Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Officially Diagnosed Today
0

11 posts in this topic

Well I was officially diagnosed today through enterolab. Here were my results. Not sure if my hypothyroidism caused it or if this caused hypothyroidism but I was diagnosed as having irritable bowel syndrome about 20 years ago...Doctor thought i might be lactose intolerant at the time but i wasn't...i guess he should have looked into wheat considering i always got sick from cereal and pizza (why he thought it was lactose).

Fecal Anti-gliadin IgA 28 Units (Normal Range is less than 10 Units)

Fecal Anti-tissue Transglutaminase IgA 34 Units (Normal Range is less than 10 Units)

Quantitative Microscopic Fecal Fat Score 332 Units (Normal Range is less than 300 Units)

In the descriptions after it it kinda freaked me out with talk about pancreatic issues with fecal fat etc But it sure seems like it's just straight gluten intolerance based off my symptoms over the years?

Can anyone tell me if this means actual celiac disease or just sensitivity? How does one find out for sure if it's celiac? Or is all autoimmune celiac? Was never quite clear on that.

Well at least I know now. Honestly most people would probably be more upset than me...for me...I finally have an answer to years of different types of digestive issues. At least I assume it's what the "irritable bowel" was all those years ago. What a sad mess I was sitting on the toilet crying from the pain in my lower tummy *sighs*

0

Share this post


Link to post
Share on other sites


Ads by Google:

Can anyone tell me if this means actual celiac disease or just sensitivity? How does one find out for sure if it's celiac? Or is all autoimmune celiac? Was never quite clear on that.

I'm glad that you feel you have found your answer. What's most important is that you go on the diet and find relief. And this is the best source of information around.

EndoLabs do not/can not test for Celiac Disease. And they claim that they can test for sensitives. Okay, well... you can guess that I'm not a big fan. B) But many people here are.

Your best test, is to go gluten free and measure your response. You might have already done that. If you have a positive dietary response, you will know that you have a gluten sensitivity or Celiac.

0

Share this post


Link to post
Share on other sites

Oh I definitely did already as I have yet to have one of my stomach aches since going gluten free. I was getting some stomach aches that made me feel somewhat like i was going to throw up but more of an ache to it really. I haven't had it so far since going completely off the gluten.

Why are you not a fan of labs?

0

Share this post


Link to post
Share on other sites

Oh I definitely did already as I have yet to have one of my stomach aches since going gluten free. I was getting some stomach aches that made me feel somewhat like i was going to throw up but more of an ache to it really. I haven't had it so far since going completely off the gluten.

Why are you not a fan of labs?

So glad you are finding relief.

Dr. Peter Green, the foremost research doctor in Celiac Disease has stated that there has not yet been a test that can measure for gluten sensitivity.

Enterolabs and Dr. Fine have profited millions of dollars from testing, that his peers and experts in the field, consider invalid.

Of course, this is my opinion. I am certain that others may feel differently. Everyone finds their place by different roads.

But, I am happy for you that you have found your answer.

0

Share this post


Link to post
Share on other sites

Enterolabs and Dr. Fine have profited millions of dollars from testing, that his peers and experts in the field, consider invalid.

I think I would say "not-validated", which is different. 'Invalid' implies not true, while 'not validated' suggests that it could be true or not,but you need to check.

0

Share this post


Link to post
Share on other sites




I think I would say "not-validated", which is different. 'Invalid' implies not true, while 'not validated' suggests that it could be true or not,but you need to check.

Yes, agreed :) . "Not validated" is a better and more accurate choice of words. Thank you for calling that to my attention. ;)

0

Share this post


Link to post
Share on other sites

I had to go gluten free irregardless due to hypothyroidism anyhow. But I definitely don't feel as bad when I'm off of it. I've had problems for years with my digestive system. Not sure why any reaction would show in my stool if there wasn't anything?

0

Share this post


Link to post
Share on other sites

Actually what I'd be curious to know...has anyone taken this test and been shown to NOT be gluten sensitive? If it's legit I would assume there would be people who haven't had gluten intolerance? My husband is currently waiting on his results so I guess we'll see with him lol

0

Share this post


Link to post
Share on other sites

Is there a reason you did not have a celiac blood panel?

Best way to figure out is to go that route, and have an endoscopy, especially if you have had stomach issues that long- there could be a great deal of intestinal damage.

