Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Celiacs...(?) Gluten Sensitivity... Custodyand Visitation
0

4 posts in this topic

Our six year old was diagnosed with celiacs at three... when our divorce began. She had two positive blood tests and one negative.... no endoscopy... father claims I convinced myself she has something "hard " to diagnose and threat... to get attention presumably... He won... I could not afford a lawyer... he had two. The doctors would not back up the diagnosis... now he has been given sole medical/ legal custody... I can only take her to the doctor in emergencies. He denies she has rash, diarreah, pain in her arms and legs, really bad gas... vomiting.... her stool is seldom firm and the color changes frequently...

I do not have insurrance to have an endoscopy done on myself...but I have had the same symptoms all my life... Not eating gluten is the only thing that works to make me feel completely fine... in fact I feel great and full of energy when I abstain...!

We live in a small town... medical care (and family law) here is really backward... I don't know what to do for my daughter... Her father would not admit that she had symptoms before, which I do not understand, he certainly will not now... My credibility was questioned but no proof was offered, only inuendo that I had pressed the doctor and had taken the child to the doctor "more than usual." The custody order actually said it was just too hard to maintain a gluten free diet... and that he now has control over her third party notification regarding diet restrictions... This decision is harmful to our daugjters' health... but I am barred from helping her... by law... without good reason...I am intimidated by him, all the lawyers, doctors, judges... He tried to accuse me of child abuse for not feeding her gluten. Someone help... please

0

Share this post


Link to post
Share on other sites


Ads by Google:

Are there free attorneys through family court?

Do you have copies of her medical records and lab reports? What was submitted to the court to support the dx and what did the doctors say to retract their dx? Who said the diet is too difficult to maintain? the judge or a doctor?

I'd get SCIENTIFIC articles - easy to read and succinct, and take all of them (records, articles) to a lawyer, law clinic.

If all else fails what about Child Welfare or whoever it is you report child abuse to?

0

Share this post


Link to post
Share on other sites

Our six year old was diagnosed with celiacs at three... when our divorce began. She had two positive blood tests and one negative.... no endoscopy... father claims I convinced myself she has something "hard " to diagnose and threat... to get attention presumably... He won... I could not afford a lawyer... he had two. The doctors would not back up the diagnosis... now he has been given sole medical/ legal custody... I can only take her to the doctor in emergencies. He denies she has rash, diarreah, pain in her arms and legs, really bad gas... vomiting.... her stool is seldom firm and the color changes frequently...

I do not have insurrance to have an endoscopy done on myself...but I have had the same symptoms all my life... Not eating gluten is the only thing that works to make me feel completely fine... in fact I feel great and full of energy when I abstain...!

We live in a small town... medical care (and family law) here is really backward... I don't know what to do for my daughter... Her father would not admit that she had symptoms before, which I do not understand, he certainly will not now... My credibility was questioned but no proof was offered, only inuendo that I had pressed the doctor and had taken the child to the doctor "more than usual." The custody order actually said it was just too hard to maintain a gluten free diet... and that he now has control over her third party notification regarding diet restrictions... This decision is harmful to our daugjters' health... but I am barred from helping her... by law... without good reason...I am intimidated by him, all the lawyers, doctors, judges... He tried to accuse me of child abuse for not feeding her gluten. Someone help... please

First, document EVERYTHING. Take pictures, make a log, recordings...anything to keep records of her symptoms. Gather all the doctor's files you have in regard to her positive blood tests. Yes, take pictures of her poop. Date everything.

Then, contact the free legal office in your area. If they won't help, start contacting every family lawyer to plead for them to help you pro bono.

Good luck

0

Share this post


Link to post
Share on other sites

Just for a few moments I want you to leave the divorce and legal proceedings aside. I'll get back to that crap later :(

When did your daughter start having problems with her health? How did it present?

What lead you to getting celiac testing? What specific testing did she have and when?

What specific symptoms does your daughter suffer - details/timings/severity? And how did you (or doc???) link this to gluten as opposed to other culprits?

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,354
    • Total Posts
      920,522
  • Topics

  • Posts

    • Thanks.  This is very helpful.  Our first post diagnosis grocery store trip took several hours, just trying to read labels to make sure everything is safe.   Our son loves bread and this going to be the hardest part. 
    • i would agree with most of your assessment but overall the popular chefs are very aware. Ed Kenny at Town did have  gluten-free options on the menu.  Mavro's will fix something special given advance notice but its expensive.  excellent but very expensive.  Alan Wong is very aware and will have his staff prepare something as well.  We did find many options at both Oahu  whole foods -- mostly  with tofu. the only thing  there is to be aware of cross contamination with things  next to it.  they make a great gluten-free southwestern tofo dish which is great but not if its sitting next to anything with gluten. Its not whole foods but people use the smae  spoons and tongs i found more at   down to earth in peal city than by  University ave  
    • Hi,  I'm in KOna but my kaiser doctor just retired  who was pretty good about it. I dont know of a specialist here  but most of hte kaiser docs wil test you if thats when you need to talk to them about. good luck  
    • Yes.  And wouldn't it have been nice if your doctor had tested you for Celiac disease before you went gluten free? Then you would know if your issues are Celiac or not.  That would help you know how careful you need to be, what other illnesses and problems to look for, whether you might be passing a genetic disease on to your children, if you should look for another cause of your symptoms, etc  
    • I would be very careful in giving this kind of advice, she is in an advanced stage. I was there and one additional symptom that I was getting was a strong urge to commit suicide so eating gluten for three months might not be the way to go for some people. If a gluten free diet stop the problems them gluten is the problem or a least part of it. I eliminated MSG from my diet because I notice that the common denominator for some products that affected my well being was MSG. I eliminated oats because I notice that I would get canker sores every time I ate it. Wheat is what affect my brain the most, irritability gets uncontrollable, my mental capacity greatly diminish, rash in my arms appear, can't sleep,etc. Barley makes my stomach groan, and constipated. Will try testing how Rye affect me some later time. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,425
    • Most Online
      1,763

    Newest Member
    ambermiko
    Joined