Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Officially Diagnosed Today
0

11 posts in this topic

Well I was officially diagnosed today through enterolab. Here were my results. Not sure if my hypothyroidism caused it or if this caused hypothyroidism but I was diagnosed as having irritable bowel syndrome about 20 years ago...Doctor thought i might be lactose intolerant at the time but i wasn't...i guess he should have looked into wheat considering i always got sick from cereal and pizza (why he thought it was lactose).

Fecal Anti-gliadin IgA 28 Units (Normal Range is less than 10 Units)

Fecal Anti-tissue Transglutaminase IgA 34 Units (Normal Range is less than 10 Units)

Quantitative Microscopic Fecal Fat Score 332 Units (Normal Range is less than 300 Units)

In the descriptions after it it kinda freaked me out with talk about pancreatic issues with fecal fat etc But it sure seems like it's just straight gluten intolerance based off my symptoms over the years?

Can anyone tell me if this means actual celiac disease or just sensitivity? How does one find out for sure if it's celiac? Or is all autoimmune celiac? Was never quite clear on that.

Well at least I know now. Honestly most people would probably be more upset than me...for me...I finally have an answer to years of different types of digestive issues. At least I assume it's what the "irritable bowel" was all those years ago. What a sad mess I was sitting on the toilet crying from the pain in my lower tummy *sighs*

0

Share this post


Link to post
Share on other sites


Ads by Google:

Can anyone tell me if this means actual celiac disease or just sensitivity? How does one find out for sure if it's celiac? Or is all autoimmune celiac? Was never quite clear on that.

I'm glad that you feel you have found your answer. What's most important is that you go on the diet and find relief. And this is the best source of information around.

EndoLabs do not/can not test for Celiac Disease. And they claim that they can test for sensitives. Okay, well... you can guess that I'm not a big fan. B) But many people here are.

Your best test, is to go gluten free and measure your response. You might have already done that. If you have a positive dietary response, you will know that you have a gluten sensitivity or Celiac.

0

Share this post


Link to post
Share on other sites

Oh I definitely did already as I have yet to have one of my stomach aches since going gluten free. I was getting some stomach aches that made me feel somewhat like i was going to throw up but more of an ache to it really. I haven't had it so far since going completely off the gluten.

Why are you not a fan of labs?

0

Share this post


Link to post
Share on other sites

Oh I definitely did already as I have yet to have one of my stomach aches since going gluten free. I was getting some stomach aches that made me feel somewhat like i was going to throw up but more of an ache to it really. I haven't had it so far since going completely off the gluten.

Why are you not a fan of labs?

So glad you are finding relief.

Dr. Peter Green, the foremost research doctor in Celiac Disease has stated that there has not yet been a test that can measure for gluten sensitivity.

Enterolabs and Dr. Fine have profited millions of dollars from testing, that his peers and experts in the field, consider invalid.

Of course, this is my opinion. I am certain that others may feel differently. Everyone finds their place by different roads.

But, I am happy for you that you have found your answer.

0

Share this post


Link to post
Share on other sites

Enterolabs and Dr. Fine have profited millions of dollars from testing, that his peers and experts in the field, consider invalid.

I think I would say "not-validated", which is different. 'Invalid' implies not true, while 'not validated' suggests that it could be true or not,but you need to check.

0

Share this post


Link to post
Share on other sites




I think I would say "not-validated", which is different. 'Invalid' implies not true, while 'not validated' suggests that it could be true or not,but you need to check.

Yes, agreed :) . "Not validated" is a better and more accurate choice of words. Thank you for calling that to my attention. ;)

0

Share this post


Link to post
Share on other sites

I had to go gluten free irregardless due to hypothyroidism anyhow. But I definitely don't feel as bad when I'm off of it. I've had problems for years with my digestive system. Not sure why any reaction would show in my stool if there wasn't anything?

0

Share this post


Link to post
Share on other sites

Actually what I'd be curious to know...has anyone taken this test and been shown to NOT be gluten sensitive? If it's legit I would assume there would be people who haven't had gluten intolerance? My husband is currently waiting on his results so I guess we'll see with him lol

0

Share this post


Link to post
Share on other sites

Is there a reason you did not have a celiac blood panel?

Best way to figure out is to go that route, and have an endoscopy, especially if you have had stomach issues that long- there could be a great deal of intestinal damage.

0

Share this post


Link to post
Share on other sites

Actually what I'd be curious to know...has anyone taken this test and been shown to NOT be gluten sensitive? If it's legit I would assume there would be people who haven't had gluten intolerance? My husband is currently waiting on his results so I guess we'll see with him lol

There have been several threads on this, and yes, people do test negative.

