Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

I Suppose I Don't Have Celiac Disease
0

12 posts in this topic

My primary doctor just called and said she "thinks" my biopsies came back okay. Alerted me that I was anemic, which we realized last year. I have not heard from the GI doctor. The conversation was weird. She asked me if I had seen the GI yet. If you are asking me that, then how would you think my biopsies came back okay?

0

Share this post


Link to post
Share on other sites


Ads by Google:

Sometimes labs, xrays, and pathology reports will be sent to the doctor that did them & the regular doctor. So in this case, they sent the pathology reports (biopsy reports) to the GI who did them and your regular doctor. Get a copy. Your regular doctor may not understand the results and would prefer the "expert" :blink: GI tell you about them.

0

Share this post


Link to post
Share on other sites

I just don't think she even has the results yet. Why ask if I have even seen the GI if you have my results back?

Nobody wants an autoimmune disease, but a medical explanation as to why I was so sick since February would be nice.

0

Share this post


Link to post
Share on other sites

I just don't think she even has the results yet. Why ask if I have even seen the GI if you have my results back?

Nobody wants an autoimmune disease, but a medical explanation as to why I was so sick since February would be nice.

Let me try again. She may have gotten the results but not understand or feel she should interpet them. They don't just say "Patient has Celiac". She would prefer you speak to the GI about the results. If this were me, I would call the GI office and see if the results are in.

The findings on this may not tell you what is wrong. It may just tell you what isn't. You can try gluten-free and see if it helps. You may be gluten intolerant but not Celiac.

0

Share this post


Link to post
Share on other sites

Let me try again. She may have gotten the results but not understand or feel she should interpet them. They don't just say "Patient has Celiac". She would prefer you speak to the GI about the results. If this were me, I would call the GI office and see if the results are in.'

The findings on this may not tell you what is wrong. It may just tell you what isn't. You can try gluten-free and see if it helps. You may be gluten intolerant but not Celiac.

I think I am going to go ahead and go gluten free regardless. I should have found my own GI. I didn't mean to come rudely if I did.

0

Share this post


Link to post
Share on other sites




I think I am going to go ahead and go gluten free regardless. I should have found my own GI. I didn't mean to come rudely if I did.

NO. Not rude. I just didn't make it clear.

Call the GI office and see if the reaults are back. Sounds like the only way you are going to find out.

0

Share this post


Link to post
Share on other sites

I think your dr. Meant have you seen the gi doctor yet - since the results have come back (not have you seen the gi doctor in the first place).

0

Share this post


Link to post
Share on other sites

I'm not sure because she also asked me if he found anything... which she should have known already if she actually had my results.

0

Share this post


Link to post
Share on other sites

I called the GI's office today and they stated that they still haven't received the results of my biopsies. It was a week ago today that I had my EGD and colonoscopy.

I joked with my coworkers that it probably came back positive, but since I am Black and it is just not possible for me to have it, they keep checking it over and over again.

0

Share this post


Link to post
Share on other sites

I called the GI's office today and they stated that they still haven't received the results of my biopsies. It was a week ago today that I had my EGD and colonoscopy.

I joked with my coworkers that it probably came back positive, but since I am Black and it is just not possible for me to have it, they keep checking it over and over again.

I think you should print this and hand it to all the fools who say that. http://www.cureceliacdisease.org/wp-content/uploads/2011/09/CDCFactSheets8_FactsFigures.pdf

And I'd be really interested to know if that percentage is influenced by the number of Black Americans who have medical insurance. There are studies out there showing underrepresentation in other conditions - and the train of thought is they just aren't getting tested.

0

Share this post


Link to post
Share on other sites

So why did your regular doc say she "thinks" your results are okay? Would she have expected to hear from the GI by now, a nd since she didn't, concluded that a ll must be fine?

0

Share this post


Link to post
Share on other sites

I'm not sure. She does stuff like that often. She called me a few weeks ago telling me my FMLA paperwork was ready to be picked up, her intern called the next day saying it was ready. When I went to pick it up, it was not ready. She filled it out when I got there.

I have been with her since I was 18, but it almost seems like she is not listening to you, especially since they started using laptops instead of paper..

