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Possibility Of Parasites Infestation Causing Celiac Disease
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I had a terrible parasite infestion before diagnosis. It lasted about a year. So many awful critters...too many types to mention. Scared me to death. It took 90 days of herbs to get rid of them. Shortly after...I was diagnosed with Celiac. I was just wondering if anyone else experienced this. I was probably Celiac for 10 years before being diagnosed. I had 4 bowel obstructions and never had a day without diahrrea and constipation alternating. So much stomach pain and suffering. So glad to have gotten gluten out of my diet. The only problem I have now is peripheral neuropathy and it drives me crazy. I guess the parasites could be b/c my immune system has been compromised for years. I know that in the past, the surgeon alwasy told me after each obstruction that I had "no parasites." That was forshadowing b/c I didn't know what parasites were and wish I could still say that. Once you've had a bad infestation...you always worry that they will come back.

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By the title I thought I'd be talking about a 'celiac trigger', but your celiac symptoms predated the parasites which led to the dx, if I read that right.

Sounds like a good call (finally, right?) by somebody to test for celiac disease. I'm a little curious on the details of that, if you happen to know.

PN(periph neuro) is pretty common around here. You've probably already had vitamin levels checked, but there might be good ideas in some PN threads here.

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A few questions for you. How did you learn of the parasites? How did you know what they were? Did you take the herbs on your own? Or were they prescribed?

I began to worry about my daughter and I recently after my little cat was found to have roundworms. I wouldn't have thought about us having them but some people online elsewhere were telling me we could have them. I freaked and ordered some herbal things.

But after I took the first awful tasting dose, I decided not to take any more. The product contained wormwood and in looking it up online it said it should not be taken internally and although it killed parasites, it was far harder on the host. It listed a bunch of reasons not to take it, including liver and kidney failure. Thankfully I don't think that one dose caused any harm.

I couldn't take any other of the herbal remedies because I am intolerant to something they contain. And I wasn't about to go to the Dr. for a parasite test because frankly I don't think I had any symptoms. And the chances of us getting roundworms from the cat are slim. Now how the cat got them, I do not know. I can only figure that she had them since we got her. The vet did diagnose lungworms and she was treated for that but perhaps she had the round worms at that time too. She did have symptoms. I just didn't know.

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A few questions for you. How did you learn of the parasites? How did you know what they were? Did you take the herbs on your own? Or were they prescribed?

I began to worry about my daughter and I recently after my little cat was found to have roundworms. I wouldn't have thought about us having them but some people online elsewhere were telling me we could have them. I freaked and ordered some herbal things.

But after I took the first awful tasting dose, I decided not to take any more. The product contained wormwood and in looking it up online it said it should not be taken internally and although it killed parasites, it was far harder on the host. It listed a bunch of reasons not to take it, including liver and kidney failure. Thankfully I don't think that one dose caused any harm.

I couldn't take any other of the herbal remedies because I am intolerant to something they contain. And I wasn't about to go to the Dr. for a parasite test because frankly I don't think I had any symptoms. And the chances of us getting roundworms from the cat are slim. Now how the cat got them, I do not know. I can only figure that she had them since we got her. The vet did diagnose lungworms and she was treated for that but perhaps she had the round worms at that time too. She did have symptoms. I just didn't know.

I never had any food issues or diarrhea before I got my parasite. I got it in Mexico and had it for several years before finally realizing the problem. Ever since I've had IBS of sorts. I've found out I was allergic to rye and pistachio, and I am also now lactose intolerant. The herbalist told me parasites can damage the intestinal lining and it can cause intolerances and allergies, and it can take years to heal. I guess it kind of creates a leaky gut. Yuck. So to answer the main question (I think) yes this also happened to me. Parasites are awful.

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My son recently had giarrdia. I had him on an herbal thyme product and that did not take out the parasites on its own. I can't remember how long he was on it perhaps about a month. I took him to an osteopathic doctor. I was horrified when he recommended antibiotics as I expected a natural cure. But he said it was the very safest, most, effective cure. We did a 5 day dose, but later had to do a ten day dose. Besides we used an herbal product named Paracid for a month after the first antibiotics. The 5 day dose of antibiotics plus Paracid did not get rid of the giardia. During the second batch my son got a yeast infection, so we used candicid.

These parasites can be tough. I saw a critter come out with my stool one day. It was a white diamond with a 1/2 inch tail. I was using the Thyme product and used it for a few months. After I checked for parasites and it was negative. I think perhaps the Thyme and Probiotic products were effective for me.

The products I used for me were:

A Good Thyme by Nutri-spec

Immuno-Synbiotic by Nutri-spec

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I never had any food issues or diarrhea before I got my parasite. I got it in Mexico and had it for several years before finally realizing the problem. Ever since I've had IBS of sorts. I've found out I was allergic to rye and pistachio, and I am also now lactose intolerant. The herbalist told me parasites can damage the intestinal lining and it can cause intolerances and allergies, and it can take years to heal. I guess it kind of creates a leaky gut. Yuck. So to answer the main question (I think) yes this also happened to me. Parasites are awful.

