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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Positive Airline Experience
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7 posts in this topic

Usually I book my own flights directly with the airline, but because we had an extra leg this time and I was lazy, and I thought she might get me a better deal,I used a travel agent instead of Expedia or something else.. Bad me. Even though I confirmed with the agent she had ordered gluten free meals, at dinner time we were not on the list. :( BUT... the concierge on the flight was wonderful. Several trips to business class later, and we had cups of unsalted nuts, green salads with vinaigrette, seafood entrees of (cold roast chicken breast) and shrimp and smoked salmon with a mango salsa, a fruit platter, ice cream, a banana and an apple, and a selection of cheeses. Breakfast for me was scrambled eggs (with baked beans I avoided), yogurt, orange juice, milk and a cereal of very dubious origin which was declined, some more fresh fruit (pineapple, mango, grapes, etc.); hubs had a dinner left over from the previous evening which someone had declined - a vegetarian meal with beans and potatoes which suited him to a tee, along with all the other stuff except the eggs. Kudos to the concierge and a profusive endorsement of him to Air New Zealand. Neither of us had any problem with either meal .

We were so well fed I didn't eat any of the food we took with us until SFO, where I did my best to order something safe but everything comes in cans which are emptied out and the cans thrown away by the morning crew so the waitress couldn't tell me what was in anything. (As an aside, she said "People don't care what they eat in here, they just want food!") :lol:, so that made me really an oddball. So I said, that's okay, I'll just eat my own, so out came the salami and cheeses and crackers (minus the apple I had to declare at customs :( and which was confiscated).

So there was an airline which rose to the occasion. He was so apologetic and I bet it was all the fault of the stupid travel agent, in whose parking lot I got backed into and had to do an auto repair before I left too :rolleyes: Quoth the Raven: "Never more"

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Glad everything worked out for you, Shroomie...and glad to have you in the States again.

Mental Note: When we go to visit Shroomie, don't use a travel agent and fly Air New Zealand. You DO know we're comin', right? . . . Eventually.

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Usually I book my own flights directly with the airline, but because we had an extra leg this time and I was lazy, and I thought she might get me a better deal,I used a travel agent instead of Expedia or something else.. Bad me. Even though I confirmed with the agent she had ordered gluten free meals, at dinner time we were not on the list. :( BUT... the concierge on the flight was wonderful. Several trips to business class later, and we had cups of unsalted nuts, green salads with vinaigrette, seafood entrees of (cold roast chicken breast) and shrimp and smoked salmon with a mango salsa, a fruit platter, ice cream, a banana and an apple, and a selection of cheeses. Breakfast for me was scrambled eggs (with baked beans I avoided), yogurt, orange juice, milk and a cereal of very dubious origin which was declined, some more fresh fruit (pineapple, mango, grapes, etc.); hubs had a dinner left over from the previous evening which someone had declined - a vegetarian meal with beans and potatoes which suited him to a tee, along with all the other stuff except the eggs. Kudos to the concierge and a profusive endorsement of him to Air New Zealand. Neither of us had any problem with either meal .

We were so well fed I didn't eat any of the food we took with us until SFO, where I did my best to order something safe but everything comes in cans which are emptied out and the cans thrown away by the morning crew so the waitress couldn't tell me what was in anything. (As an aside, she said "People don't care what they eat in here, they just want food!") :lol:, so that made me really an oddball. So I said, that's okay, I'll just eat my own, so out came the salami and cheeses and crackers (minus the apple I had to declare at customs :( and which was confiscated).

So there was an airline which rose to the occasion. He was so apologetic and I bet it was all the fault of the stupid travel agent, in whose parking lot I got backed into and had to do an auto repair before I left too :rolleyes: Quoth the Raven: "Never more"

Virgin Atlantic did the same for me on a return flight to the States. I changed my return date back home from England and they did not have time to prepare a gluten-free meal. I was told by the concierge that they would withhold food from first class passengers that would fit my dietary requirements and gave me first dibs on everything. Talk about service! I was just hoping they would keep my identity secret so I would not be accosted by hungry, angry passengers whose food I ate. :P I ended up with a great seafood meal and salad, with smoked salmon. You know, sometimes having a dietary restriction isn't so bad after all!

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Mental Note: When we go to visit Shroomie, don't use a travel agent and fly Air New Zealand. You DO know we're comin', right? . . . Eventually.

and don't bring apples

Welcome back Shroomie!

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Well, that's a real nice welcome. Now could you just turn the heat lamp up a little??? Oh, I should go to Little Rock??? Nah, I don't think so :D

Yeah, I figure you're coming, but that you'll wait until the ground is a little more stable B) And at least in New Zealand you will find an amnesty bin where you can dispose of the stuff you didn't eat on the plane before you get to customs. I told the agent, well I could have just dropped it on the escalator :blink::ph34r:

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That's great to hear and ooh, jealous of the first class food! I've never gotten to sit in the pointy end of the plane, eating some of their food would be the next best thing :-) I was impressed by Air New Zealand when I flew them last year, I had a minor freak out over getting a gluten free bread roll (whoever heard of such a thing!) and so they ran through exactly what they'd done to prepare my meal (i.e, unwrapped nothing that would've contaminated it). So then I picked it up (it weighed a tonne) and broke it open and it shattered into a million pieces and we all laughed because we were all certain then it was gluten free. I loved that they were so understanding, friendly and also familiar with gluten-free products. They have so many people to serve but I still felt like an individual.

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That's great to hear and ooh, jealous of the first class food! I've never gotten to sit in the pointy end of the plane, eating some of their food would be the next best thing :-) I was impressed by Air New Zealand when I flew them last year, I had a minor freak out over getting a gluten free bread roll (whoever heard of such a thing!) and so they ran through exactly what they'd done to prepare my meal (i.e, unwrapped nothing that would've contaminated it). So then I picked it up (it weighed a tonne) and broke it open and it shattered into a million pieces and we all laughed because we were all certain then it was gluten free. I loved that they were so understanding, friendly and also familiar with gluten-free products. They have so many people to serve but I still felt like an individual.

Yeah, I love the crew - think they are all pretty great actually. I think it's because the SENIORS get the good flights and they know their onions (and their gluten free crumbly rolls). However..... I did once get a wholemeal cracker with my cheese :o but then we always check these things, right?? :rolleyes:

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    • Gluten ataxia...?
      I was explaining that some people have other trouble that is immune related and caused by eating gluten, but doesn't effect the gut in a noticeable way. According to the paper that I quoted there are some people which have different types of brain problems but don't have inflammation when tested by a biopsy.  The author used the term "non-Celiac gluten sensitivity" to refer to anyone who has any brain trouble that can be traced to gluten but without obvious gut inflammation.  There are a lot of different possible ways gluten can effect the brain some may not be related to the gut.  It could still be an immune system problem.  Normally "non-Celiac gluten sensitivity" refers to just a food intolerance.  Withdrawal symptoms are not normal and could be indicative of an immune system response of some sort, but I don't know for sure.        
    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
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