Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Igg Tests Back
0

6 posts in this topic

I am not confirmed Celiac but went gluten free due to a Endoscopy that showed lower intestine damage. 2 Biopsies taken came back negative.

I have been gluten free since 3/2/12 and then started having all sorts of food intolerance issues. I stopped all corn/soy/yeast/dairy/avacados etc and I keep a diary. I have nothing processed. I am down to veggies, fruits and meats in their simple forms. I get poisoned at least every 3 days. I was on a rotation diet but I was getting burned left and right so I stopped and just started eating some safe foods but I still got burned on Tuesday of this week. Yesterday I got my IgG test back and I am sensitive to almonds, eggs, bananas and cranberries but no gluten/wheats. I had stopped eggs and almonds 2 weeks ago but I was having a bit of cranberries and bananas up until yesterday. Today I have not had any, i behaved all day. The only thing that bothered me today are fats. If I don't eat them I get terrible and unbearable pains in my back. So I have been drinking little bits of EVOO here and there with food today to add it back into my diet a bit but my stomach burns when I do it.

I am so terrified of getting sick again. My major symptom is dehydration as soon as I fall asleep, it's like I dry up like a raisin immediately and my kidneys hurt from it so bad. It's like every organ inside me dries up and I can feel it and I get very sore on the inside for days and then I get burned again and its just a nightmare over and over again. Of course this causes insomnia, anxiety and night sweats with cold and hot flashes. I fear I can't live through much more of this. I am down to 100lbs and steadily dropping because I am afraid to eat.

A urine test a week ago confirmed blood in my urine but they thought it was a kidney infection and sent a culture out to the lab that came back negative so that was the end of that. I saw my new GI tuesday and she also noticed blood in my urine. She took 6 viles of blood for more celiac, IgG tests and liver tests. I have a HIDA scan scheduled tomorrow if I can stay unsick until then. I wonder if the radioactive dye will make me sick...

I am also nervous that the EVOO burning may cause me to get sick but I won't really know until I fall asleep tonight. (wierd huh?) I saw my ND yesterday and I was so sick but she made me this remedy that has really helped with my symptoms this time around but its made from arsenic and I am not sure I want to keep going to her and paying for poison to treat my problems. I would have to pay $70 for each dose from her as well.

My question is... Do you think just stopping the cranberries and bananas will stop me from reacting? Or am I doomed? I still rotate my dinners and lunches but I stick to safe similar foods during the morning and snack times because of advise from my ND. Is that bad? Almost every thing i eat is on the IgG test and shows as a safe food.

If my gallbladder is bad and they remove it, will my weird intolerance symptoms change?

0

Share this post


Link to post
Share on other sites


Ads by Google:

I almost hate to ask because I'm sure you've posted before... have you looked into salicylates, amines, histamines - those types of intolerances? You seem to be reacting in an unpredictable pattern, to many foods - and sometimes those types of intolerances are the underlying issues.

0

Share this post


Link to post
Share on other sites

As far as I know, by food diary and elimination.

Here's a link about histamines/amines. I know there's better info about it, just not sure where. http://foodallergies.about.com/od/commonfoodallergies/p/histamineintol.htm

Here's one about salicylates. Again, I know there's more and better-search the board you should find plenty. http://salicylatesensitivity.com/

0

Share this post


Link to post
Share on other sites

I have no clue but I see no need to eat cranberries or bananas. If you think they are causing a problem then stop eating them.

If you do have gallbladder trouble then eating fats will make it worse.

0

Share this post


Link to post
Share on other sites




I would drop the arsenic supplement and consider replacing with a soothing (lower-risk) herbal tea. Milk thistle, ginger root, pau d'arco, dandelion root and goldenseal are just a few that are said to have digestive system benefits. Milk thistle is said to be good for reducing liver and gall bladder congestion so that might one to check out first. Some have potential side effects and rx medication interactions so you may want to read up before you try. Good luck.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,131
    • Total Posts
      919,521
  • Topics

  • Posts

    • Cyclinglady is absolutely correct, after hours of internet research the only gluten-free food available at JNB is a fast food chain called 'Nandos'. I was hoping for a bit more variety, but I'll take what I get.   
    • I'm so confused about my daughter's diagnosis.  I hope somebody can help.   My 4 year old daughter has a swollen belly, stomachaches, and lots of gas.  She does not have diarrhea or delayed growth.  Because of her symptoms and because it runs in the family (2nd degree relatives) I had her tested for celiac.   She was weak positive for TTG (IGA)  and strong positive for DGP (IGG)   TTG (IGA)  8   (0-3 neg, 4-10 weak positive, greater than 10 positive) TTG (IGG)  2   EMA: Negative DGP (IGG)  47  (0-19 negative, 20-30 weak positive, greater than 30 positive) Last week, she had her endoscopy.  The doctor found inflammation and little holes or bumps on her duodenum.  He started her on prevacid and said based on his observations, he was suspicious of celiac, but he would not be able to confirm until the biopsy came back. The biopsy showed no signs of celiac disease.  He said that he could not diagnose her with celiac without the biopsy report saying there was celiac damage.  He said he would categorize her as a potential celiac, keep her on a gluten diet and redo the endoscopy in a year or two to check for damage again.  My questions are: 1.)  If it is not celiac, something is causing her duodenum to be inflamed and have little holes or bumps on it, right?  Could it be a wheat allergy or gluten sensitivity?  What else could it be and how do they test for it?  Given her elevated celiac antibodies, how likely is it to be anything besides celiac causing the damage?  2.)  How likely are false positives for TTG and DGP?  I've heard they are pretty sensitive and specific.  Does getting two positives make false positives less likely? 3.) What have you done in this situation?  I want her to have an official diagnosis to make things easier at school and to feel confident that we are eliminating gluten permanently for a worthy reason, etc.  But, I'm having a hard time imagining keeping her on gluten and waiting for her to get more sick and have more intestinal damage just for a diagnosis.     Thanks in advance for your help.  I'm so overwhelmed and confused.  I hope someone has some insight and experience that will help clear things up for me.            
    • Yeah I actually live in Japan which is pretty similar, because Coeliac disease is rare over here so is the understanding and accommodating it. When I mention Gluten to some restaurants they think I am talking in English and they are unfamiliar with the word in Japanese.    So it seems I can write off my chances of getting some authentic Chinese gluten-free food at the airport, but at least there is a Thai restaurant in T3 so I won't starve. Its called  'Phrik Thai' for future reference. http://en-shopping.bcia.com.cn/store/739.html  
    • While in Boston I found Cheer's  Bloody Mary mix that says gluten-free on the bottle and have had no issues and  tastes pretty good 
    • I always assumed plain coffee was, but I have seen some controversy online about this. I know someone who is gluten free and only buys whole beans and grinds them herself because she doesn't trust how the grounds are processed.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,167
    • Most Online
      1,763

    Newest Member
    Cristina17
    Joined