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,358
    • Total Posts
      920,531
  • Topics

  • Posts

    • Here's another thing.  Feeling deprived?  Order two of the same item.  I was hungry by the time dinner arrived! 
    • The doctors just made me feel like I was crazy because they did not have a clue of what was wrong with me. I did a stool test (positive) and I did a genes test (positive for two gluten sensitive genes, one in each chromosome).  Blood test are not so foolproof, if you read the comments/experiences in such topic you will see the problems. Biopsy can give a false negative if taken from an undamaged area. If you have medical problems that go away once on a gluten free diet then gluten is the problem. The medical establishment profit from managing your medical problems and big pharma makes money by pushing pills so we need to be careful because they won't benefit if a gluten-free diet solve your problems. Since I started a Gluten free diet I have been free of the following: (all related to Celiac)  Irregularity, Intestinal noise, Irregular stool, Tooth enamel defects, Rash in upper arms, Abdominal swelling, depression, fatigue, irritability, lactose intolerance, 
      loss of memory, dandruff, uncontrollable bladder, suicidal thoughts, unable to sleep, Canker sores/ Mouth ulcers, high blood pressure, and probably others that I did not realize. I was at the end of my rope, thanks to Google and the people that are able to talk about this I was able to get my life back. I am passionate about this because I know how bad its can get. 
    • Well, I have never cruised on Carnival, but I am sure they can accommodate you.  I assume that you have already alerted them that you require gluten free meals.  If not, please contact Carnival immediately. Here are my own tips.  Some folks eat off the buffet line, but not me or hubby except for coffee/drinks and baked potatoes (jacketed) and fruit that we wash in the restroom (people touch everything!)  Okay, I am OCD, but my last glutening which occurred the previous summer made me sick for three months (GI tested my antibodies to prove it).   When we board, I go to the buffet restaurant ASAP and ask to speak to the Head Waiter (they are usually there greeting customers and often trying to up sell to specialty restaurants.   Let them know you have celiac disease and must be gluten free.  They may try to tell you that each dish is clearly marked gluten free, but really?  Who's to say that some other passenger is not going to switch spoons (or I have seen passengers wandering around with serving spoons...I kid you not!  The staff usually will  go downstairs and fetch a gluten free meal for me from the main dining room's kitchen as there is usually a dedicated area for allergies.  We have to wait up to 20 minutes or so but it is worth it.  Starving?  Get a baked potato wrapped in foil until your gluten-free meal arrives.  Now, do not do this every single time.  Those folks have to go down several levels to fetch food and you don't want to be a pain.  But if the main dining area is closed, they need to make an effort to keep you safe.  On our last cruise, we were advised not to eat anywhere but the main dining room and that included room service (they are not trained to handled allergies).  My headwaiters have sent goodies (prepackaged gluten free rolls and cookies for us to keep in our room.  We can always grab whole fruit (I wash it first) to snack on.  I bring gluten-free non-perishable items with me to eat while at port in case we can't find anything (which can be often).  Again, when we get back to our ship, we contact our headwaiter and he/she can prepare some snacks until we have dinner.   Be grateful and not picky.   We eat all meals in the dining room (or at least as much as possible).  Our headwaiter had a few other celiacs on our cruise this summer, so they prepared some gluten-free waffles, etc. for our breakfast!  What a treat!  At breakfast, we'd have different waiters, so our headwaiter would always instruct our waiters each and every time!  They even let me tour the kitchen and showed me the allergy section.   The only time I did not feel safe was at the buffet.  We once ordered gluten-free pizza and I realized (I watched) that that restaurant didn't really have the gluten-free thing down), do I called him on it.  Got the manager etc.  So, be careful.  Other cruises made us frozen Udi"s which was just fine with us.  They covered it up in foil so that we would not get any cross contamination from their pizza oven. So, have fun!   Tipping?  We prepaid our gratuities, but we gave our headwaiter an extra $200.00 for his time.  For us, it was well worth the service and safety of our food.  It does not hurt to slip some of the tip ahead of time (like after your first meal!)   Oh, I checked your ship.  You must eat in the diningroom if you have special dietary needs.
    • French Celiac / Coeliac Gluten Free Restaurant Card <strong>What is ... What to know about celiac disease, gluten sensitivity, and gluten-free diets. View the full article
    • <strong>Celiac Disease & Gluten-free Diet Information at Celiac.com. Gluten Free Diabetes ::The 3 Step Trick that Reverses Diabetes Permanently in ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,432
    • Most Online
      1,763

    Newest Member
    rbeckler60
    Joined