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Labeling Laws For Drugs Are Almost A Reality.


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18 replies to this topic

#1 Lisa

 
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Posted 04 May 2012 - 02:40 PM

http://www.capwiz.co...1277271&type=CO


Ohio Congressman Tim Ryan and New York Congresswoman Nita Lowey have introduced legislation that will require drug manufacturers to label the source of drugs' inactive ingredients. This is huge!

To move the bill ahead we need bipartisan cosponsors by May 8!
All five of the national celiac organizations are united in support of this legislation.

We need our congressional members to have that same shared voice and put forward a bipartisan message:

The safety of our constituents matters; and
Gluten in medicine must be labeled so individuals and their healthcare providers can make an informed, safe choice.
  • -1
Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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#2 Carebear

 
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Posted 04 May 2012 - 03:16 PM

Yay!!! Thanks for posting this - it made my day!
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#3 Lisa

 
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Posted 04 May 2012 - 04:18 PM

Yay!!! Thanks for posting this - it made my day!

Hope you sent your letter in. :D
  • -1
Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

#4 Skylark

 
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Posted 04 May 2012 - 07:11 PM

Done. :)
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#5 GFinDC

 
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Posted 05 May 2012 - 04:58 AM

Email sent. thanks for posting!
  • 0
Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul

#6 kareng

 
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Posted 05 May 2012 - 05:15 AM

Email sent. That's a nifty form. You just fill in your part and it figures out who your state rep is & sends it for you.

If anyone is on a corn or soy intolerance forum, they might want to post this. Seems like corn is in more meds than gluten and just as hard to figure out.
  • 0

LTES

 
"We've waited 29 years for this and not even a Giant can stand in our way." - Mayor Sly James
 
 
 
 
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#7 ravenwoodglass

 
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Posted 05 May 2012 - 09:30 AM

Done, thanks for posting the link. Hopefully lots of folks will go and be heard as this is an important issue.
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#8 Lisa

 
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Posted 05 May 2012 - 04:30 PM

I hope all 200 views here have sent in a letter. B)
  • -1
Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

#9 ravenwoodglass

 
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Posted 06 May 2012 - 02:46 AM

I hope all 200 views here have sent in a letter. B)


Me too. Wouldn't hurt for us to email links to the letter to freinds and family also.
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#10 mommida

 
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Posted 06 May 2012 - 05:48 AM

Sent e-mail!

Come on gluten free community, stand strong and show some numbers that can't be ignored!
:D :D :D
  • 0
Michigan

#11 a1956chill

 
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Posted 06 May 2012 - 07:56 AM

Done and shared :D
  • 0

Gluten free Oct/09
Soy free Nov/10

numerous additional intolerances,, i.e. If it tries to kill me I do not eat it .
After 40+ years of misdiagnoses I was diagnosed with:
Dermatitis Herpetiformis : Positive DH biopsy...... Celiac :based on DH biopsy and diet response.

Osteoporosis before  age 50
Hashimoto's thyroiditis disease .

Diagnosed type 2 Diabetes 

Osteoarthritis

Gilbert's Syndrome , confirmed by gene testing


#12 IrishHeart

 
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Posted 06 May 2012 - 10:07 AM

Done and sent to my entire email list.
Thanks.
  • 1

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#13 ravenwoodglass

 
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Posted 06 May 2012 - 12:43 PM

I wonder if there is a way for Scott to send the link to all members that get updates on the site or Gluten Free Mall info.? We have a lot of members that are not active on the board but might still want to know about this and participate.
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#14 Lisa

 
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Posted 06 May 2012 - 02:33 PM

Ohio Congressman Tim Ryan and New York Congresswoman Nita Lowey have introduced legislation that will require drug manufacturers to label the source of drugs' inactive ingredients. This is huge!

To move the bill ahead we need bipartisan cosponsors by May 8!
All five of the national celiac organizations are united in support of this legislation.

We need our congressional members to have that same shared voice and put forward a bipartisan message:

The safety of our constituents matters; and
Gluten in medicine must be labeled so individuals and their healthcare providers can make an informed, safe choice.
  • -1
Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

#15 BabsV

 
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Posted 06 May 2012 - 11:23 PM

Done.

Also posted on facebook!
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