Jump to content



   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Ads by Google:
Celiac.com Sponsor:                                    


Photo
- - - - -

Any Relationship Between Reactive Arthritis And Celiac?


  • Please log in to reply
9 replies to this topic

#1 GLUTEN FREE IN SLC

GLUTEN FREE IN SLC

    New Community Member

  • Advanced Members
  • Pip
  • 11 posts

Posted 09 May 2012 - 09:43 PM

I was recently diagnosed with Celiac disease via small bowel biopsy on April 10th 2012. A year prior I was diagnosed with Reiter's Syndrome (Reactive Arthritis). I know that both diseases have to do with your bodies immune system; however, my current doctors deny any correlation between the two. My question is if there is anyway either Celiac or Reactive arthritis could of triggered the other to develop? I am 26 years old and this is the first time in my life I have ever had these sorts of problems.
  • 0

Celiac.com Sponsor:

#2 00Bryan00

00Bryan00

    New Community Member

  • Members
  • Pip
  • 2 posts

Posted 11 May 2012 - 05:03 AM

I was recently diagnosed with Celiac disease via small bowel biopsy on April 10th 2012. A year prior I was diagnosed with Reiter's Syndrome (Reactive Arthritis). I know that both diseases have to do with your bodies immune system; however, my current doctors deny any correlation between the two. My question is if there is anyway either Celiac or Reactive arthritis could of triggered the other to develop? I am 26 years old and this is the first time in my life I have ever had these sorts of problems.


Currently I am looking into getting diagnosed as Celiac. I have had multiple attacks of symmeterical joint pain in wrists and ankles. There has been lots of misdiagnosis of arthritis before people have been diagnosed with celiac. IIRC. Don't hesitate to hit the search button top right and look for things like Rhuematoid Arthritis, Arthritis etc.

Good luck! Are you on a Gluten Free Diet now? Notice any difference with your arthritis?
  • 0

#3 GLUTEN FREE IN SLC

GLUTEN FREE IN SLC

    New Community Member

  • Advanced Members
  • Pip
  • 11 posts

Posted 20 May 2012 - 05:37 PM

Currently I am looking into getting diagnosed as Celiac. I have had multiple attacks of symmeterical joint pain in wrists and ankles. There has been lots of misdiagnosis of arthritis before people have been diagnosed with celiac. IIRC. Don't hesitate to hit the search button top right and look for things like Rhuematoid Arthritis, Arthritis etc.

Good luck! Are you on a Gluten Free Diet now? Notice any difference with your arthritis?


I have been gluten free ever since being diagnosed. My arthritis symptoms have been under control for a few months now so it's hard to tell if going gluten free had any effect. I do wish there was more research out there on both disorders. From myself doing research it seems many people diagnosed with Celiac have related problems. Who knows how long I could of had Celiac though, maybe I had it for years and it finally triggered other immune responses in my body.

But thanks for your input, I suggest you definitely get tested for Celiac! It's great being able to know for sure. Although I wish no one had to be allergic to anything!
  • 0

#4 mushroom

mushroom

    Mushroom

  • Advanced Members
  • PipPipPipPipPipPip
  • 9,448 posts

Posted 20 May 2012 - 06:41 PM

Did they ever determine an infectious trigger for your 'reactive arthritis'? I have a sneaking suspicion that this could be a stab in the dark diagnosis, rather like IBS when they can't determine any other cause for your symptoms. If there was indeed a triggering infection, okay, could be. My rheumatoid diagnoses progressed from polymyalgia rheumatica to rheumatoid arthritis, to psoriatic arthritis eventually.

You arthritis may well turn out to have been triggered by your celiac.
  • 1
Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

#5 GLUTEN FREE IN SLC

GLUTEN FREE IN SLC

    New Community Member

  • Advanced Members
  • Pip
  • 11 posts

Posted 20 May 2012 - 07:35 PM

Did they ever determine an infectious trigger for your 'reactive arthritis'? I have a sneaking suspicion that this could be a stab in the dark diagnosis, rather like IBS when they can't determine any other cause for your symptoms. If there was indeed a triggering infection, okay, could be. My rheumatoid diagnoses progressed from polymyalgia rheumatica to rheumatoid arthritis, to psoriatic arthritis eventually.

