Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Possibility Of Parasites Infestation Causing Celiac Disease
0

14 posts in this topic

I had a terrible parasite infestion before diagnosis. It lasted about a year. So many awful critters...too many types to mention. Scared me to death. It took 90 days of herbs to get rid of them. Shortly after...I was diagnosed with Celiac. I was just wondering if anyone else experienced this. I was probably Celiac for 10 years before being diagnosed. I had 4 bowel obstructions and never had a day without diahrrea and constipation alternating. So much stomach pain and suffering. So glad to have gotten gluten out of my diet. The only problem I have now is peripheral neuropathy and it drives me crazy. I guess the parasites could be b/c my immune system has been compromised for years. I know that in the past, the surgeon alwasy told me after each obstruction that I had "no parasites." That was forshadowing b/c I didn't know what parasites were and wish I could still say that. Once you've had a bad infestation...you always worry that they will come back.

0

Share this post


Link to post
Share on other sites


Ads by Google:

By the title I thought I'd be talking about a 'celiac trigger', but your celiac symptoms predated the parasites which led to the dx, if I read that right.

Sounds like a good call (finally, right?) by somebody to test for celiac disease. I'm a little curious on the details of that, if you happen to know.

PN(periph neuro) is pretty common around here. You've probably already had vitamin levels checked, but there might be good ideas in some PN threads here.

0

Share this post


Link to post
Share on other sites

A few questions for you. How did you learn of the parasites? How did you know what they were? Did you take the herbs on your own? Or were they prescribed?

I began to worry about my daughter and I recently after my little cat was found to have roundworms. I wouldn't have thought about us having them but some people online elsewhere were telling me we could have them. I freaked and ordered some herbal things.

But after I took the first awful tasting dose, I decided not to take any more. The product contained wormwood and in looking it up online it said it should not be taken internally and although it killed parasites, it was far harder on the host. It listed a bunch of reasons not to take it, including liver and kidney failure. Thankfully I don't think that one dose caused any harm.

I couldn't take any other of the herbal remedies because I am intolerant to something they contain. And I wasn't about to go to the Dr. for a parasite test because frankly I don't think I had any symptoms. And the chances of us getting roundworms from the cat are slim. Now how the cat got them, I do not know. I can only figure that she had them since we got her. The vet did diagnose lungworms and she was treated for that but perhaps she had the round worms at that time too. She did have symptoms. I just didn't know.

1

Share this post


Link to post
Share on other sites

A few questions for you. How did you learn of the parasites? How did you know what they were? Did you take the herbs on your own? Or were they prescribed?

I began to worry about my daughter and I recently after my little cat was found to have roundworms. I wouldn't have thought about us having them but some people online elsewhere were telling me we could have them. I freaked and ordered some herbal things.

But after I took the first awful tasting dose, I decided not to take any more. The product contained wormwood and in looking it up online it said it should not be taken internally and although it killed parasites, it was far harder on the host. It listed a bunch of reasons not to take it, including liver and kidney failure. Thankfully I don't think that one dose caused any harm.

I couldn't take any other of the herbal remedies because I am intolerant to something they contain. And I wasn't about to go to the Dr. for a parasite test because frankly I don't think I had any symptoms. And the chances of us getting roundworms from the cat are slim. Now how the cat got them, I do not know. I can only figure that she had them since we got her. The vet did diagnose lungworms and she was treated for that but perhaps she had the round worms at that time too. She did have symptoms. I just didn't know.

I never had any food issues or diarrhea before I got my parasite. I got it in Mexico and had it for several years before finally realizing the problem. Ever since I've had IBS of sorts. I've found out I was allergic to rye and pistachio, and I am also now lactose intolerant. The herbalist told me parasites can damage the intestinal lining and it can cause intolerances and allergies, and it can take years to heal. I guess it kind of creates a leaky gut. Yuck. So to answer the main question (I think) yes this also happened to me. Parasites are awful.

0

Share this post


Link to post
Share on other sites

My son recently had giarrdia. I had him on an herbal thyme product and that did not take out the parasites on its own. I can't remember how long he was on it perhaps about a month. I took him to an osteopathic doctor. I was horrified when he recommended antibiotics as I expected a natural cure. But he said it was the very safest, most, effective cure. We did a 5 day dose, but later had to do a ten day dose. Besides we used an herbal product named Paracid for a month after the first antibiotics. The 5 day dose of antibiotics plus Paracid did not get rid of the giardia. During the second batch my son got a yeast infection, so we used candicid.

These parasites can be tough. I saw a critter come out with my stool one day. It was a white diamond with a 1/2 inch tail. I was using the Thyme product and used it for a few months. After I checked for parasites and it was negative. I think perhaps the Thyme and Probiotic products were effective for me.

