Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

My Daughter's Scope Was This Morning
0

10 posts in this topic

Ha, ha! I hate waiting -- I am SO impatient!! So the GI who did the scope wasn't our GI -- he was a doctor from the same group. So he didn't say anything except everything looked OK ad now we just have to wait on biopsy results. I am wondering how many of your kids looked normal but then the biopsy turned up positive? Or how that happened? My DD is 4.

Also, how long did it take to get your results?

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hi. Our daughter had her scope six years ago. She was 6.5 years old at the time. We also got a report that everything looks ok at the end of the scope, but they told us immediately that it doesn't mean a lot and that we'll have to wait for the formal results. These came back after two or three weeks and were very positive for Celiac. Combined with the high blood tests there was no question about her diagnosis. She has been following a gluten free diet ever since and feeling great.

Lots of health to all your family. Don't forget to have everyone in the family tested if she comes out positive

Natalie

0

Share this post


Link to post
Share on other sites

My son is almost 4 yrs. We had the scope done on Tuesday and got Celiac results that Friday. We are still waiting on Lactose and Sucrose tests and were told we would get those in one week from scope (tomorrow). Good luck waiting.

0

Share this post


Link to post
Share on other sites

We have *always* heard something as soon as the GI comes out of the OR. It takes sometimes 2wks for the results to come back from pathology.

0

Share this post


Link to post
Share on other sites

The GI who did my almost-4 y/o daughter's scope also said everything "looked normal" during the scope, but the biopsy confirmed she was positive for Celiac (she also had a pretty high positive blood result). We were told to call in 2 weeks for the biopsy results, which is how long we had to wait. I'm sure they had the results earlier, but I decided to wait the full 2 weeks to call as instructed. That was a long 2 weeks. We've been gluten-free since we found out at the beginning of May. It's been a little challenging so far, but I'm learning a lot. Try to keep busy until you get the results. I composed a list of about 10 questions I was planning to ask the GI if the biopsy came back negative. I just wanted to make sure I was prepared for that (sometimes it's hard to remember what you want to ask, so it's good to have things written down). Hope the wait isn't too long for you...

0

Share this post


Link to post
Share on other sites




My daughters scope looked perfect doc said- biopsy showed definite celiac. Sons endoscopy looked normal- except for the fact that the food he had eaten 24 hrs before was still sitting there. Biopsy was celiac. My intestines were trashed to the naked eye, dr dx celiac on the spot, biopsy confirmed. Interestingly, my antibodies were only "weak positive"- both kids had very high antibodies. Go figure.

0

Share this post


Link to post
Share on other sites

Once the biopsy is done, there's really no reason to wait to go gluten-free. Whatever the test results are, it will not affect any other type of testing your GI or PCP might want to do. You might notice improvements in your child long before you have the follow-up appointment and pathology report in your hands.

0

Share this post


Link to post
Share on other sites

Thanks SO much everyone!! Her blood work was actually negative. But, they didn't do the full celiac panel -- they only tested for a few things -- and it was "barely" negative (if that's possible?) -- meaning it was just within the normal range. But, they are looking for everything -- EoE, Celiac, Crohn's, etc. And they said that we should trial milk-free first -- for two weeks, to see if that seems to help at all. And then we'll see about the rest? I really haven't the foggiest what the answer will be (if anything).

I am wondering though if the biopsy would show gluten intolerance and not just Celiac?

We are trying to stay busy but I just want to know already! Ugh. It has only been 24 hours! This is not good -- ha, ha! :)

0

Share this post


Link to post
Share on other sites

My daughters scope looked normal, too but came back "simplification". That is the start of blunting. You don't go from having great villi to none overnight yet some doctors will not say celiacs until total villi destruction. Not my GI. He said to start gluten free immediately that she had celiac. But she also had positive genes, positive blood, etc. I have heard that a milk allergy can cause blunting, too. So much that they can't tell what caused it. So if your daughter has neg. blood, it might really be a milk allergy.

