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The scotomas this year disappeared finally on the 18th October. Are they caused by toxins, the immune system or malabsorption? From the 7th Sept – 14th Oct I avoided all tomato products. On the 22nd September I had a CLA-1 blood screen for IgE allergies by the Biolab Medical Unit, London. Inhalants were all negative including birch and pellitory (a relative of the stinging nettle). Tomato was also negative. Some stinging nettles were still in flower so in case it was not an IgE reaction on 6th November I ate about 20 strands of plump nettle flowers boiled for 1 minute, and the next day ate the same amount uncooked with home grown tomatoes. No scotomas either time. I have in the past suspected that apple gave me migraine and hazelnut made me itch but have not confirmed this by experiment.
The science of Vitamin A is now just over a century old. NatureChick (4 July 2014) suggested hats and darker sunglasses to limit summer light exposure. Dietary vitamin A deficiency is mentioned in historical accounts as causing night blindness (nyctalopia) in SUMMER in US Civil War soldiers and fishermen, so clearly sun exposure is important. My scotomas were not more noticeable in the evening. Websites listing celiac symptoms often mention vitamin A and zinc malabsorption as a cause of night blindness but searching online I have found no convincing case records of celiacs with nyctalopia. I have also been right through the topics listed in this forum and only found one other posting mentioning night vision improvement – Vision by PaleoMan 13 Mar2004. Nor have I found any accounts of variable scotomas in summer recurring over years.
I have written to various experts in vision and allergy. Few replied and only one offered a suggestion: that I should think again about malabsorption, diet and supplements. My blood tests since going gluten-free + supplements include normal vitamin A (retinol) level of 2.2 (1.07-3.55), 25 OH vitamin D 103 ng/ml (70-374), vitamin B12 459 ng/ml (210-920) and serum iron 18 umol/l (10-28). However I am still minimally anaemic (Hb 12.9g/dl) and my toes are still slightly numb. One ancient cure for night blindness is eating liver, so in case there is something in liver not present in the supplements I intend to exchange my daily cod liver oil capsule for liver pate. AlwaysLearning (2 Aug 2013) would probably approve! Let us see if the scotomas come back next spring.
Unless other people present with similar symptoms, more definite than those described by notme!, these recurrent nocturnal scotomas will unfortunately not be investigated by experts.
Have offered to be in charge of snacks for Christmas this year. That way I can buy lollies and chips that I can have and so can everyone else. Never much fun when I have my own bowls of stuff- other years when I've done this people forget and eat mine. Which is fine but I'd only got enough for me and if it all goes I can't eat "theirs"
Apparently it's cold meant and salads this year. Family member organising it said they will try to make the salads gluten-free. I asked them to let me know what they are so I can suggest dressings etc. Hopefully that way I can prevent needing to make my own version of something that could have easily been made gluten-free in first place if they asked me first.