Why Am I Not Improving?
Posted 22 March 2004 - 02:46 PM
gluten-free Muesli, gluten-free Soya Milk or Rice Porridge, Florida Original OJ
Thai Kitchen Noodle Soup (gluten-free, Egg Free)
Heinz Baked Beans
Baked Potatoes, other cooked veggies
Green Salad with Newman's Own Dressing
GNC iron, Calc/Mag and Multivi supplements
Chicken, fish, Steak
Canned Tomatoes used for ratatouille or other ved dish
Rice cakes, Peanut Butter or Soy Peanut Butter
Nuts and seeds, raisins
Peppermint Tea, Marks & Spencers Green Tea with Lemon
Homemade Cottage Pie (all gluten-free ingredients as far as I know)
As I said, could eat anything as long as gluten-free in January but now can't tolerate anything; anyone know a physiological reason for this? getting very fed up with limited diet and no apparent pay-off.
Posted 22 March 2004 - 07:48 PM
I am fairly new to this diet, nov 03, and I began having problems about a month into the diet. By the process of elimination I narrowed the culprit to dairy and
tomatoes.I noticed that you are consuming tomatoes and that might be your problem too. I've had to give up my favorite baked beans, spaghetti sauce,
cheese, yogurt, milk and ice cream. My husband has a great recipe for gluten-free
pizza but I'll have to wait on that. I hope in 6 months or so that I can start
to reintroduce things one by one. I hope to be able to eat oatmeal again, even with goat's milk, as it always seemed to calm down my stomach. I noticed after 4 months I am starting to improve a little, but I think the whole process will be long for me since I was sick for app 10 years, maybe more. I wish you all the luck in
the world. Take care....
gluten-free since 11/03, neg biopsy, IGA elevated
Posted 22 March 2004 - 10:01 PM
can't detect a culprit when I eliminate any for a few days
It may take up to a week or two for symptoms to go away and be obvious when a food is reintroduced. I am casein intolerant (so no dairy of any form for me) and when I have a dairy accident I suffer for quite a while (up to a week with bloating, gas and diarrhea). Judy is right about the tomatoes, they can be very irritating, also the OJ. I would skip acidic foods for a while if I were you. I also went through a period of time where I couldn't tolerate any fruits. veggies, or grains. And I can't stand all protein meals, so I ended up trying digestive enzymes (Pioneer brand worked best for me). I wish I had started them sooner! They help a lot to get my food digested properly and I feel like I am absorbing more nutrients.
Your diet sounds fine, other than the acidic and try a longer elimination period. Remember to eliminate ALL the suspect foods for at least a week and then only reintroduce one at a time, waiting at least 4 days between new foods. Otherwise you won't be able to tell which food might be bothering you. Dairy, nuts, soy, eggs, and corn are common intolerances. I don't know if there are any statistics to back up this statement, but it seems to me that a lot of gluten intolerant people are also intolerant/allergic to other foods. A lot more than the normal population. Or maybe we are just more aware of food intolerances/allergies than the rest of the planet!
Mariann, gluten intolerant and mother of 3 gluten intolerant children
Posted 22 March 2004 - 11:01 PM
Posted 23 March 2004 - 07:10 AM
Posted 23 March 2004 - 12:41 PM
I'm new to this forum, so please forgive me if I'm not doing it right, and I welcome any constructive criticism.
I was diagnosed with celiac disease in Feb, but I've been working on these diet issues for a long time. So the gluten was the missing link in my trial and error experiments. I'm feeling so much better since I got on the GFD, but I had already found most of the other problem foods through elimination trials for food allergies. A couple of things in Jojes post that stood out for me were: 1) ratatouille; I can't tolerate zucchini or other squash at all, and the onions would bother me too. 2) soy; I used to love Chinese food and could tolerate it well, but now any soy at all (soy, tofu, MSG, etc.) sends me to the bathroom with horrible bouts of violent cramps and diarrhea that last until all of it is entirely out of my system. I have to read labels very carefully for this as well as gluten ingredients. The Thai soup probably contains some MSG or soy, as well as the soy peanut butter.
Good luck and I'm so happy to have found this message board. I was feeling pretty isolated, so you guys are a Godsend!
Posted 23 March 2004 - 03:51 PM
Posted 24 March 2004 - 03:15 AM
Husband misdiagnosed for 27 yrs -
The misdiagnosis was: IBS or colitis
Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,
most prestigious medical groups in northern NJ which constantly advertises themselves as
being the "best." This GI told him it was "all in his head."
Serious Depressive state ensued
Finally Diagnosed with celiac disease in 2003
Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.
Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle
Developed neuropathy in 2005
Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003
Posted 24 March 2004 - 04:05 AM
Posted 24 March 2004 - 05:38 AM
Posted 24 March 2004 - 08:01 AM
Posted 24 March 2004 - 11:02 AM
Posted 26 March 2004 - 06:31 AM
Posted 30 March 2004 - 05:33 PM
I have been gluten free for over a year and still have a problem with fiber. I do not eat any veggies except squash and cauliflower. I can eat fresh cantaloupe and canned fruit but no berries at all.
Until recently I could not eat beef except if it was ground and can only eat a pork chop, but no other pork. I find I have a hard time with fats and fiber. I have not had a real dessert since on this diet--even the gluten-free cookies make me gassy. I eat not dairy or anything with casein in it, but can tolerate low acid no pulp orange juice. I drink gluten-free rice milk occasionally, but get most of my calcium with supplements.
I am older so I feel it is taking me much longer to heal than most. I have recently gained 5 pounds and am getting stronger, but recently tried yogurt--just a spoonful and am still suffering from that.
This diet has given me new problems which I never had before, however, the pain has stopped and now just have discomfort occcasionally, especially if I have to sit for very long. I feel it takes quite awhile for you body to get used to these new foods. As the months progressed I have found more and more things I cannot eat without discomfort.
Posted 31 March 2004 - 12:02 AM
Anyone have any answers out there?
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