0

Share this post


Link to post
Share on other sites

It just makes me a little nutty -- like if it were just one thing they were testing for I could sort of sit still and wait but since it is a million things I am totally losing it and need to know!! But I just have to be patient. I am horrible at this. Have I mentioned that!?

We haven't had the test for the gene, nor have we even had the full blood panel, so it is hard to know for sure. I do feel like it is likely food related...she has other severe food allergies -- tree nuts and egg -- and is very intolerant of artificial dyes and I just think if it were anything it would be that?

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,654
    • Total Posts
      921,619
  • Topics

  • Posts

    • Don't freak out worrying about other maladies yet. You would be absolutely amazed at the things that can/will resolve on the gluten free diet. Some take longer than others -- neurological seem to take the longest for most people but really, I guarantee, there will be things you had no idea or expectation of resolving will. There were tons for me and then there were things I sort of "woke up one day" & said, "hey, that's gone and that & that & that". Other, larger things had taken my attention so I hadn't paid attention to the smaller things until...... On the other hand, not everything is related to celiac but I bet you wouldn't find a handful of celiacs who didn't say something very similar to what I said above. Yes, thyroid problems are common with celiac but I'll also tell you there are/have been people on here who were hypothyroid before dx but after being gluten-free for a while they actually went back to normal thyroid numbers. My husband is one (yes, we both are celiac - it happens). He was on synthroid for 20 years or more. Guess what? He's not on it anymore. We've had his thyroid panel done several times since about a year gluten-free & he is no longer hypothyroid. 
    • Yes please, that'd be awesome Having a fun time trying to reply on my phone due to broken screen but will be back on tomorrow after results of doctor appointment to get to the bottom of why they've given me seemingly wrong advice re: next steps. Yup I'll admit to pity, anger, frustration and outright fear, been through the mill of emotions in this first week that's for sure. One thing before I go for that; back when I was self-diagnosing I wanted a full thyroid panel (T3, T4 etc.) and also ESR & CRP checks for vasculitis and similar maladies. Now it seems from my reading they can often follow celiac so my worry level of those has gone up a notch, more blood tests ahoy it seems? Main reason for worrying about those is the nearly constant tight / tender head I have at the moment. Top and sides of scalp. Could be the stress tensing the shoulders and occipital muscles at back of head but after the celiac diagnosis being missed I'm fearful of anything else being missed. Did anyone else have this tight head feeling at the start? Feels like the skin is being pulled inwards, sometimes goes down for a few minutes here and there and gets worse when sitting I think. I see the term "brain fog" a lot but luckily don't seem to have too much of that at present, this is more a physical sensation.
    • I don't have a lot of faith in the allergy testing naturalpaths do. I had them done, but really it wasn't very helpful. Foods that were okay on the blood work- I was still having obvious reactions to. Skin testing through an allergist didn't show up food allergies either. I agree the food elimination diet is a better way to go and doesn't cost a bunch of money. I did a whole 30 diet a while back that could have been helpful if the foods I reacted to were corn, dairy,  soy, grains and sugar- but I react to more than that.  I do need to do a major elimination diet- just haven't gotten up the willpower yet.   
    • Quick search gave too many responses to TGI Fridays but none to TGI Fridays Buns (or similar) so... I was talking with my sister-in-law (Gluten Intolerant) and she spoke highly of a pre-packaged bun from Fridays. I was hesitant but she gave me one (apparently you can buy them from the restaurant?) and I tried it. Since I'm slow to react I won't know about gluten for a bit but I can definitely say it is the closest to "real" I've had in years! Spongy, doesn't crumble while eating a sandwich and tastes good. Color me impressed! I tried to determine the manufacturer or if Fridays actually makes them but I can't locate anything worth pursuing. Anyone have information on this? Thanks in advance.
    • Thanks cyclinglady! I will!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,654
    • Most Online
      3,093

    Newest Member
    bentcreekmom
    Joined