0

Share this post


Link to post
Share on other sites

Actually what I'd be curious to know...has anyone taken this test and been shown to NOT be gluten sensitive? If it's legit I would assume there would be people who haven't had gluten intolerance? My husband is currently waiting on his results so I guess we'll see with him lol

There have been several threads on this, and yes, people do test negative.

0

Share this post


Link to post
Share on other sites

I didn't get a blood panel because i'm still going through a lot of blood testing to do with thyroid right now and everything is so expensive. I also heard that it doesn't necessarily show up in blood so i went with the stool test which seemed to be more definite from what i'd read all over the place.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,334
    • Total Posts
      920,436
  • Topics

  • Posts

    • Anxiety is quite a common symptom with undiagnosed celiacs. It should improve if not disappear when you go gluten free. Be sure to CONTINUE eating gluten until the endoscopy!   Welcome to the club!
    • Although serological tests are useful for identifying celiac disease, it is well known that a small minority of celiacs are seronegative, and show no blood markers for celiac disease. A team of researchers wanted to define the prevalence and features of seronegative compared to seropositive celiac disease, and to establish whether celiac disease is a common cause of seronegative villous atrophy. View the full article
    • This was absolutely me before diagnosis.  The worst of all of my Celiac symptoms occurred in the morning.  The anxiety was terrible in the mornings, I had horrible nausea, no appetite, felt light headed, dizzy and shaky, diarrhea, stomach cramps... the works.  Honestly, I don't know if it was the symptoms causing the anxiety, the anxiety making my symptoms worse, or a combination.  I almost dropped out of school because I felt so terrible every morning I didn't want to leave the house to go to class.  The first few doctors I saw insisted all of my symptoms were psychological and tried to give me anti-depressants/anti-anxiety meds, but I knew there was something else wrong with me.  I had always been a bit "high-strung," but for the year I was really sick before diagnosis, the anxiety got out of control. I was diagnosed with celiac disease 6 months ago and have been gluten free ever since.  It took time, but everything is gradually improving.  The morning anxiety is much improved and some mornings, is completely gone.  I realized a month or two ago that I no longer spend the first hour after waking up gagging and dry-heaving, something I had done for so many years that I just thought it was normal for me.  I can brush my teeth and my tongue without feeling like I'm going to puke.  I eat breakfast now, which I have never done, because I was always too anxious and nauseous in the mornings to be hungry.  I am not "all better."  I still have bad days and even bad weeks.  If I get glutened the anxiety comes back full force.  If I'm super-stressed out or letting my health slide (not eating well, not sleeping enough) the AM anxiety seems to return.  But, it has been slowly improving over the last 6 months and has become so much more manageable.   Your anxiety could be a separate disorder from the celiac disease, but for me, it seems it was absolutely related and continues to get better.  Don't get discouraged if you don't see an immediate improvement or experience relapses after improving.  Often, I feel like it's a two-step-forward, one-step-back kind of thing, but it is getting better.
    • I have suffered with GERD for 20 years and accidently found out it was a gluten intolerance. I had gone on Atkins years ago and noticed that I had no GERD symptoms while on the diet. I didn't make the connection at that time. Then I went on the Mayo Diet back in the winter and once again, the constant was having no bread primarily. I had also noticed that I would have major attacks anytime I ate Italian food. I blamed it on the onions, the tomatoes, herbs...but I could tolerate all those foods separately. Then, like a lightning bolt...it hit me...the culprit was the "innocent" pasta. BINGO!!  I went gluten-free in March 2016 and I have had no GERD now in 5 months. I feel as if it is a gift to me.   
    • Hey everyone!! Dealt with morning anxiety, complete lack of appetite in the AM/diarrhea if I tried to eat, fatigue, etc. for about two months. Saw doctor and they first prescribed me antidepressants while they ran bloodwork. Got bloodwork yesterday, positive result for celiac, going to get the endoscopy/biopsy soon. Anyone else have morning anxiety like CRAZY before cutting out gluten? Afraid to leave the house because of feeling faint, dizzy, etc., like I'm going to pass out. I haven't actually passed out, but the feelings are all there. It's hard to overcome the anxiety some time!   Hoping someone else has had similar symptoms and that I can look forward to this being over soon!! Thanks everyone xoxo
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,389
    • Most Online
      1,763

    Newest Member
    EJ653
    Joined