The products I used for me were:

A Good Thyme by Nutri-spec

Immuno-Synbiotic by Nutri-spec

0

Share this post


Link to post
Share on other sites




I never had any food issues or diarrhea before I got my parasite. I got it in Mexico and had it for several years before finally realizing the problem. Ever since I've had IBS of sorts. I've found out I was allergic to rye and pistachio, and I am also now lactose intolerant. The herbalist told me parasites can damage the intestinal lining and it can cause intolerances and allergies, and it can take years to heal. I guess it kind of creates a leaky gut. Yuck. So to answer the main question (I think) yes this also happened to me. Parasites are awful.

How were you diagnosed with the parasite? What kind of tests are done for that? I know little to nothing about this area of medicine so would love to hear more.

0

Share this post


Link to post
Share on other sites

I never had any food issues or diarrhea before I got my parasite. I got it in Mexico and had it for several years before finally realizing the problem. Ever since I've had IBS of sorts. I've found out I was allergic to rye and pistachio, and I am also now lactose intolerant. The herbalist told me parasites can damage the intestinal lining and it can cause intolerances and allergies, and it can take years to heal. I guess it kind of creates a leaky gut. Yuck. So to answer the main question (I think) yes this also happened to me. Parasites are awful.

Again, I ask... How did you find out? What kind of test?

0

Share this post


Link to post
Share on other sites

I had a terrible parasite infestion before diagnosis. It lasted about a year. So many awful critters...too many types to mention. Scared me to death. It took 90 days of herbs to get rid of them. Shortly after...I was diagnosed with Celiac. I was just wondering if anyone else experienced this. I was probably Celiac for 10 years before being diagnosed. I had 4 bowel obstructions and never had a day without diahrrea and constipation alternating. So much stomach pain and suffering. So glad to have gotten gluten out of my diet. The only problem I have now is peripheral neuropathy and it drives me crazy. I guess the parasites could be b/c my immune system has been compromised for years. I know that in the past, the surgeon alwasy told me after each obstruction that I had "no parasites." That was forshadowing b/c I didn't know what parasites were and wish I could still say that. Once you've had a bad infestation...you always worry that they will come back.

Infection can trigger celiac disease if there is a predisposition to it so yes it is possible that the parasites indirectly lead to the development of celiac disease. I am curious what types of critters these were. Tapeworms? Protozoa? You mention bowel obstructions so I would assume that roundworms were involved? Also I'm not sure that herbal treatment would necessarily be effective in completely eliminating a parasite infection...

0

Share this post


Link to post
Share on other sites

Interesting thoughts.

I wonder....I think there are as many (or more people) in denial about parasites, than people with celiac, or gluten intolerance.

I've wondered if there isn't a connection between the two also. But, I've also wondered if celiac makes you more predisposed to parasite infection. I've also wondered if it is a trigger.

From what I understand; similar to celiac, parasite infection is often difficult to diagnose, and there doesn't seem to be a lot of medical training (our GPs) on the subject.

0

Share this post


Link to post
Share on other sites

The OP joined the day she posted this and has never logged in since.

Little chance we will get answers to any or our questions.

0

Share this post


Link to post
Share on other sites

Again, I ask... How did you find out? What kind of test?

You do a stool test. You collect the stool by sitting on plastic to go. Then you put it in some tubes which are provided for the test. These contain some fluids. Shake them up and send them to the lab. They can check for parasites, digestive enzymes, and blood.

0

Share this post


Link to post
Share on other sites

You do a stool test. You collect the stool by sitting on plastic to go. Then you put it in some tubes which are provided for the test. These contain some fluids. Shake them up and send them to the lab. They can check for parasites, digestive enzymes, and blood.

Who does this test and what would cause you to have it done?

0

Share this post


Link to post
Share on other sites

This is Floral.  I didn't know my initial posting would get so many responses.  I always had a bad stomach and things just kept getting worse.  10 yrs of bowels obstructions followed by parasitic infestation.  And how did I know?  I could see this mucousy stuff floating in toilet.  I research it and realized what I was seeing.  Didn't know what to do.  Talked to my doctor who refused to treat or believe me.  I actually wrote an ebook about my experience but haven't published it yet.  I started taking Hulda Clarks formula and started seeing them evacuate.  I mean thousands of them.  If you google photos of parasites you will see each and every ugly one that I saw -- very frightening.  It took months for them to go away and perhaps someone was right when they said I didn't get rid of them all.  It has taken me a year to recover and during this year I developed food allergies.  I was test with hydrogen breath tests which were positive for lactose and fructose intolerance.  Then the Celiac test was positive.  I am feeling better now that I am 100% compliant with no gluten...and sometimes we are all a little resistent to going all tlhe way with something even though it will ultimately save our lives.  I do wonder if I still may have some parasites but they would have to be mcroscopic at this point b/c I do know what to look for.  I thank God every day for getting me through that storm and would love to talk with you all individually about your experiences.  I saw a video on line by an MS doctor in Baltimore MD who said that glutenism after parasites was very common indeed.  It was in looking for that video that I ended up here again. Obviously, this subject needs to be researched and written about in depth...and now I really need to figure out how to get my ebook up in Kindle form so we can continue the dicussion.  (and education)

0

Share this post


Link to post
Share on other sites

More than half of everyone on the planet has large parasites and most of us would have several species, I bet everyone has a tiny sub clinical parasite or ten. We are evolved to live with them so it's no big deal for most people but I bet it causes gut problems in others. I've been extensively tested for them though both anti body and stool tests and never found a single one. Doesn't mean they aren't there though, sometimes they are very small and hard to find.

