Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Celiac And B-12
0

6 posts in this topic

My oncologist has told me that I am annemic and need B-12 in my system. He explained that B-12 will not be absorbed in my stomach so I don't get any B-12 in my bloodstream. He put me on shots. Once per week. He says probably for the rest of my life. Ive always been the low-metabilism type guy. Always tired, etc. Does anybody have experience with this? Will this help me to get my energy back that I lost years ago? He also told me that I've probably had celiac for many years. I'm 54 and havent felt great for a long, long time. So, I was just wondering if anybody out there has the same issues !!Thanks. This is my first time here. I was just diagnosted last month so Im still trying to figure everything out with this problem......

0

Share this post


Link to post
Share on other sites


Ads by Google:

I am relatively new to Celiac and am trying to figure out what this all means for me also. I didn't know there was anything wrong with me until Dec. when a GI doc mentioned anemia during a routine colonoscopy at 50. As I have read more about Celiac, I can say I can identify with some symptoms and defiantly have some absorption issues resulting in anemia, Vit D and recently told of B12. On Wedn. I was put on weekly B12 shots for 24 weeks. I thought weekly seems a little different than what I heard others say, but I'm going to give it a try. My husband was put on the same amount but once a month. Different doctor than mine. From what I have read, it seems the shots are the best way to go because of the absorption issues with people with Celiac. I'm sure all people are different, but I had the impression that once off gluten and your intestines heal, your body would then absorb the nutrients and you wouldn't have to stay on the shots. As I said, I am new and learning as I go.

Good luck to you

0

Share this post


Link to post
Share on other sites

I have gotten 2 B12 shots. I don't know if it is from them or from going gluten free that has helped me. I guess it could be a combo of both. I hope you can get your energy back because I know how miserable it is without it. Hang in there. I do know that it takes time.

0

Share this post


Link to post
Share on other sites

I'm taking "sublingual liquid B complex with B12". It will go into your blood stream from under your tongue, not through your stomache or intestines. I guess that would be the alternative to the shots, but I don't have medical insurance.

0

Share this post


Link to post
Share on other sites

I initially took B12 shots once a month; I still take them every three months although now four years post gluten free. Some of us, it seems, do not fully recover our absorption ability, and while I am obviously getting some from my food I still have to supplement. Same with everything else :(

0

Share this post


Link to post
Share on other sites




I initially took B12 shots once a month; I still take them every three months although now four years post gluten free. Some of us, it seems, do not fully recover our absorption ability, and while I am obviously getting some from my food I still have to supplement. Same with everything else :(

Looks like Im not the only one with the problem. I am taking the shots once a week and was told by my oncologist that it will probably be a life long treatment.. Doesn't sound like much fun. But, as a cancer survivor, I know it could be alot worse. I'm just wondering how long before I start feeling better. Does it take a few weeks for the shots to take effect?? Thanks to everybody. I am learning as I go, for sure.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,125
    • Total Posts
      919,503
  • Topics

  • Posts

    • I havent used it, not much of a baker tbh, but this one looks good: http://alittleinsanity.com/gluten-free-pie-crust-recipe/
    • As you say, there's no test, it's diagnosed by exclusion, so there's no metrics to check to assess compliance other than anecdotal response to symptoms. Conversely, I've not seen anything that says that NCGI can resolved or be cured either.  This paper gives a good summation.  Basically, there's not much research period! That is changing though, I think there's research underway which could help give answers.
    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,162
    • Most Online
      1,763

    Newest Member
    razzle5150
    Joined