Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

How Does Celiac Affect Pregnancy?
0

5 posts in this topic

I know there is an association between miscarriage and celiac but I don't understand the relationship.

About 5 years ago I suffered my first miscarriage (13 weeks) after 5 healthy pregnancies and 1 happy adoption. I was 36 at the time. I silently worried it had been caused by stress due to my sister's cancer diagnosis and taking care of her 3 babies along with my own.

Within 6 weeks I was unexpectedly pregnant again with my 7th child and carried him successfully to term.

Finally, a year ago this month I again suffered a miscarriage and subsequent hemmorrhage also at 13 weeks. It was during my examination for this event I was diagnosed with Hashimoto's thyroiditis but no one mentioned what might have contributed to the loss.

I am at peace with the number of children we now have and not planning any more, but I guess, with the anniversary here and now knowing I have celiac (3 months gluten free) I am wondering anew what may have happened and if it might be due to celiac in any way. I also have concerns for my son who was born in the middle of the two. Do I need to be especially watchful if I had celiac while pregnant with him?

Thank you, and if this is not the appropriate place to post this topic, please advise and accept my apologies.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Sounds like you have a wonderful family! I would be wondering the same things. I have read that pregnancy can bring on celiac just because it is hard on your body ( but totally worth it). I too have had 5 healthy babies all natural and am expecting my 6th, but now I know I'm celiac and am gluten free ( over a year now) but I have felt way worse than with my others. I'm so weak and tired and dizzy. I am usually anemic while pregnant. The doctor said he saw scalloping in my endo which means I've been celiac for many years and didn't know. I think something changes once you go gluten-free and become even more sensitive to gluten ( my theory). I used to feel ok eating anything and now it really sends me into fatigue. I don't have any answers for you but I am thrilled to meet another Mom of many children on here! I am really grieved for your losses. So sorry. As far as your kids go I do recommend having genetic testing done. We did- and found one celiac and the risk levels of each one so 4/5 of my kids are gluten-free in and out of house.

0

Share this post


Link to post
Share on other sites

Sounds like you have a wonderful family!... I don't have any answers for you but I am thrilled to meet another Mom of many children on here! I am really grieved for your losses. So sorry. As far as your kids go I do recommend having genetic testing done. We did- and found one celiac and the risk levels of each one so 4/5 of my kids are gluten-free in and out of house.

Thank you faithforlife and congratulations on your pregnancy. My children are wonderful and their Dad has been very supportive. We have had all of them tested...so far all negative but I am suspicious because some have symptoms. As for genetic testing...I am not sure I understand about finding the risk levels of each one? How do you know that? With myself and 2 living sisters celiac and one who passed away from lymphoma/leukemia who also had autoimmune issues(possibly undiagnosed celiac?)...I was told by someone on this forum that was as good or better than genetic testing. Since the celiac testing has been negative I was thinking I would have the whole family be gluten free in the house but relax out? Except that there are thyroid concerns with one of them (myself and both my parents have Hashimoto's)so I am still worried about the best course of action.

0

Share this post


Link to post
Share on other sites

We did the Promethius Celiac Plus test which tells exactly what gene they carry and their risk level. So 3 ofus were only moderate risk, 3 of us were high risk (2 of which had the positive antibodies and positive endo) and one of us is very high risk -no positive antibodies but symptomatic and improved on diet. Doc told me its harder to get a positive antibody reading on younger kids so genetic testing is helpful in deciding the diet. Plus when they have relatives already diagnosed their risk levels are even higher! It was a very difficult decision to Make but some things that the doctors said made a lot of sense and help me go all the way with it. He said that it would be a shame to not teach my kids the rigid diet when they are genetically prone to celiac and their future children will be also. He encouraged me not to pass up this age of opportunity and part of learning the diet is learning it in all different settings and learning to say no. It's been Good. I have felt okay with it because even though my son and I are the first to be diagnosed in all the extended family I have so many relatives and my own father who died young of autoimmune disorders. I feel the diet helps us to make good choices and to say no to a lot of the junk that we would otherwise be eating without thinking about it.

0

Share this post


Link to post
Share on other sites

I know there is an association between miscarriage and celiac but I don't understand the relationship.

About 5 years ago I suffered my first miscarriage (13 weeks) after 5 healthy pregnancies and 1 happy adoption. I was 36 at the time. I silently worried it had been caused by stress due to my sister's cancer diagnosis and taking care of her 3 babies along with my own.

Within 6 weeks I was unexpectedly pregnant again with my 7th child and carried him successfully to term.

Finally, a year ago this month I again suffered a miscarriage and subsequent hemmorrhage also at 13 weeks. It was during my examination for this event I was diagnosed with Hashimoto's thyroiditis but no one mentioned what might have contributed to the loss.

I am at peace with the number of children we now have and not planning any more, but I guess, with the anniversary here and now knowing I have celiac (3 months gluten free) I am wondering anew what may have happened and if it might be due to celiac in any way. I also have concerns for my son who was born in the middle of the two. Do I need to be especially watchful if I had celiac while pregnant with him?

.

Thank you, and if this is not the appropriate place to post this topic, please advise and accept my apologies.

Given your age even without celiac you have a 30-35% chance of miscarriage. Even if you were thirteen weeks at time of diagnosis, how big was the pregnancy measuring and did the physician send the pregnancy tissue for chromosomal analysis? If the chromosomes were abnormal then most likely not related to celiac but the most common reason to have a miscarriage which is chromosomal abnormality that takes place at time sperm and egg meet (random or spontaneous event)

As far as your middle child, having diagnosed celiac or undiagnosed celiac during a pregnancy would not affect that child at this point. Undiagnosed celiac in pregnancy increases risk of small for size baby at birth or risk of intrauterine death.

If you are concerned about your children, you can consider genetic testing for them. Keep in mind 40% of US population will have genetic predisposition to develop celiac but only slightly less then 1% of US population is thought to have celiac (mostly undiagnosed by the way). So, if the children are at risk for developing celiac, you can then check their antibody titers every few years or if they develop symptoms. If they do not carry the genetic predisposition then they never have to worry about being celiac.

Glucose intolerance is a separate animal and at this point the guidelines are not nearly as clear as with celiac.

I hope this was helpful. University of Chicago has an excellent website especially on the topic of genetic testing.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,352
    • Total Posts
      920,502
  • Topics

  • Posts

    • This is EXACTLY what happens to me. It has twice now and both times was after both glutening episodes but once it was the day after and the other time it was a week and a half. So I'm still not sure if it's related or strange bug bites...

      Did they stop happening when she stopped being glutened? Did you decide they were definitely related? I'm really confused by this and would love to know whether to insecticide my house or....
    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
    • I was tested for the full panel, I believe. I had normal values for t-transglutaminase (ttg) igg,t-transglutaminase (ttg) iga, deamidated gliadin abs igg, deamidated gliadin abs iga, and immunoglobulin a qn serum.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,416
    • Most Online
      1,763

    Newest Member
    djs2117
    Joined