0

Share this post


Link to post
Share on other sites

I didn't get a blood panel because i'm still going through a lot of blood testing to do with thyroid right now and everything is so expensive. I also heard that it doesn't necessarily show up in blood so i went with the stool test which seemed to be more definite from what i'd read all over the place.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,367
    • Total Posts
      920,556
  • Topics

  • Posts

    • This easy to make bean dip makes a great addisiton to any good munching session. Goes gret with salsa and gluten-free beer. View the full article
    • Good grief!  :o. I'm so sorry, I wish there was something I could do or say to help you.  I agree with the NP, your primary needs to be requesting copies of your records from the other doctors, as well as the records and lab reports from your hospital stay.  They are supposed to work together as a team, not just individually out in left field.
    • Just a quick one to say I got a diagnosis of celiac disease today. I know in the past it's been helpful for me to know the outcome for other folk, so thought I would update. The moral of this story is even with a VERY borderline blood test it's worth persisting. thanks for all the help Sue 
    • Our own resident gluten-free expert is Suzie Davies. Suzie has been dedicated to gluten-free products since she was diagnosed with celiac disease ... View the full article
    • Well, I am stressed to the max. I just spent 3 days in the hospital with D and stomach pain, dizziness, chest pain, generally unwell. Then another trip to the ER on top of that. My protein was low and my RBC and hemoglobin dropped below normal in 3 days. Not terribly low, but below normal. I also had metabolic acidosis which still confuses me. I usually eat every 2-3 hours despite it causing pain to keep my energy up and was unable to eat that frequently in the hospital. I usually carry protein with me and had been taking liquid iron which I stopped a few weeks ago because my new endo is not a fan of iron supplements. As soon as I got home from the hospital I started with my protein drinks and blackstrap molasses for iron.  I now have bilateral mild pleural effusions and a nodule on my left lung, which hopefully is nothing, but was not there on a CT back in March. In addition, my left adrenal gland, which also appeared normal in March, is calcified and the report indicates this is most likely due to a previous bleed or infection. My colon appears tortuous (whatever that means) and we are waiting on colon/endo biopsies. I have been gluten-free since March except for cc so expect the biopsies to again be negative.  My primary care is useless. I am in the process of getting a new one I will see on the 7th but need the current one to fill out FMLA paperwork because I both physically and mentally need time to recover. I will have to go off of payroll for 2 weeks but I think I need to. I called the primary's office today to discuss the hospital tests which she does NOT have yet and to ask if we should/could start a low dose of prednisone because my body is attacking itself. My thyroid on ultrasound is also abnormal though my bloodwork thus far is normal. But it hurts on that side. The only reason the ultrasound was ordered is because I asked for it in the first place. The only reason I have started seeing an endocrinologist is because I found one myself. Anyway...I broke down in tears on the phone eith her today and she told me I was having a "manic episode". I have no history of mania. I only recently started taking xanax to help me cope with the stress of being sick. I was not sick until I did this stupid gluten challenge over the winter. My mother was in town and spoke with the doctor on the phone as well who was trying to get my mom to take me to a psych hospital. She also threatened to send the police to check on me. My mother assured her I was in no danger and we hung up the phone in complete shock. Admittedly, I was in tears when I called her and probably sounded like a fucking mess. But I believe I referenced the dropping iron, protein, fluid near lungs, enlarged thyroid and attacked adrenal gland then literally said "my body is attacking itself and I need help" to which she said, "I think you are manic". Lovely. If I was a mess before that phone call it was 10x worse when we hung up.  Anyway, this is the first night it has been extremely difficult to sleep. I admit my thoughts about my odd symptoms keep me up often recently. I mean, who the hell bleeds from or gets an infected adrenal gland?! I am sure it was another time I begged my primary for help. On a side not, the NP at the ER told me the primary should be putting these pieces together and communicating with my other doctors better. He then stated that he used to go to the same practice but left because the practice got too big and like a business. So I got some validation from that chat.  A melatonin or a .25 xanax usually does the trick for me to sleep but I am so disturbed about my interaction today, stressed at my health, stressed that my ex has our son so much because I am always sick (bless him for coming through), stressed that I have to go back to this awful doctor because I will need the FMLA paperwork before I see the new doc on the 7th.  8 months ago, I took a multivitamin when I remembered it and that was it.  End rant. Maybe now that it is off my chest I can finally sleep. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,443
    • Most Online
      1,763

    Newest Member
    Richard Green
    Joined