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How Does Celiac Affect Pregnancy?
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I know there is an association between miscarriage and celiac but I don't understand the relationship.

About 5 years ago I suffered my first miscarriage (13 weeks) after 5 healthy pregnancies and 1 happy adoption. I was 36 at the time. I silently worried it had been caused by stress due to my sister's cancer diagnosis and taking care of her 3 babies along with my own.

Within 6 weeks I was unexpectedly pregnant again with my 7th child and carried him successfully to term.

Finally, a year ago this month I again suffered a miscarriage and subsequent hemmorrhage also at 13 weeks. It was during my examination for this event I was diagnosed with Hashimoto's thyroiditis but no one mentioned what might have contributed to the loss.

I am at peace with the number of children we now have and not planning any more, but I guess, with the anniversary here and now knowing I have celiac (3 months gluten free) I am wondering anew what may have happened and if it might be due to celiac in any way. I also have concerns for my son who was born in the middle of the two. Do I need to be especially watchful if I had celiac while pregnant with him?

Thank you, and if this is not the appropriate place to post this topic, please advise and accept my apologies.

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Sounds like you have a wonderful family! I would be wondering the same things. I have read that pregnancy can bring on celiac just because it is hard on your body ( but totally worth it). I too have had 5 healthy babies all natural and am expecting my 6th, but now I know I'm celiac and am gluten free ( over a year now) but I have felt way worse than with my others. I'm so weak and tired and dizzy. I am usually anemic while pregnant. The doctor said he saw scalloping in my endo which means I've been celiac for many years and didn't know. I think something changes once you go gluten-free and become even more sensitive to gluten ( my theory). I used to feel ok eating anything and now it really sends me into fatigue. I don't have any answers for you but I am thrilled to meet another Mom of many children on here! I am really grieved for your losses. So sorry. As far as your kids go I do recommend having genetic testing done. We did- and found one celiac and the risk levels of each one so 4/5 of my kids are gluten-free in and out of house.

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Sounds like you have a wonderful family!... I don't have any answers for you but I am thrilled to meet another Mom of many children on here! I am really grieved for your losses. So sorry. As far as your kids go I do recommend having genetic testing done. We did- and found one celiac and the risk levels of each one so 4/5 of my kids are gluten-free in and out of house.

Thank you faithforlife and congratulations on your pregnancy. My children are wonderful and their Dad has been very supportive. We have had all of them tested...so far all negative but I am suspicious because some have symptoms. As for genetic testing...I am not sure I understand about finding the risk levels of each one? How do you know that? With myself and 2 living sisters celiac and one who passed away from lymphoma/leukemia who also had autoimmune issues(possibly undiagnosed celiac?)...I was told by someone on this forum that was as good or better than genetic testing. Since the celiac testing has been negative I was thinking I would have the whole family be gluten free in the house but relax out? Except that there are thyroid concerns with one of them (myself and both my parents have Hashimoto's)so I am still worried about the best course of action.

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We did the Promethius Celiac Plus test which tells exactly what gene they carry and their risk level. So 3 ofus were only moderate risk, 3 of us were high risk (2 of which had the positive antibodies and positive endo) and one of us is very high risk -no positive antibodies but symptomatic and improved on diet. Doc told me its harder to get a positive antibody reading on younger kids so genetic testing is helpful in deciding the diet. Plus when they have relatives already diagnosed their risk levels are even higher! It was a very difficult decision to Make but some things that the doctors said made a lot of sense and help me go all the way with it. He said that it would be a shame to not teach my kids the rigid diet when they are genetically prone to celiac and their future children will be also. He encouraged me not to pass up this age of opportunity and part of learning the diet is learning it in all different settings and learning to say no. It's been Good. I have felt okay with it because even though my son and I are the first to be diagnosed in all the extended family I have so many relatives and my own father who died young of autoimmune disorders. I feel the diet helps us to make good choices and to say no to a lot of the junk that we would otherwise be eating without thinking about it.

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I know there is an association between miscarriage and celiac but I don't understand the relationship.

About 5 years ago I suffered my first miscarriage (13 weeks) after 5 healthy pregnancies and 1 happy adoption. I was 36 at the time. I silently worried it had been caused by stress due to my sister's cancer diagnosis and taking care of her 3 babies along with my own.

Within 6 weeks I was unexpectedly pregnant again with my 7th child and carried him successfully to term.

Finally, a year ago this month I again suffered a miscarriage and subsequent hemmorrhage also at 13 weeks. It was during my examination for this event I was diagnosed with Hashimoto's thyroiditis but no one mentioned what might have contributed to the loss.

I am at peace with the number of children we now have and not planning any more, but I guess, with the anniversary here and now knowing I have celiac (3 months gluten free) I am wondering anew what may have happened and if it might be due to celiac in any way. I also have concerns for my son who was born in the middle of the two. Do I need to be especially watchful if I had celiac while pregnant with him?

.

Thank you, and if this is not the appropriate place to post this topic, please advise and accept my apologies.

Given your age even without celiac you have a 30-35% chance of miscarriage. Even if you were thirteen weeks at time of diagnosis, how big was the pregnancy measuring and did the physician send the pregnancy tissue for chromosomal analysis? If the chromosomes were abnormal then most likely not related to celiac but the most common reason to have a miscarriage which is chromosomal abnormality that takes place at time sperm and egg meet (random or spontaneous event)

As far as your middle child, having diagnosed celiac or undiagnosed celiac during a pregnancy would not affect that child at this point. Undiagnosed celiac in pregnancy increases risk of small for size baby at birth or risk of intrauterine death.

If you are concerned about your children, you can consider genetic testing for them. Keep in mind 40% of US population will have genetic predisposition to develop celiac but only slightly less then 1% of US population is thought to have celiac (mostly undiagnosed by the way). So, if the children are at risk for developing celiac, you can then check their antibody titers every few years or if they develop symptoms. If they do not carry the genetic predisposition then they never have to worry about being celiac.

Glucose intolerance is a separate animal and at this point the guidelines are not nearly as clear as with celiac.

I hope this was helpful. University of Chicago has an excellent website especially on the topic of genetic testing.

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    • Thank you! I will call and ask for a full panel and see where it leads!!
    • I think the idea of grinding your own at home stems from the thought that flavored coffees might be ground on the same machines.  The grinders in the grocery are not cleaned between uses.  However, I have not found a flavored coffee bean that had gluten, so it's probably not a real concern.  For coffee that comes from a factory ground, I wouldn't worry at all.   Machines would be cleaned between flavors and nothing but coffee could be made on the machines or even in the same building ( everything made would taste/ smell like coffee). if you still have doubts - I went to the International Celiac Disease Symposium a few years back.  This is held every few years in different countries for medical professionals that study and treat Celiac.  They present research, etc.  All food served was gluten-free.  We drank a lot of plain, already ground, coffee!  A lot!   Coffee is not on any lists as a gluten containing food.  Talking legitimate organizations - not some blogger or pseudo- science website.   After all this, if you still doubt that coffee is gluten free...... Then don't drink it!  It leaves more for me!    
    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
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