 

You need to do around 8 stool test to be sure you haven't missed one and that's only the ones that live in your gut.. The majority of gut parasites can be killed with mebendazole quickly and easily, totally safe drug, even safer than herbs I'd say.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,641
    • Total Posts
      918,437
  • Topics

  • Posts

    • Anxiously waiting
      Thanks heaps. I will def be going private if the wait is too long. I have done a little research but i thought a gluten intolerance and coeliac was the same lol. My iron levels are just below average apparently but she said not bad enough for me to be this tired.
    • Celiac.com: Traveling While Gluten-Free? What To Consider From Someone with Celiac Disease
      There are a few definite truths about living gluten-free: You miss bagels every day. Curious friends regularly badger you with questions like “is ... View the full article
    • How effective is HD skin biopsy after being gluten free for a year
      DH is celiac disease that appears on the skin (gluten triggered).  It does not appear when you are consuming dairy, which sounds like a separate issue for you.   A DH biopsy requires active lesions (new/fresh) from consuming gluten.  So, if you want to be tested via a skin biopsy you must go back on gluten.  Finding a dermatologist who knows exactly how to biopsy for DH is often difficult.  Be sure your Derm is knowledable and has biopsied for DH before. Why no endoscopy for now?  I bet your GI  knows that your insurance will deny the endoscopy.  After all, you tested negative to the blood panel.  Your GI should not even ordered the blood panel knowing that you had been gluten free for months.  You have to be consuming gluten daily for 8 to 12 weeks for the blood test to be accurate.   Did you ever test positive?  Why did your primary diagnose you?  Having the gene just means you can develop celiac disease.  Some 30% of the population carries the genes.  The gene test should only be used to help rule out celiac disease.  
    • How effective is HD skin biopsy after being gluten free for a year
      No one can say exactly how long you might be able to get a positive dh biopsy after having been gluten free as long as you have been. The Chicago Celiac Disease Center says this: http://www.cureceliacdisease.org/faq/im-scheduled-to-have-a-skin-biopsy-to-screen-for-celiac-disease-should-i-maintain-a-gluten-containing-diet-similar-to-those-who-are-being-screened-via-blood-or-intestinal-biopsy/ http://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/ You said you had a flare of the plaque psoriasis -- that is NOT dh so why do you think the dh biopsy will show positive? Testing positive for the celiac genes does not mean you have celiac disease. 30+% of the population have the celiac genes but only very, very small fraction of those people do or will present with celiac disease. The gene tests are only used to rule OUT celiac NOT to diagnose it. Frankly, I can understand why your GI does not put any stock in your Primary doc's thinking you have celiac disease. A positive celiac gene and the boils in your armpits which the GI never saw and were never biopsied for dh but they resolved on a gluten free diet and so did your plaque psoriasis. That's all the GI has to go on. I don't know why you are pushing an endoscopy. If you've been eating strictly gluten free then an endoscopic biopsy for celiac will be negative.  Your PCP should have done a celiac blood panel on you back when you were still eating gluten rather than dx you based on the celiac gene you tested positive for.
    • How effective is HD skin biopsy after being gluten free for a year
      I've been gluten free for a year now and my gastro wants to wait for the endocopy until I'm eligible for the colonoscopy when I turn 50 later this year. I don't think she believes I have celiac, even though I tested positive for one of the genes associated with celiac and my primary has diagnosed me as having celiac. The gluten sensitivity blood tests came back negative, of course, since I was gluten free for 9 months at that time. Why is she waiting? At any rate, My digestive system has improved greatly, but when I reintroduced non fat Greek yogurt in my diet, the plaques psoriasis returned on my elbows. My primary believes it is dermatitis herpetiformis (as well as I, since before going gluten free, I used to get boils in my armpits) and I'm scheduled for a skin biopsy in 3 weeks. However, I eliminated dairy from my diet 4 weeks ago and the plaques psoriasis is healing like it did when I eliminated gluten from my diet a year ago. If the scar is reduced to eczema, does that mean there still are IGA deposits in my skin? I don't want to resume dairy since I experienced a cross reaction to the casein in cheese and found lactose was on that same list. So my question is, how long do the granular IGA deposits remain in the skin in order to have a valid skin biopsy test performed for dermatitis herpetiformis? Since it takes 1-2 years for dermatitis herpetiformis to heal on a gluten free diet and I just had a recent flare up, can I continue on my dairy free diet or should I resume eating non fat Greek yogurt for the next 3 weeks just for this skin biopsy?
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,734
    • Most Online
      1,763

    Newest Member
    Cyclonemom
    Joined