5-07

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#17 IrishHeart

 
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Posted 04 May 2012 - 02:16 PM

Of course you're not wrong, it's pretty well-established that most celiacs get leaky gut, unless gluten-free very early.
That was my point in bringing up Alba & Dr Fasano. It IS well-known.

So for the Dr dismissing food intolerance blood tests to qualify statements w/ "gut-associated immune system" invalidates those statements w/ respect to real world celiacs' leaky intestinal walls.

Can I infer you agree then that the article completely ignores the very-relevant leaky gut situation?



I read Dr. Guadalino's quote as saying that he did not see how food intolerances are caused by eating a repetitive diet; thus overloading the immune system and the body responds by rejecting those foods.

He does not mention intestinal permeability in regards to celiac.
I think there is no doubt that celiac guts are"leaky" to some degree. (IMHO)

I do not know what to think, to be honest. I know the immunologist I worked with rolled his eyes and told me they were not valuable at all. (I did it anyway and found them unreliable in my case, which I what I said at the beginning.)

Here is all I can find:

Some Celiacs have intestinal permeability from over-production of zonulin.

But, I do not know how that translates to how IgG tests are accurate for other food intolerances. (These seem to be two separate topics to me.)

I cannot seem to find anything in Pub Med that says IgG testing is accurate. Have you seen anything? The only information I can find is from the labs that provide the testing.

Hey, maybe Skylark knows. She has access to more published research than anyone I know. :)
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#18 IrishHeart

 
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Posted 04 May 2012 - 02:23 PM

FWIW, I did find this

http://www.tldp.com/...od Allergy.html
  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#19 tom

 
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Posted 04 May 2012 - 02:28 PM

He does not mention intestinal permeability in regards to celiac.

I brought up leaky gut specifically because a Dr you quoted in HIS dismissing of the tests qualified his statement w/ the preface "in the gut-associated immune system".

I'm saying there are things going on beyond the gut which shouldn't be ignored. They're explicitly excluded by that preface.


I think I should've been more clear when I wrote "the science is incomplete". I was referring to the testing of intolerances, not the existence of the leaky gut I'd brought up.
  • 0
>>>>>>> tom <<<<<<<

Celiac 1st diagnosed as a toddler, in the 60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it" & I was back on gluten & mostly fine for 30yrs.

Gluten-free since 12-03
Dairy-free since 10-04
Soy-free since 5-07

#20 tom

 
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Posted 04 May 2012 - 02:39 PM

The testing for intolerances WILL someday be accurate & reliable.
I've never said current tests are great, just that they can be useful. Not to everyone, of course, bu they're not usless either. The Trib article, w/out its positive aspects, almost says the tests are just a waste of $5000, whereas a number of forum members have recently weighed in on the 2 active threads that they found it helpful and it cost in the hundreds, not thousands.


Heck even the celiac panels everyone recommends still get what % wrong?

When the PCP & referred-to specialists all say "you're fine" & to try an anti-depressant, ppl have no choice but explore outside current conventional wisdom. I can barely believe that I even spent $ on someone telling me taking drops of their magic water imbued w/ the frequencies of stuff determined by goofy electrical responses blahblah I don't recall it all . .. ..anyway, THAT was a useless waste of time & money & the Trib article was unnecessarily slanted.
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>>>>>>> tom <<<<<<<

Celiac 1st diagnosed as a toddler, in the 60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it" & I was back on gluten & mostly fine for 30yrs.

Gluten-free since 12-03
Dairy-free since 10-04
Soy-free since 5-07

#21 tom

 
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Posted 04 May 2012 - 02:49 PM

Ya know .. .imho.
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>>>>>>> tom <<<<<<<

Celiac 1st diagnosed as a toddler, in the 60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it" & I was back on gluten & mostly fine for 30yrs.

Gluten-free since 12-03
Dairy-free since 10-04
Soy-free since 5-07

#22 IrishHeart

 
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Posted 04 May 2012 - 02:54 PM

The OP asked "how accurate were these IgG tests for you guys?"
I told her my experience.
I provided a few articles.
People can do what they want with the information.

I fear you think I am arguing against you for some reason. I assure you, I am not. I am all out of info. :)

Whatever anyone wants to do, they should do it.
Some people think they are valid. Some don't.

I don't know what the percentage is now re: celiac panels.
My tests were falsely negative. Repeatedly :rolleyes:
So, based on that erroneous testing, and testing done by a "integrative doctor" that included this IgG testing--which also said I had no IgG anitbodies to wheat or gluten?--I was left to spiral down in my health so badly I was deathly ill and in horrific pain.

As a result, I have NO faith in any testing.

That's just me.
Again, if people want to do it, they should.

I WAS one of those people who was told for years to take drugs and SSRIs, etc. and I went outside the box to NDs and Holistic docs, blah blah blah...and it was celiac all along. Had I not been so persistent, I'd be dead.

I agree--hope they find a more accurate way to test.
  • 1

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#23 tom

 
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Posted 04 May 2012 - 04:06 PM

I haven't disputed anyone's experiences. I had to point out that the Drs quote doesn't apply once leaky gut is taken into account. Specialists LOOOOVE an isolated system.

IH, your 1st reply called it a waste of $$ and cited the article.
It's a Chicago Tribune article (by the "health & fitness reporter") w/ pretty obvious weaknesses, not something in a medical journal.

My disputing the article wasn't intended to be seen as a disagreement w/ you personally.
The article just shouldn't be used as ammo to support calling the the tests a waste of money.
  • 0
>>>>>>> tom <<<<<<<

Celiac 1st diagnosed as a toddler, in the 60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it" & I was back on gluten & mostly fine for 30yrs.

Gluten-free since 12-03
Dairy-free since 10-04
Soy-free since 5-07

#24 IrishHeart

 
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Posted 04 May 2012 - 04:31 PM

No, Tom, I'm sorry, but in response to the OP, all I said was "In MY opinion, I THINK the tests are a waste of money."


She asked "What was YOUR experience."
I gave mine.

I cited the article, culled from the articles posted on THIS website by admin --as something for people to mull over--that maybe IgG testing may not be accurate.

I did not use it as "ammo".

I gave my thoughts. I'm done.

To the OP, sorry hon...just trying to help.
  • 1

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#25 psawyer

 
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Posted 04 May 2012 - 06:53 PM

There seems to be a dispute about nothing here. Let's all give it a rest. I think the original question has been addressed.
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Peter
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Type 1 (autoimmune) diabetes diagnosed in March 1986
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#26 Oscar

 
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Posted 04 May 2012 - 07:04 PM

I think the original question has been addressed.

I agree!
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