You arthritis may well turn out to have been triggered by your celiac.


Well there is no question I have Reactive Arthritis. I actually was diagnosed with Reiter's syndrome which is a set of specific symptoms. But I was completely debilitated for 4 months, and it took a full year for it to go into remission. I couldnt even walk my joints were so swollen and my left eye was effected too. I am also positive for the HLA-B27 gene which is the same family as Ankylosing Spondylitis. They suspect that an infection triggered the immune response but they never cultured anything. At some point in my life this would have been triggered. My question is if the Celiac and this disorder have any genetic or immunological relationship.

What came first for you, the rheumatoid, or Celiac?
  • 0

#6 mushroom

mushroom

    Mushroom

  • Advanced Members
  • PipPipPipPipPipPip
  • 9,448 posts

Posted 20 May 2012 - 09:52 PM

Well, in retrospect, the celiac but I didn't know it then. The doctors kept telling me I had IBS :P Actually, I have never been tested, I had to self-diagnose. Strangely enough, the builder who was building our house had ankylosing spondylitis, and he was on a gluten free diet which at the time I thought was pretty weird for arthritis. But it seemed to help him and he was very religious about sticking to it, so I decided to try it and see if it helped my arthritis. Unfortunately, it did not, but all those "IBS" symptoms started going away.....:rolleyes: Of course, I was not going to go back on gluten to get tested when they had had 30 years of opportunity to give me the tests and failed to do so. I am quite satisfied with my self-diagnosed status. I also have hypothyroidism. There is a definite genetic relationship between psoriatic arthritis and celiac. I had never heard of Reiter's or Reactive Arthritis which is the reason I asked. Do not give up hope of improvements in your arthritis - stranger things have happened on a gluten free diet. I believe that my arthritis would be worse if I had continued to eat gluten. As it is, I have to take Humira to control it and the psoriasis, but I am pain-free and deformity-free, so that is the good news.
  • 0
Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

#7 GLUTEN FREE IN SLC

GLUTEN FREE IN SLC

    New Community Member

  • Advanced Members
  • Pip
  • 11 posts

Posted 22 May 2012 - 05:30 PM

Yeah Reactive Arthritis is one of the less common immunologic/arthritic conditions. For the past year I have been taking Sulfasalazine which is mainly used to treat Crohns and Juvenile Arthritis, it works now but took months to see results. My doctor was considering starting me on Humira or Enbrel.

Thats great yours is under control though. From hearing peoples stories it gives me hope that going gluten free could have many beneficial effects besides just the Celiac related issues.
  • 0

#8 mushroom

mushroom

    Mushroom

  • Advanced Members
  • PipPipPipPipPipPip
  • 9,448 posts

Posted 22 May 2012 - 07:29 PM

Yes, I have been through methotrexate, sulfasalazine with diclofenac, Plaquenil, before I finally got to Humira. I am lucky to so far have no side effects from it, but I do have to stop taking it if I get an infection which can then allow the symptoms to come back in. :(
  • 0
Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

#9 beebs

beebs

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 684 posts

Posted 22 May 2012 - 07:43 PM

Is reactive arthritis different from AI type arthritis? I have something -still not officially diagnosed, but something along the lines of connective tissue disease (RA, psoriatic, sjogren's, lupus etc) Unfortunately nothing to do with my joints has changed since going gluten free. Doh. Sposed to start methotrexate soon - but I have been putting it off. It scares me to think of having a repressed immune system to be honest.
  • 0
HLA DQ8, gluten-free since January 2011

#10 GFinDC

GFinDC

    A little farting never hurt anybody... :-).

  • Advanced Members
  • PipPipPipPipPipPip
  • 4,084 posts

Posted 23 May 2012 - 03:28 AM

Nightshades cause me joint pain. And some other people too. Potato, tomatoes, peppers and eggplant are the food nightshades that cause problems. Might be worth a try to eliminate them. Nightshades contain high levels of alkaloids, which may be the cause.
  • 0
Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul


0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: