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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Fed Up
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4 posts in this topic

At the end of Novemember my DD was diagnosed with celiac thru blood work. It was her ped that did this. We were sent to a GI, but he was out of the country till the first of the year. Well considering her symptoms were servere and her wheat allergy also tested really high I took her of gluten.

Finally in Jan we see the GI. Who runs his own test including biopsy and guess what she test negitive. Well dah I tell him she has been gluten free for 10 weeks. We make the decision to stick with the gluten free diet since things are going so well and he agrees with me (at this appiontment anyway) that she is Celiac.

Now last week in the process of trying to get things lined up for kindergarten we go back to the GI for help with info to give the school. He now says there is no way my DD is celiac because his test say she is negative, and if I really feel she is then I need to do a 6 to 8 week challenge and re-test.

Man am I fusterated this same doctor just diagnosed her father Celiac 10 days before this appiontment. Its like they cannot keep there patients straight. It took everything I had in that appiontment not to scream in his face. I cannot do a gluten challenge by time we figured out what was wrong with my DD she had been on antibiotic for 7 weeks and still had what we thought was major infection.

Anyway, sorry let my emotions override my piont. I am confused about what to do with school now. Her prescholl teacher was wounderful. She was with us thru the hardest time in my DD life. She has been very careful not to CC my child. My fear is without the accual letter from the GI stating she has Celiac the school is going to think this is a choice I made and not neccessary. How do I get them to understand my child is Celiac and she will become very ill if she even plays with playdo.

Does anyone has any insight on the best way to go about this.

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At the end of Novemember my DD was diagnosed with celiac thru blood work. It was her ped that did this. We were sent to a GI, but he was out of the country till the first of the year. Well considering her symptoms were servere and her wheat allergy also tested really high I took her of gluten.

Finally in Jan we see the GI. Who runs his own test including biopsy and guess what she test negitive. Well dah I tell him she has been gluten free for 10 weeks. We make the decision to stick with the gluten free diet since things are going so well and he agrees with me (at this appiontment anyway) that she is Celiac.

Now last week in the process of trying to get things lined up for kindergarten we go back to the GI for help with info to give the school. He now says there is no way my DD is celiac because his test say she is negative, and if I really feel she is then I need to do a 6 to 8 week challenge and re-test.

Man am I fusterated this same doctor just diagnosed her father Celiac 10 days before this appiontment. Its like they cannot keep there patients straight. It took everything I had in that appiontment not to scream in his face. I cannot do a gluten challenge by time we figured out what was wrong with my DD she had been on antibiotic for 7 weeks and still had what we thought was major infection.

Anyway, sorry let my emotions override my piont. I am confused about what to do with school now. Her prescholl teacher was wounderful. She was with us thru the hardest time in my DD life. She has been very careful not to CC my child. My fear is without the accual letter from the GI stating she has Celiac the school is going to think this is a choice I made and not neccessary. How do I get them to understand my child is Celiac and she will become very ill if she even plays with playdo.

Does anyone has any insight on the best way to go about this.

you probably are going to be better off going with the allergy.

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And, get copies of all records and find a doctor, any doctor, to write the Celiac letter.

Try am ND.

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Please don't apologise for being emotional. Your daughter needs you to be!

You should get the wheat allergy letter from your doctor first with something in it about a high level sensitivity to both eaten gluten/cc and topical (to cover the playdough etc).

Then find out who else is available in your region who might be more progressive wrt celiac and gluten intolerance. Get that celiac letter in the first appointment so you don't need to go through all that again. If you don't get it try another. One appointment only. Take a copy of all the history and write a detailed list with letter (with all your and daughters experience) to pass to the clinic before your appointment. Include ALL of her dads information.

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