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Went To See Gi Dude Today And....
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Now I get to go in to be scoped from both ends. Just wondering if colitis is in any way shape or form related to celiac's or gluten sensitivity. I apparently do have a gluten sensitivity, we are just working on to what extend. I do not have to go back on gluten for the endoscopy though. That actually makes me wonder exactly what he thinks he's going to find with me having been gluten free for the last three months. At least he's not demanding that I torture myself for the upcoming tests with gluten. I just get to torture myself by cleaning out my system. Any ideas on making it easier?

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If you have been gluten free for 3 months your celiac testing will be negative almost certainly. Your doctor can rule out other problems but not celiac.

Eat lightly for a day or two before the prep. Other than that making sure the prep is good and cold can make it easier to take.

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Now I get to go in to be scoped from both ends. Just wondering if colitis is in any way shape or form related to celiac's or gluten sensitivity. I apparently do have a gluten sensitivity, we are just working on to what extend. I do not have to go back on gluten for the endoscopy though. That actually makes me wonder exactly what he thinks he's going to find with me having been gluten free for the last three months. At least he's not demanding that I torture myself for the upcoming tests with gluten. I just get to torture myself by cleaning out my system. Any ideas on making it easier?

Trudyjerry, welcome. I've had both tests and while the prep for colonscopy isn't fun, it's not horrendous. Eat lightly for the whole week before. My doc gave me a chart. https://www.virginiamason.org/workfiles/procedure_prep/Low_fiber_2010.pdf No red-colored food (jello etc), no nuts or seeds or rough or raw veggies for a few days before, then the liquid diet as per doctor's orders.

Adults don't heal from gluten damage for up to 5 years, so it's possible that the endoscopy WILL show damage, but at least you know that you should be gluten-free even if the endoscopy is negative for celiac. And it's not a waste to have the endoscopy - the prep for colonscopy has to be done anyway and you get two-for-one ...only one prep, one anesthesia, one recovery, one day off work/out of commission, one $$$ charge for doctor. They also might find something else (ulcer, Barrett's) so it's good to have the screening if you have GI troubles.

Yes, colitis can be related to celiac and my GI told me that celiac predisposes one to geting colitis - specifically microscopic colitis. See wikipedia here. http://en.wikipedia.org/wiki/Microscopic_colitis The other thing is that untreated celiac increases the risk for intestinal cancers for up to five years after going gluten-free, so it's good that you're getting that checked too, just to be safe. It's rare but possible.

Best of luck, I'm sure it will go fine and will be over before you know it. I planned a great gluten-free meal for afterwards (a Jamba juice smoothie on the way home plus Amy's brand mac-n-cheese and a small gluten-free brownie) and got to watch videos all afternoon instead of being at work or doing housework. If you get queasy easily, you might have some gluten-free crackers or pretzels to eat in the car on the way home.

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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