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Self Diagnosis/new Doctors


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4 replies to this topic

#1 teddylab

 
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Posted 07 May 2012 - 08:26 PM

Gosh, I am so sick of explaining myself to doctors! I have been to so many in the last few years it has done my head in!
After my last run in with one who refuses to look at anything but my blood pressure and pregnancy tests, I decided to just give up and take my own self diagnosis.

I gave up eating most gluten (a few things I wasn't aware of snuck in there!) and I felt GREAT. I haven't been blated or sick, I get up early and don't have trouble sleeping. No going to the toilet every half hour, and I have had so much energy.

I decided to try gluten again after 2 weeks to see if I had any reaction. The first day I was fine - the second day I was so so very sick. I had some of the worst stomach pains, and could not move. I was so bloated I felt like a helium balloon. I couldn't sleep and had terrible anxiety.

After all of this I plan on going gluten free, but first I am going to a celiac specialist I found close by. I am so excited and hopeful, I can't wait for my childhood GP to send me my referal!

I really hope that this will give me some closure, or at least point me in the right direction.

I'm also really scared - I hope this is the source of all my problems. What do you think?


medical background
* Failure to thrive - baby/infant
* Father also had failure to thrive for unknown reasons as a boy
* Small bowel biopsy as a baby revealed scoured/burnt villi
* Depression/anxiety caused by suspected chemical imbalances
* Joint problems including TMJ
* Constant stomach issues all my life - always put down to illness/flu
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#2 MitziG

 
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Posted 08 May 2012 - 04:01 AM

I think you should have been diagnosed as a baby if you had blunted villi back then! Many here, including myself, can relate to your frustration of being dismissed byy doctors. I went through so many I began to wonder if maybe I just really WAS a hypochondriac. Since being dx with celiac my health has done a complete 360. I never dreamt I could just feel WELL! It keeps getting better too! You are definitely on the right track. Make sure you keep scarfing gluten until your tests are done though- for some, recovery cN happen too fast and mess up your tests!
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#3 teddylab

 
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Posted 08 May 2012 - 03:05 PM

I think you should have been diagnosed as a baby if you had blunted villi back then! Many here, including myself, can relate to your frustration of being dismissed byy doctors. I went through so many I began to wonder if maybe I just really WAS a hypochondriac. Since being dx with celiac my health has done a complete 360. I never dreamt I could just feel WELL! It keeps getting better too! You are definitely on the right track. Make sure you keep scarfing gluten until your tests are done though- for some, recovery cN happen too fast and mess up your tests!


Thanks :) I find it amazing too that I wasn't diagnosed!
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#4 tom

 
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Posted 08 May 2012 - 09:18 PM

...
medical background
* Failure to thrive - baby/infant
* Father also had failure to thrive for unknown reasons as a boy
* Small bowel biopsy as a baby revealed scoured/burnt villi
* Depression/anxiety caused by suspected chemical imbalances
* Joint problems including TMJ
* Constant stomach issues all my life - always put down to illness/flu

Don't forget
* Changes from recent 2wks gluten-free & reaction from 2 days gluten challenge.

It's part of the medical history now.

Good luck w/ the doc!
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>>>>>>> tom <<<<<<<

Celiac 1st diagnosed as a toddler, in the 60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it" & I was back on gluten & mostly fine for 30yrs.

Gluten-free since 12-03
Dairy-free since 10-04
Soy-free since 5-07

#5 teddylab

 
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Posted 08 May 2012 - 11:52 PM

Don't forget
* Changes from recent 2wks gluten-free & reaction from 2 days gluten challenge.

It's part of the medical history now.

Good luck w/ the doc!


Thank you, I'll make sure to include it!
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