How were you diagnosed with the parasite? What kind of tests are done for that? I know little to nothing about this area of medicine so would love to hear more.

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I never had any food issues or diarrhea before I got my parasite. I got it in Mexico and had it for several years before finally realizing the problem. Ever since I've had IBS of sorts. I've found out I was allergic to rye and pistachio, and I am also now lactose intolerant. The herbalist told me parasites can damage the intestinal lining and it can cause intolerances and allergies, and it can take years to heal. I guess it kind of creates a leaky gut. Yuck. So to answer the main question (I think) yes this also happened to me. Parasites are awful.

Again, I ask... How did you find out? What kind of test?

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I had a terrible parasite infestion before diagnosis. It lasted about a year. So many awful critters...too many types to mention. Scared me to death. It took 90 days of herbs to get rid of them. Shortly after...I was diagnosed with Celiac. I was just wondering if anyone else experienced this. I was probably Celiac for 10 years before being diagnosed. I had 4 bowel obstructions and never had a day without diahrrea and constipation alternating. So much stomach pain and suffering. So glad to have gotten gluten out of my diet. The only problem I have now is peripheral neuropathy and it drives me crazy. I guess the parasites could be b/c my immune system has been compromised for years. I know that in the past, the surgeon alwasy told me after each obstruction that I had "no parasites." That was forshadowing b/c I didn't know what parasites were and wish I could still say that. Once you've had a bad infestation...you always worry that they will come back.

Infection can trigger celiac disease if there is a predisposition to it so yes it is possible that the parasites indirectly lead to the development of celiac disease. I am curious what types of critters these were. Tapeworms? Protozoa? You mention bowel obstructions so I would assume that roundworms were involved? Also I'm not sure that herbal treatment would necessarily be effective in completely eliminating a parasite infection...

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Interesting thoughts.

I wonder....I think there are as many (or more people) in denial about parasites, than people with celiac, or gluten intolerance.

I've wondered if there isn't a connection between the two also. But, I've also wondered if celiac makes you more predisposed to parasite infection. I've also wondered if it is a trigger.

From what I understand; similar to celiac, parasite infection is often difficult to diagnose, and there doesn't seem to be a lot of medical training (our GPs) on the subject.

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The OP joined the day she posted this and has never logged in since.

Little chance we will get answers to any or our questions.

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Again, I ask... How did you find out? What kind of test?

You do a stool test. You collect the stool by sitting on plastic to go. Then you put it in some tubes which are provided for the test. These contain some fluids. Shake them up and send them to the lab. They can check for parasites, digestive enzymes, and blood.

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You do a stool test. You collect the stool by sitting on plastic to go. Then you put it in some tubes which are provided for the test. These contain some fluids. Shake them up and send them to the lab. They can check for parasites, digestive enzymes, and blood.

Who does this test and what would cause you to have it done?

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This is Floral.  I didn't know my initial posting would get so many responses.  I always had a bad stomach and things just kept getting worse.  10 yrs of bowels obstructions followed by parasitic infestation.  And how did I know?  I could see this mucousy stuff floating in toilet.  I research it and realized what I was seeing.  Didn't know what to do.  Talked to my doctor who refused to treat or believe me.  I actually wrote an ebook about my experience but haven't published it yet.  I started taking Hulda Clarks formula and started seeing them evacuate.  I mean thousands of them.  If you google photos of parasites you will see each and every ugly one that I saw -- very frightening.  It took months for them to go away and perhaps someone was right when they said I didn't get rid of them all.  It has taken me a year to recover and during this year I developed food allergies.  I was test with hydrogen breath tests which were positive for lactose and fructose intolerance.  Then the Celiac test was positive.  I am feeling better now that I am 100% compliant with no gluten...and sometimes we are all a little resistent to going all tlhe way with something even though it will ultimately save our lives.  I do wonder if I still may have some parasites but they would have to be mcroscopic at this point b/c I do know what to look for.  I thank God every day for getting me through that storm and would love to talk with you all individually about your experiences.  I saw a video on line by an MS doctor in Baltimore MD who said that glutenism after parasites was very common indeed.  It was in looking for that video that I ended up here again. Obviously, this subject needs to be researched and written about in depth...and now I really need to figure out how to get my ebook up in Kindle form so we can continue the dicussion.  (and education)

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More than half of everyone on the planet has large parasites and most of us would have several species, I bet everyone has a tiny sub clinical parasite or ten. We are evolved to live with them so it's no big deal for most people but I bet it causes gut problems in others. I've been extensively tested for them though both anti body and stool tests and never found a single one. Doesn't mean they aren't there though, sometimes they are very small and hard to find.

 

You need to do around 8 stool test to be sure you haven't missed one and that's only the ones that live in your gut.. The majority of gut parasites can be killed with mebendazole quickly and easily, totally safe drug, even safer than herbs I'd say.

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
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    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
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